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  • justenough
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    Post count: 12

    “Your notation “my last MRI before this one showed the C5-6 disc actually slightly indenting the spinal cord and in this more recent MRI of my neck- I do not see the disc actually touching, yet the spinal cord is more pushed in now then it was last year” is difficult to understand.”

    The cervical spine images on the MRI from last December ( not the recent one you viewed ) showed the C5-6 Disc actually making contact with the spinal cord at that level, and the cord itself was slightly indented.

    This recent Cervical spine MRI that you were able to view does not show the C5-6 region making actual contact with the spinal cord in that area, however, the spinal cord at C5-6 region looks more deformed / compressed NOW, then it did in last December, and yet the recent images ( the ones you viewed ) do not show the C5-6 disc making contact with the cord.

    I just wondered how the spinal cord could look so much more / indented compressed NOW in recent films with no actual cord contact. I hope I explained well.

    “If you do have myelopathy, a physical examination would demonstrate long tract signe (hyperreflexia, clonus, Hoffman’s sign, Positive Rhombergs sign among others). You need to see a good spine surgeon for these symptoms.”

    I do have hyperreflexia ( no clonus in the feet, but my hands and fingers shale when my wrists are bent – whatever that is? I do not have hoffman’s sign, but a side note- my Father has myelopthy and does not have babinski, or hoffman’s sign ) I definitely have positive rhombergs sign- and also feel vibration, electricity like feeling and weakness in arms and legs. ( I don’t know what that could mean, or where its from- and I understand I could have disequilibrium from inner ear- I also want to mention- a long with this recent cervical spine MRI you viewed, I had thoracic and lumbar spine as well……the Lumbar dictated report said:

    Findings:
    Thoracolumbar dextroscoliosis is demonstrated. Vertebrae have normal height and marrow signal.

    T12-L1 level: Disc herniation extends superiorly from the disc space posterior to the T12 vertebra over a distance of 2.1 cm, seen in sagittal T1 #5/11 consistent with large extrusion of the disc
    herniation indenting the anterior thecal sac producing mild central stenosis.

    Axial slices are not available through this level.

    L1-2, L2-3, L3-4 levels: No herniated nucleus pulposus or significant central spinal canal stenosis.

    The neural foramina appear essentially patent. The facets appear unremarkable.

    L4-5 level: Loss of disc hydration. Disc bulge effaces ventral epidural fat indenting the anterior thecal sac. Posterolateral disc bulge in combination with facet arthropathy narrows the neural
    foramina.

    L5-S1 level: Disc bulge effaces ventral epidural fat. Facet arthropathy is noted bilaterally. Neural foramina are patent.
    The conus medullaris and paraspinal tissues appear unremarkable.

    The cervical spine dictated report said:

    Findings:
    There is upper cervical dextroscoliosis and cervicothoracic levoscoliosis.

    Vertebrae have normal height and marrow signal.

    C2-3, C3-4 levels: No herniated nucleus pulposus or significant central spinal canal stenosis. The
    neural foramina appear essentially patent. The facets appear unremarkable.

    C4-5 level: Posterocentral disc herniation indents the anterior thecal sac extending across the disc space over a distance of approximately 8 mm, seen in sagittal T1 image #8/13. Neural foramina are
    patent bilaterally.

    C5-6 level: Broad based disc bulge indents the anterior thecal sac producing mild central stenosis and cord deformity. Hypertrophic facets and ligamentum flava indent the posterolateral thecal sac.
    Neural foramina are patent.

    C6-7 level: Diffuse circumferential disc bulge indents the anterior thecal sac. Neural foramina are
    patent.

    C7-T1 level: No herniated nucleus pulposus or significant central spinal canal stenosis. The neural
    foramina appear essentially patent. The facets appear unremarkable.
    The cord signal, posterior fossa structures and paraspinal tissues appear normal

    I wish I could get a flex- extension MRI of the cervical spine- because I do feel there is an instability there- but I’m afraid to ask for one……” the neurologist I was seeing who did the EMG’S which were abnormal – the EMG’s he performed himself. he said the upper extremities showed chronic C5-6 radiculopathy…

    The lower extremtities showed L5-S1 chronic radiculopathy ( that EMG was before the T12-L1 disc issue as shown in the recent MRI I added the report to here above ) also it showed periphreal neuropathy.

    I also wish someone would measure in mm the C5- 6 regions and the stenosis at that level…….I have a plastic mm measuring device and if I knew what points to measure I would …..thank you so much for any further info.

    justenough
    Member
    Post count: 12

    I am editing this message as the board doesn’t accommodate the image file, and I sent the images to your email instead and received a response from your assistant that you will be looking over them as time allows, and understand how busy you are and the amazing service you provide to all of us. you are a remarkable Doctor & surgeon….I think they broke the mold after you !

    justenough
    Member
    Post count: 12

    I wrote to you on your message board here last year and you said to have beginning symptoms of myelopathy there need not be hyperintense signal with spinal cord…….my symptoms are severe disequilibrium – pins and needles in feet sometimes extending into chins and hands as well- coordination issues with hands doing intricate things – like picking up change, keys etcetera- also when standing or using my arms, my arms feel electricity and get icy cold- I have no balance in the dark, taking a shower is nightmare…and standing still in one spot I am swaying and rocking, gripping toes to the ground to keep my balance ..i am so misreable – there is more , and whats odd is my last MRI before this one showed the C5-6 disc actually slightly indenting the spinal cord and in this more recent MRI of my neck- I do not see the disc actually touching, yet the spinal cord is more pushed in now then it was last year …can my neck be causing all my symptoms please…..I am begging for help and not getting any here where I live….I value your opinion, you took more time online with me then any doctor I ever paid in person.

    Also the most recent images I sent to your info page email were taken supine laying on back…..and when I stand my xrays show reversal of the cervical spine….. …so I do wonder if when standing ( dependent on your experience in how the neck reversal goes and increases or decreases spinal cord with a reverse cervical spine on standing, if that would cause the spinal cord to have more of a compression ) and maybe I need a cervical spine MRI in standing, with flex and extension?

    The images I sent have a subject header with my user name here so hopefully you will be able to compare the images to my message here….thank you again for your helping so many people……there are too few of people like you left in this world …TRULY appreciative !

    justenough
    Member
    Post count: 12

    Thank you for articulating all that into a way to answer my further questions. I have so much going on from head to toe ( literally ) I just was praying there was one common factor contributing to all of it ( my neck ) and it is just not to be.

    I just don’t see how the spine center reflex exam said hyperflexia in all extremities.

    Then a week later the neurologist reflex exam only mentioned hypoflexia in legs, no mention of upper extremity abnormality.

    Then the EMG shows periphreal neuropathy and L5-S1 abnormality.

    My abnormal romberg, worse with movement or static standing, eyes closed or dim lighting ( my own description )and swaying even when sitting, literally rocking at times uncontrollable.

    CRAZY ear ringing and other noises, swooshing at times, sometimes feeling like 2 plungers on both ears, but subsides, squeaking, spongy sounds, amongst the cracking in jaw joints

    and prior to the neck MRI, I was already diagnosed through MRI and Cone beam CT scan, bilateral TMJ dysfunction, severe and causing arthritis in jaw joint ( my jaw is called a permanent closed lock ) So that could explain some……….

    I just have so many symptoms going on at once, if I could get a grip or find one common denominator and fix it, but there is too much and don’t know what to do except cry out of pain, frustration and going from a person who was so active all my life, 2 careers and the last 10 years working 2 jobs at once by choice ( I loved my medical career and my specialty )

    To not being able to work at all……..to being home bound most of the time…..because of my many symptoms that travel up and down day and night, some worse at times then others, and then if one thing slacks off, another rears its ugly head…..

    I have never taken a pain medication other then ADVIL or Alieve, I despise pharmaceutical drugs……they mask symptoms………they are only pallative care and cause a host of other problems…….

    I guess I will see where all this goes and either spend the rest of my life suffering waiting to die or die early from suffering.

    My sister, 2 years older then me has Sjornes ….and I am being tested for that eventually by the neuro, but he really wants me to accept his other diagnosis of migraine varients and take medication for that….

    I just want to conquer all of it on my own………and be the me I WAS….work, live……….this is not living the way I am….I do not have paralysis, am not on a ventilator, have all my limbs, but nothing is working as it should and its overwhelming to me.

    I have just had enough the last 4 years………when i finally pass out after laying down ( laying down causes a host of other issues with my neck ( I was also diagnosed with cervical dystonia ) my neck sits to right, shoulder scapula droops 2 inches below left )

    I have shaking in hands, they are clumsy, 4 years ago at start felt like I was walking like a duck, legs further apart then normal….I wish someone could step into my body one day and feel all I feel….even though I look pretty normal on the outside.

    I watch older people, and see them with different difficulties and wonder if they feel like I do all over and if they do, how they deal with it so long…………

    I am crushed!! And I pray to GOD continuously to give me more strength and forgive me for complaining when others have it worse.

    Thank you for answering my crazy 100 questions, I feel my symptoms are making me crazy….:(

    justenough
    Member
    Post count: 12

    That is my confusion then…Central stenosis VS cervical stenosis, since both can cause myelopathy.

    When there is no CSF in the C5- C6 anterior aspect of the spinal CANAL because a disc has herniated and compresses the spinal cord ( creating an indention in the spinal cord itself …..in conjunction with 2 areas of buckling or hypertrophy of the ligamentum flavum ( posterior to the C5-C6 disc herniation ) can that cause myelopathy, with flexion or extension given the there is no telling how much dinging is going on ( walking, bending, driving, laying, turning over in bed and lying on side in bed )

    A still image ( ie ) MRI of cervical spine laying down shows the anterior aspect of spinal CORD is indented at the C5-6 region with NO CSF obviously since the disc is pushed into the spinal cord, and in addition at same region, but posterior to the C5-6 which further narrows the spinal canal ( cervical stenosis) is the buckling or hypertrophy of the ligamentum flavum, and there is CSF present in the posterior section as described, just not the anterior portion, which again is because the disc has pressed into the spinal cord….

    I hope I am explaining this right…..there is no increased signal in the spinal cord ( which represents permanent damage to the spinal cord )

    But my concern, and because of my symptoms that do indicate myelopthy, IF there is too much pressure on the cord, whether medical science feels the cord has to be squashed significantly before there can possibly be myelopathy……….due to my hands upper wrist, feet, chins…. disequilibrium, severe ear ringing and such….

    of which are really bothersome for me, in addition the spine clinic evaluation that noted hyerflexia in all extermities, but then subsequent to the spine clinic reflex test, the neurology Doctor repeated test and said my reflexes in legs were 1+ otherwise absent, he also later did the EMG which was abnormal and said mild to moderate periphreal neuropathy as well as some portion of the EMG was indicative of L5- S1 ( but have had NO MRI of lumbar spine )

    I am 5’3 1/2 109 lbs on a good day……I am not diabetic……so I am so confused :(

    I just want to find a root cause and treat if I could get better :(

    justenough
    Member
    Post count: 12

    I am confused on central stenosis term….I have cervical spine stenosis, but that was not measured in ” mm ” nor graded ( as recent literature suggests ) grading stenosis now as grade 1, 2, 3 etcetera…….

    I asked the one who performed the 2nd read to measure the stenosis with calipers, or however it is done, but I think he forgot….it was nice of him to give the 2nd read…..can i post a picture here of the region of stenosis ( its not that great of image to see the indentation on my spinal cord, but to measure the amount of stenosis could really be done, as you can also see in image I scanned I used the 10mm scale to try myself. Can you tell me if I can insert this image here….to see if if I measured correctly….please.

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