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  • anna
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    Post count: 15

    Thank you, Dr C. I’m preparing my MRI and consult packet to mail to you this very moment. I talked to Sara with your office and she anticipates you’ll have some time in January to review my MRI. The only reason I think I am staying calm in the face of my neurosurgeon’s unexpected findings of another herniation and his pressuring to me to submit to another “exploratory” surgery is because I am able to seek a second opinion from you. Thank you for being available for clinical case and MRI reviews. It is a service that provides those of us with remaining questions and symptoms a certain degree of hope and peace of mind. I very much look forward to talking to you in person!

    anna
    Participant
    Post count: 15

    Dr Corenman,
    I wanted to provide an update on how my appointment with the neurosurgeon who performed my endoscopic microdisectomy went today. He reiterated he only worked on my left side during his surgery 8 weeks ago. He reviewed my recent MRI and said he sees a new central herniation which he believes occurred immediately after my surgery and is the cause of my cauda equina symptoms and right leg weakness. He stated he would like to perform a second “exploratory” surgery on me. Surgery was the only recommendation he provided to address my saddle seat anesthesia and right leg weakness. He seemed skeptical of oral steroids until I told him how much they helped reduce my saddle seat anesthesia. He advised against an epidural injection because he said it was too soon after my surgery and I could risk an infection. He said my body could resolve the reherniation and tissue granulation, but the longer I waited to have surgery the greater my chances of permanent nerve compression.

    I have lost confidence in my neurosurgeon at this point after everything. I am also confused why the radiologist possibly missed a reherniation on my MRI (with contrast). Thus, I think I need a third opinion and will contact your office about scheduling a MRI reading.

    anna
    Participant
    Post count: 15

    Dr C,
    I return to see the original neurosurgeon who performed the endoscopic microdisectomy on my left L5 next week. After my new orthopedic surgeon (retired) called the neurosurgeon with my latest MRI results of uncommon tissue granulation on the right side, the neurosurgeon’s staff called me practically begging me to come in. They reassured me the neurosurgeon thought everything looked fine with my new MRI, but that he just wanted to follow up with me. I told them I really hope he will have some explanation for my new post surgery cauda equina symptoms and right leg weakness (I’m unable to do heel raises on my right) other than his “I dunno” when I saw him the day after my surgery.

    Do you think I have any chance of regaining my calf muscle strength if the MRI does not show there is anything to be removed surgically? Would physical therapy possibly help?

    Meanwhile, the oral steroids you recommended really seemed to help my saddle seat anesthesia, but since I stopped the last steroid pill it appears my anesthesia has also stopped decreasing. I know you’ve mentioned epidural injections. Could one possibly help in a situation with anesthesia and weakness but without pain?

    I will be sure to update you on my meeting with the neurosurgeon. Thank you from the bottom of my heart for hosting this forum and answering our questions.

    anna
    Participant
    Post count: 15

    Dr. C,
    A HUGE thank you to you! I have an update. I took oral steroids (Medrol dose pack) for 1 week as you recommend & found my saddle seat numbness/heaviness slowly lessened. I also followed up with a retired orthopedic surgeon yesterday & he completely agreed with you that I had cauda equina symptoms & immediately ordered an MRI with contrast. The radiologist report found…

    “L5-S1: There is mild disc height loss, stable since prior study. There is evidence of left-sided laminectomy with tissue enhancement involving the laminectomy bed. Dural & bilateral perineural spaces left greater than right consistent with granulation tissue. No findings to suggest recurrent &/or residual disc. The conus is normal in configuration & signal intensity ending at T12.”

    My orthopedic also called & spoke with the radiologist this morning. He said the radiologist admitted he was puzzled as to why I had tissue granulation on the right side when my surgery was left sided. The radiologist also confirmed he did not see any thing to explain cauda equina symptoms.

    My orthopedic recommended Voltaren 75mg daily & an epidural injection down the road. Like you, he expressed relief that my saddle seat numbness/heaviness was slowly centralizing & lessening. However, he is bothered by the tissue granulation & that it is also on the right side. He admits he has rarely seen tissue granulation after a micro-D & is not an expert on tissue granulation so he cannot say if it’s a normal amount.

    Dr C where do you recommend I go from here? If the cauda equina symptoms continue to lessen over time should I live with their medical mystery? Same with the tissue granulation? Or should I consult with another tissue granulation expert (radiologist, neurosurgeon, orthopedic) if one exists?

    anna
    Participant
    Post count: 15

    One more thing…I don’t know if my inability to void was also influenced by catheter use. I was administered a catheter during my surgery and then a second catheter overnight after my surgery. I was able to void 8-10 hours after the second catheter was removed.

    anna
    Participant
    Post count: 15

    Dr C,
    Thank you for responding again. I spent the evening reading through the other cauda equina posts in your forum to educate myself further. I thought I should bring up that I did not appear to have all the classic symptoms of cauda equina. My bladder issues were short lived and I’m for the most part back to normal. I never had any pain down my legs and groin. I did have some weakness in my right leg and toes upon awakening from the surgery, but it has now improved to where my gait is almost normal. I can also raise up on both toes and walk on my heels. My balance is much improved as well.

    However, my remaining concern is the saddle seat deadness. Plus, I’m very distressed to add sexual dysfunction to my list of symptoms. I am very worried this will be permanent. :(

    Could I indeed be recovering from a partial case of surgical induced cauda equina or something else masquerading as cauda equina?

    Do you think I should ask my new orthopedic doctor for an MRI (along with steroids of course) when I see him next week? If yes, do you have any tips on the type of MRI you think would be best?

    Thank you so much.

Viewing 6 posts - 1 through 6 (of 12 total)