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  • Susan117
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    Post count: 18

    Dr. Corenman,
    I wanted to update you with the latest findings. I had a CT Myelogram on the 18th which showed nothing…the nurse told me that the Dr couldn’t figure out what is causing my symptoms and has now placed me PRN because the Myelogram was “normal”. I know that my symptoms are from my TLIF surgery in November 2013 but I cannot find a doctor to even consider that it could be that. Recent CT and Myelogram reports show a fusion at L4-L5 (2 different reports show that) but my surgery was done at L5-S1, so I thought! Anyway, now over the past few days, I have developed severe pain in my left ankle and my heel has been completely numb for days. I also have swelling and fluid retention in both ankles and feet and I’m still having burning pain in the right big toe and top of that foot, along with leg weakness and pain in my extreme lower back and hips. I have found a revision surgeon in Nashville and I have made an appointment. Is there anything you can suggest I talk to him about that will help me figure out what is going on? I have been dealing with these progressing symptoms, which are now getting so bad I am missing work on a regular basis, for over a year now. Thank you for your help, as always.

    Susan117
    Member
    Post count: 18

    I have C-D (Cotrel Dubousset, I believe is the name) rods which were implanted for scoliosis in 1985 which extend from T1 to L2 and screws and rods for a fusion in L5-S1. I have had successful MRI”s before but this doctor doesn’t seem to be able to get a good read. He is ordering a CT Myelogram now and I’m not too sure this wil work either. I just need to know what’s going on and for a year now, I have been going for test after test with no real answers. It’s frustrating to say the least! Is there any type of test that will show my problems…failed fusion at L5-S1, etc…that you can recommend? Apparently, he will not attempt to get a good MRI at another facility :( I feel so stuck!

    Susan117
    Member
    Post count: 18

    Update: Had the MRI and 10 minutes into it, the technician pulled me out and said there was too much artifact. The dr sent me for a CT the next day…..same thing. Next step was an EMG/NCS which came back normal but during the test, when the needle was stuck into my right outside hip area I could not feel a thing….not even the electrical part. Afterwards, he tested my strength and determined that there was still significant weakness. He has now ordered a CT myelogram hoping it will show something. I am most concerned that all of this is due to my L5/S1 TLIF surgery in November 2013. I have had a funny feeling with movement, walking since surgery and still do…now along with a strange pinching feeling in that area with normal walking and even when I’m sitting or lying down…it shoots really sharp sometimes. I wonder if the CT Myelogram will show if I have a failed fusion or other problems in the fusion area? If not, what tests will show what is going on (given the fact that standard tests…MRI, CT….do not work for me due to all the hardware I have!). Thank you!

    Susan117
    Member
    Post count: 18

    Thank you for your answer. I have an MEI scheduled for Tuesday with results appt on the 17th. Weakness is getting worse….I have missed two days of work already :( I will let the forum know what the MRI says as soon as I know!

    Susan117
    Member
    Post count: 18

    Went to the dr and he believes my foot pain, toe burning and the feeling of shin splints are all a symptom of a possible L4 herniation with nerve impingement. He has ordered an MRI. If it turns out to be this, will it require surgery? He also out me on a 5 day dose of oral steroids, rest.

    Susan117
    Member
    Post count: 18

    Sounds like you do it right to protect the patient from future nerve problems…..not sure mine was done that way (my own bone was not used, only bmp and operative notes do not mention any kind of sealer being applied). Thanks for the response….I am calling my family doctor today to see if he knows a different doctor that will work wirh him to do a CT.
    Woke up a few minutes ago and almost collapsed…my legs are aching and feel extremely week this morning :( thanks again for all of your responses. I really appreciate it…wish you were closer to Alabama….I would definitely try to get in to see you…you seem like a great, compassionate doctor who does whatever it takes to help your patients! We just don’t have that where I live :(

Viewing 6 posts - 1 through 6 (of 16 total)