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  • Kipper
    Member
    Post count: 5

    Hi Dr. Corenman,

    I wanted to update you on this whole mess. I’ve had a CT and flexion/extension Xray done. The fusions are intact based on those (thank you LORD).

    There is a herniation at C4-5.

    Pain has settled and become localized but intense in the neck with occasional twinges to the right upper arm (and I do mean occasional). The neurosurgeon told me that if this was my first rodeo he’d definitely do a fusion. Because this is my third go-round, he does not want to do that. I’m 43, already have C5-6-7 fused, have somewhat limited ROM as it is…so he referred me to physical therapy and pain management. I will see him again at the end of February.

    I’ve had several sessions of PT. I started even though I could not get into the pain clinic for a month (now two weeks away). I’m sort of regretting that decision because I end up in huge pain following these sessions, and for the following day also. The sessions are very painful but I have a high tolerance for pain. Unfortunately I’m still not getting sleep because the neck hurts so darn much.

    I’m very reluctant (make that steadfastly against) having an ESI. Petrified is not too strong a word. The neurosurgeon told me they don’t twilight you or anything when they do this, just use local. I frankly do not think I can even bear that thought. Also, from what I understand they use some kind of contrast (is this correct?) and I have a history of anaphylactic reactions to various IV contrasts. That scares me a lot, too.

    Is my fear completely irrational? I’m not sure exactly what I’m afraid of. I know at my first appointment they aren’t going to stick a needle in my neck, and really all I want is some kind of systemic painkiller just to get me through the nights. I’m about stir crazy with lack of sleep. I don’t want to “kick the can down the road” if the ESI would just be a temporary relief. The DPT I’m seeing is confident my pain will be reduced with continuing PT (I do have significantly more motion in my neck after only 2 weeks) but so far the pain is constant and sometimes worse than before I started PT. Again, the movement improvement is awesome, but I don’t really care if I can look a few more degrees to the right or left when it hurts so much all the time.

    The neurosurgeon mentioned another type of surgery that might help, and for the life of me I can’t think of the name of it. He just really doesn’t want to fuse another level. I’m glad he’s conservative. I just wish I didn’t have so much darn PAIN.

    Thank you in advance for your opinion on whether or not I’m nuts. ;)

    Kipper
    Member
    Post count: 5

    You have certainly helped me feel better. I’ll come back after I get the CT/X-ray result (and/or whatever records I can lay my hands on) and let you know what’s going on. I don’t even care if my head falls off at this point, if I could just get rid of the pain.

    Kipper
    Member
    Post count: 5

    Oh thank you! I don’t know why I didn’t think to call the hospital; I’ll be doing that today. And thank you for the shoulder/neck information. It’s definitely not the shoulder/thoracic outlet syndrome by those two indicators.

    I am still trying to get over the idea that there isn’t a fusion where there’s supposed to be a fusion.

    Hypothetically…if the graft has dissolved, (which it would have had to have done in the last 6.5 years since the second surgery, since they surely would have noticed that, right?), other than the pain I’m having, is there a danger to not doing anything about it?

    Kipper
    Member
    Post count: 5

    Thank you so much for replying to me!!! I very much appreciate it. I know the first one was done with an autograft…I have the dent in my hip to prove it. :) That’s another reason I find it so bizarre!

    After reading your very informative response along with parts of your site, I’m starting to think I did a poor job explaining my pain to the neurosurgeon. I admit that I have been pretty upset about this, and with the lack of sleep and pain I’m not really “myself”. I guess there’s not a whole lot I can do until I have the Xray and CT and return to him in January.

    I’m way out of my element. When the first incident happened, I had a dozen referrals to the surgeon I went to. I did everything he told me to do and beyond (from acupuncture to PT to pain management) and did end up having the surgery. He told me that there were “protein strands” irritating the nerves, describing the disc as “shredded” (at the C5-6 level). The second time, I actually had thought I’d hurt my shoulder. I went directly to PT, and it was there that it was determined it was not my shoulder at all, but my neck. Back to the neurosurgeon and before I could blink, I was having the second level fused. The recovery from that one was easier because of the allograft.

    I’ve been trying to get the records from the first two procedures so at least we have something to go by. I’m having zero luck with that, unfortunately (keep leaving messages at the practice, keep getting no call back…I’m sending in a written request today and hoping for the best).

    The hand pain comes in little “zaps” to the thumb side of the hand, palm side. The forearm pain and tricep-area pain also comes in zaps. (By “zaps” I mean it’s not constant, and when it comes it feels, well, “zappy”.) It is not an unbroken “line” of pain. I feel it in my neck primarily (and I do mean primarily…it is constant there, but has zaps or “waves” of more intensity).

    I wonder if this is all in my head. :(

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