Still having leg pain and is getting worse when I don't move.

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  • Dr. Corenman
    Moderator
    Post count: 5383

    Most likely, these sensations could be from a recurrent herniation or epidural fibrosis.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
    If this forum has helped you, please let Dr. Corenman know!

    ftkm92
    Participant
    Post count: 26

    Hi, I am already 3 years post discectomy. My last revision discectomy was 3 years ago.

    I am still experiencing left leg pulling sensations especially when lay on the bed putting my left leg straight after 3 years post revision discectomy. My left leg feels very tight too. The tightness and pulling sensations at left leg has been bordering me much a lot especially when I want to sleep. It disturb my sleep everyday. I have to sleep fetal position to reduce the discomfort.
    Like today I did cycling at home using the recumbent bike and after the cycling the pulling sensations and the tightness of the left legs began to increase and worsen.

    My Spine Surgeon in Malaysia prescribe me oxycontin 20mg bd, Oxynorm for breakthrough pain, Neurontin 900mg tds, tramadol 50mg tds, Panadol 500mg tds taken together with tramadol and 50mg apo amitriptyline at night only.

    I am just 25 now and I know that opioid like oxycontin and oxynorm can be very addictive and it can no longer able to work to ease the pain after taking it for sometime. I am afraid that I would need to increase the dosage of oxycodone in order to have the reduction of the pain later on. My Dr is slowly tapering down oxycontin and oxynorm. Actually my spine surgeon ask me to stop the oxycontin and oxynorm few months ago but I couldn’t cope and go own my life without oxycontin and oxynorm. My Dr started me on 20mg Oxycontin and 10mg Oxynorm and he told me 6 months ago to tapering it to 10mg Oxycontin and 5mg Oxynorm. 3 months ago my spine surgeon ask me to stop both of those strong opioid. I tried and follow his instructions by stopping oxycontin and oxynorm but I failed to cope with the discomfort. When I was not on those strong opioid I could not even continue my cycling, my short walk treadmill and do my regular things. I have to force my self to walk and I am using crutches most of the time to walk. I am just 25 years old, I can’t live a life like this forever. My Surgeon told me I am experiencing chronic pain. Is chronic central pain syndrome. I am also having lumbarsacral arthropathy as well, Mri shows I have problems with my performs. My Piriformis muscle split into two and my nerve also split into two and one of the nerve is in the center of the split piriformis muscle . I had diagnostic nerve block done at the piriformis area and my dr told my the abnormal piriformis shown at the Mri may not be the caused of my left leg pulling and tightness. DR Ozlan my spine surgeon told me lastly the diagnosis is epidural fibrosis with central pain syndrome, maybe piriformis syndrome and lumbarsacral arthropathy.

    DR Ozlan actually is not very sure what is the main cause of my left leg pulling sensations and tightness with muscle twitching and muscle weakness. He is not sure will the epidural lysis procedure will reduce my discomfort.

    I have been doing physiotherapy and hydrotherapy for one year under a physiotherapist and under Dr Rameezan which is the Physical and Rehabilitation Physician.

    My NCS report shows normal. Do you think the ems test will shows something? Do you think the epidural lysis procedure will reduce my left leg pulling sensations and discomfort?

    I Need to get it solve. I Need to do more exercises to lose weight. I have pcos that turn to endometrial hyperplasia. I was bleeding continuous that I had to admit for blood transfusion. My gynecologist and obstetrician told me I have metabolic syndrome and the old way to prevent my endometrial hyperplasia to turn into atypical or cancer is to lose weight. Lose weight will reverse my heavy bleeding issues. It took me two wks of continuous heavy bleeding and I was landed up having blood transfusion. I fainted at my gynecologist clinic and I was pale, tachycardia,very dizzy and was very very weak that my Dr put me on urinary catheter because I was too weak to go to the bathroom when I was awake in my room.

    What should I do now.? Is very frustrating that I can’t do my regular exercises without taking oxycontin , oxynorm and other painkillers at such young age. My dream is to get back to work and be a pharmacist. Dr in your experience what’s is wrong with my left leg now. Occasionally I get back pain but the back pain is ok to bear because the left leg discomfort is much more serious or severe that the back pain.

    I am on depot provera to managed the bleeding issues. Since I am on depo provera the bleeding stops but I gain at lot of weight despite going for physiotherapy and hydrotherapy 5 times a wk.

    Need your advice.Thanks.

    From Florence Tan ( Malaysia)

    ftkm92
    Participant
    Post count: 26

    Hi, I am already 3 years post discectomy. My last revision discectomy was 3 years ago.

    I am still experiencing left leg pulling sensations especially when lay on the bed putting my left leg straight after 3 years post revision discectomy. My left leg feels very tight too. The tightness and pulling sensations at left leg has been bordering me much a lot especially when I want to sleep. It disturb my sleep everyday. I have to sleep fetal position to reduce the discomfort.
    Like today I did cycling at home using the recumbent bike and after the cycling the pulling sensations and the tightness of the left legs began to increase and worsen.

    My Spine Surgeon in Malaysia prescribe me oxycontin 20mg bd, Oxynorm for breakthrough pain, Neurontin 900mg tds, tramadol 50mg tds, Panadol 500mg tds taken together with tramadol and 50mg apo amitriptyline at night only.

    I am just 25 now and I know that opioid like oxycontin and oxynorm can be very addictive and it can no longer able to work to ease the pain after taking it for sometime. I am afraid that I would need to increase the dosage of oxycodone in order to have the reduction of the pain later on. My Dr is slowly tapering down oxycontin and oxynorm. Actually my spine surgeon ask me to stop the oxycontin and oxynorm few months ago but I couldn’t cope and go own my life without oxycontin and oxynorm. My Dr started me on 20mg Oxycontin and 10mg Oxynorm and he told me 6 months ago to tapering it to 10mg Oxycontin and 5mg Oxynorm. 3 months ago my spine surgeon ask me to stop both of those strong opioid. I tried and follow his instructions by stopping oxycontin and oxynorm but I failed to cope with the discomfort. When I was not on those strong opioid I could not even continue my cycling, my short walk treadmill and do my regular things. I have to force my self to walk and I am using crutches most of the time to walk. I am just 25 years old, I can’t live a life like this forever. My Surgeon told me I am experiencing chronic pain. Is chronic central pain syndrome. I am also having lumbarsacral arthropathy as well, Mri shows I have problems with my performs. My Piriformis muscle split into two and my nerve also split into two and one of the nerve is in the center of the split piriformis muscle . I had diagnostic nerve block done at the piriformis area and my dr told my the abnormal piriformis shown at the Mri may not be the caused of my left leg pulling and tightness. DR Ozlan my spine surgeon told me lastly the diagnosis is epidural fibrosis with central pain syndrome, maybe piriformis syndrome and lumbarsacral arthropathy.

    DR Ozlan actually is not very sure what is the main cause of my left leg pulling sensations and tightness with muscle twitching and muscle weakness. He is not sure will the epidural lysis procedure will reduce my discomfort.

    I have been doing physiotherapy and hydrotherapy for one year under a physiotherapist and under Dr Rameezan which is the Physical and Rehabilitation Physician.

    My NCS report shows normal. Do you think the ems test will shows something? Do you think the epidural lysis procedure will reduce my left leg pulling sensations and discomfort?

    I Need to get it solve. I Need to do more exercises to lose weight. I have pcos that turn to endometrial hyperplasia. I was bleeding continuous that I had to admit for blood transfusion. My gynecologist and obstetrician told me I have metabolic syndrome and the old way to prevent my endometrial hyperplasia to turn into atypical or cancer is to lose weight. Lose weight will reverse my heavy bleeding issues. It took me two wks of continuous heavy bleeding and I was landed up having blood transfusion. I fainted at my gynecologist clinic and I was pale, tachycardia,very dizzy and was very very weak that my Dr put me on urinary catheter because I was too weak to go to the bathroom when I was awake in my room.

    What should I do now.? Is very frustrating that I can’t do my regular exercises without taking oxycontin , oxynorm and other painkillers at such young age. My dream is to get back to work and be a pharmacist. Dr in your experience what’s is wrong with my left leg now. Occasionally I get back pain but the back pain is ok to bear because the left leg discomfort is much more serious or severe that the back pain.

    I am on depot provera to managed the bleeding issues. Since I am on depo provera the bleeding stops but I gain at lot of weight despite going for physiotherapy and hydrotherapy 5 times a wk.

    Need your advice.Thanks.

    From Florence Tan ( Malaysia)

    Dr. Corenman
    Moderator
    Post count: 5383

    I apologize that I missed your first inquiry.

    I assume that you have had two separate discectomies at the same level. Your complaint “I am still experiencing left leg pulling sensations especially when lay on the bed putting my left leg straight after 3 years post revision discectomy” is the equivalent of a “straight leg raise” test, an indicator of nerve irritability. The reaction to cycling is also a nerve irritation indicator {“I did cycling at home using the recumbent bike and after the cycling the pulling sensations and the tightness of the left legs began to increase and worsen”).

    Using crutches to walk in the face of nerve pain is unusual. Make sure you don’t have another problem like a hip labral tear which can cause the use of crutches.

    You note your “NCS” is normal. Do you mean nerve conduction study? If so, I would assume this test to be normal as this test measures conduction velocity which can’t be measured if there is a lumbar nerve root involved. It would be unusual if the NCS was performed without an EMG (electromyogram) where small needles are placed into certain muscles to see their resting and excitement potential. If an EMG has not been performed, this test should be completed.

    You are also in the typical position between “a rock and a hard place” as you are expected to exercise to lose weight but can’t due to your increased leg pain with exercise. You can try a hand bicycle ergometer, a piece of equipment that looks like a table top bicycle crank set designed to be used with your hands, not legs. You spin it with your upper body and it is easier on your nerve pain.

    What does a new MRI demonstrate? If you have no had one recently, that would be the next step.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
    If this forum has helped you, please let Dr. Corenman know!

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