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  • Vin
    Participant
    Post count: 11

    Hi,

    I am 4 months post microdiscectomy for a severe L5 S1 right side herniation that caused paralysis of right calf muscle (unable to do anything even close to a toe raise). Surgery went great, felt great and I was on the road to recovery. I regained full function back in my calf!

    Then around 3 months post op I experienced a gradual onset of lower back pain, numbness / tingling / sciatic pain in now BOTH legs, feet and glutes.

    I cannot now sit for more than 30 mins without my feet / legs going numb, cannot walk more than 5 mins at a time without numbness coming on in feet and back pain. The only relief is lying flat which I have been forced to do for 18 hours of the day. That often will settle the numbness / spasms / sciatica down.

    I was doing so well, was up to walking an hour a day, physio once a week etc. Then this all came on over the 4th month. I saw my neurosurgeon today and he said that it is possibly scar tissue that has developed pressing on the nerve OR I have possibly herniated the other side or reherniated the right side again, or it could be a bad post op flare up.

    He has ordered an MRI with dye contrast. It will not happen for about a month or so.

    The numbness and pain is transient and waxes / wanes, jumping all over both legs / feet / glutes / back. Very different from initial herniation which was only down one leg and the pain / numbness was constant from the onset of injury.

    I still have full motor function however, for that I am at least greatful.

    A few quick questions regarding the dreaded Epidural Fibrosis (if that is what it is).

    1. Does epidural fibrosis form between weeks 6-12 and stop? Or does the scarring / fibrosis keep growing? If so, for how long?

    2. Surgical removal and / or laser are not recommended due to the great risk of the scar tissue growing back much worse. Correct?

    3. When he requests an MRI with dye contrast, will they also do a regular MRI at the same time or is that a separate MRI that I will need to also request?

    4. Is there any hope of epidural fibrosis working itself off the nerve over time through stretching and PT? I have read mixed opinions / views. Some say impossible while others say it can take a year for the fibrosis to settle and detach from the nerve. Thoughts?

    Any other insight is welcomed!

    Thank you so very much for your time!!!

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    First-the chance of epidural fibrosis is not high. Typically, symptoms are not associated with lower back pain. I would assume there is something else going on and not epidural fibrosis.

    Epidural fibrosis normally takes about 6 months for symptoms to generate but this is variable. Most of the patients with epidural fibrosis that I have in my practice actually have mild symptoms although your symptoms can be from this disorder.

    There is no surgery for epidural fibrosis. Any attempts to fix the fibrosis will make the condition worse.

    MRI with dye contrast is an MRI with gadolinium. The normal MRI along with special images included will occur.

    The fibrosis is scar and as such will “not detach from the nerves”. Nonetheless, the symptoms can improve over time.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Vin
    Participant
    Post count: 11

    Thank you so much for your response! I am actually hoping / praying that it is not epidural fibrosis as this condition from what I understand is palliative with no treatment option (as you mentioned).

    As crazy as it sounds, I would prefer a reherniation and even potentially a fusion at L5 S1 as it would at least give me some hope of relief.

    I think I was lucky to regain the motor function back in my calf as my calf was literally dead. For that, again I am truly thankful but the pain in my lower back and legs is increasing.

    I also wanted to share this study with you that I came across. Perhaps you are already aware of it. It may be of interest to you.

    Kind Regards,

    Resolution of symptomatic epidural fibrosis following treatment with combined pentoxifylline–tocopherol

    http://www.birpublications.org/doi/abs/10.1259/bjr/62051205?journalCode=bjr

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    I should clarify that there are occasions that epidural fibrosis can be operated on successfully. If the root is adhered mainly on one side, an adhesolysis surgery (freeing up the nerve and trying to prevent it from re-adhesing) can be done but only with a 50% satisfaction rate.

    I think that study you note is not helpful. This was one patient only and the results could have been from “tincture of time” only. It is unlikely that the medications had anything to do with it.

    Again, lower back pain is generally not associated with epidural fibrosis.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Vin
    Participant
    Post count: 11

    Hi,

    Thanks again for your respons!

    This procedure looks quite interesting. I understand that this is performed by an experienced anesthesiologist in a Pain Clinic type setting? This is not something that is performed by a neurosurgeon, correct?

    Also, does this carry the risk of increasing the scarring, similar to actual surgical removal? Or does the failure just result in no relief.

    Finally, if I do a lot of light lifting, moving around, I seem to irritate the issue, the numbness / pain flares up in the feet / legs and will then settle once I lay in bed flat, for a few hours. The numbness and lower back pain are transient, waxing and waning. Is this typical for epidural fibrosis? Or is the numbness / pain usually constant / static?

    I have a dye contrast MRI tomorrow but don’t see my surgeon to go over the results for a month. I will post the radiologist evaluation once I receive it.

    Thanks again!

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    Sorry but I had to delete that link. This website is anonymous. The video purported to note an adhesolysis but performed without any mechanical changes to the surgical site. It is performed thru an approach that is very old school (called a caudal epidural approach). That is exactly what it is. This radiologist or anesthesiologist is performing an epidural steroid injection through a catheter placed in the sacral hiatus. There really is no lysis of adhesions in spite of what this physician is alluding to.

    Again, epidural fibrosis is not associated with lower back pain. I would suspect degenerative disc disease as the cause of lower back pain. If you have 50% or greater low back pain, you might be a candidate for a fusion work-up.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
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