CalmarjoriParticipantJanuary 7, 2018 at 10:44 amPost count: 7
I sent in question on 12/28 and still no reply . I had 2 level acdf with fixation of c5-7 2013 and failure to fuse. 8 months later had revision surgery from a different neurosurgeon. Chronic neck pain with dibilitating chronic migraines since . I have had blocks, neurotomies, epidurals, physical therapy, massage therapy ,bought a hot tub , etc to no avail. Was diagnosed with cervicocranial syndrome, chronic migraine, failed neck syndrome and facet joint osteoarthritis. Take horizant ER, norco and baclofen for pain and zofran for my vertigo and nausea. Developed chronic fatigue and other joint pain during all of this . Tested positive p41 on Lyme western blot and mycoplasma pneumonia very high. Completed 8 months of antibiotics and got mycoplasma down to 410. Fatigue much better but still chronic pain and migraines that do not respond to typical migraine meds,i.e.; rizatriptan. Any ideas….I have recently had to retire from a 24 year public health nurse position that required some travel . Driving is the worst !Dr. CorenmanModeratorJanuary 7, 2018 at 7:32 pmPost count: 6163
Sorry but must have missed that thread.
You have not described the outcome from the second surgeon. Did you get a solid fusion or is there still issues?
Headaches and base of skull pain is common with degenerative facet disease in the upper cervical spine. Facet blocks with temporary relief would be the next step if that were the suspected diagnosis.
Dr. CorenmanPLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.If this forum has helped you, please let Dr. Corenman know!CalmarjoriParticipantJanuary 8, 2018 at 2:45 amPost count: 7
Revision surgery finally fused after 18 months. Had facet blocks that only gave immediate relief for a few hours just like the medial branch block did when testing the nerves. The radio frequency ablations gave maybe a little relief on right side but only made pain worse on left. Also had occipital nerve blocks that didn’t really make much difference. I have swelling at c7 and radiculopathy on left side. Tongue and lips are numb since before first acdf in 2013 when I was was receiving cervical traction in physical therapy . The first neurosurgeon thought that I may have had a vertebral artery stroke during traction….. I did physical therapy after revision surgery but would have down days ( and still do ) with dibilitating migraines. Some of them have the text book aura, last for up up to 1-2 days and then I take a day to recover… I feel like my head is bruised and have gi issues. Driving any distance or using my head requiring rotation and flexion/ extension will set me off for the neck pain that will end in the full scenario . Just turning my head can start tinnitus and clicking sounds and nausea. I had full work up early on with Neurootologist who said he thought it was Cervicogenic due to neck pathology.
Sent from my iPadCalmarjoriParticipantJanuary 10, 2018 at 3:07 pmPost count: 7
Do you have any ideas about what could be going on in my neck causing such pain unrelieved by all the treatments and the awful migraines since surgeries?CalmarjoriParticipantJanuary 12, 2018 at 10:16 amPost count: 7Dr. CorenmanModeratorJanuary 14, 2018 at 10:13 amPost count: 6163
Your symptoms can fit with migraines, cervicogenic headaches or autoimmune headaches (Lyme disease). The fact you had facet blocks without headache relief and greater occipital nerve blocks without relief lead away from the upper cervicogenic headache syndrome cause. If you have a solid fusion now at C5-7, it is much less likely that this is a cause of headache. How do you know that you have a solid fusion? Was it CT scan proven?
Dr. CorenmanPLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.If this forum has helped you, please let Dr. Corenman know!
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