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  • Coco
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    Post count: 3

    All of my levels are fused now with the exception of c4/5 and approaching 2 years I’m so frustrated.
    I have no pain or symptoms, and the hardware is perfectly intact.. I just don’t want to consider revision surgery in the absence of no symptoms when plenty of people who do fuse properly still have problematic symptoms..I consider my surgery a success for its resolving my problems when others aren’t so lucky. My symptoms at their very worst are mild discomfort occasionally. (To be candid: thats from looking down for 6-8 hours/ day as I try to study for a new path in life once able. I feel like that position over 6-8 hours a day would make anyone uncomfortable.) My miserable pain pre surgery no longer, my range of motion improved, my other symptoms improved.

    Me and Doc have discussed the possibility of revision surgery the pros and cons and he was more serious about it before I started the bone growth stimulator if it didn’t help the other levels because I literally had no level of the 3 we worked on show any sign of fusing 1 year post op.. His perspective has since changed.

    We initiated the bone growth stimulator 6-8 months ago after he deemed me psedoarthritic 1 year post op my ACDF from C4-C7 with no sites of fusion at any level. Over these months using the bone growth stimulator: all sites have completely fused with the exception of the c4 that has showed no to very little improvement.

    After seeing him yesterday: to review my c4 that remains unchanged while he’s not happy it hadn’t caught up to the others he now wouldn’t recommend a revision because of my mild symptaology from self induced positions of long duration, and perfectly intact hardware. He stated that some people similar to me with multilevel ACDF: can have delayed fusions that eventually either fuse on their own years later, or don’t ever fuse and he will do a revision based on symptoms and circumstances with biggest concern adjacent disks, pain, and hardware. That he has gone without having to do a revision at all on some folks that failed to fuse, and were perfectly fine years later and never had any issue as a result of not fusing. That its hard to tell and some actually do though quite delayed eventually fuse on their own..

    He said even if he forces a fusion I run the risk of having more pain that I currently don’t have to contend with.. That all we can do is keep an eye out every few months to ensure no worsening symptoms, no hardware changes, etc. That really sucks after 2 years. That I can’t have more peace of mind.
    I’ve already had many surgeries these 4 years or so excluding the cervical spine, though thats the concern at the moment.. Still i’ve long waited for the day I can finally feel like I’m on the return back to myself without worrying what could happen every couple months. (4 years of that in general has been maddening). All that stands in my way now is my c4.

    In Summary of the visit and what now:
    I asked doc what should we do now: should I continue wearing the orthofix collar: that has helped me with the other disks. He mentioned optimal use these 6-8 months have been exhausted and there would be no further benefit not at this point not approaching 2 years.. That the therapeutic window isn’t usually beyond the 8 months I had already tried.
    I asked about prescription grade supplements even though I take a hefty dose of vitamin D and K and he didn’t think that would be very beneficial. I asked about Algaecal and he stated he doesn’t know of the long term benefits or effects well enough to even comment on it.

    Dr. Correnman My 3 questions for you sir:
    1) I suppose I understand the benefits and risks of a revision, but can you please help me with my worries around the risk of doing nothing for this c4 level thats unfused and likely to remain unfused. Whats the danger in doing absolutely nothing now? What are your thoughts on that which I’ve shared pertaining to do or not to do anything and if so what? (Especially if I continue unfused but without symptoms and hardware intact).
    2) What are your thoughts on my attempting to take the Algaecal? If doesn’t hurt anything shouldn’t i atleast try it, Im willing to do whatever is needed if even if a slight benefit so long as it outweighs the risk. Do you think it would hurt to give the Algaecal a try?
    3)Any other Thoughts or recommendations you may have that we should consider?

    Thanks so much!

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    You had a 3 level fusion of C4-7 with delayed union. You then used a bone growth stimulator (I am not clear as to the efficacy) and went on to fuse C5-7 with a C4-5 pseudoarthrosis (non-union) as the residual. Your symptoms are significantly improved from your pre-surgical levels. Your surgeon is concerned about this pseudoarthrosis and wants to consider a revision.

    50% of pseudoarthroses in the neck are stable. That is, they don’t move on flexion/extension X-rays, look to be interdigitated (the bony surfaces fit together like a puzzle) and are mostly painless. These particular non-unions are stable and are generally not dangerous. The space that was to be filled in by bone, filled in with tough fibrous tissue. This scar is pretty rigid. Yes, it does not have the tensile strength of bone but is still mainly stable (unless you fall off a cliff or are ejected from a car. I would say that a stable pseudoarthrosis is more stable than an artificial disc replacement.

    I have seen stable pseudoarthroses become painful with a significant accident but that is uncommon and have never seen one cause a spinal cord injury (although this could still occur but would be very rare in my opinion).

    Alagecal is a simple calcium supplement and would not affect your fusion one way or the other unless you were calcium deficient which would be unlikely.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Coco
    Participant
    Post count: 3

    Thank you so much Dr. Corenman for your very thoughtful and thorough response.
    I’m left feeling encouraged with my non union from what you shared. I very much appreciate that. Hope you have a wonderful day!

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