Viewing 6 posts - 1 through 6 (of 14 total)
  • Author
    Posts
  • Carla
    Participant
    Post count: 5

    Are there any legitimate, proven treatments for adhesive arachnoiditis that do not contribute to additional inflammation and scar tissue formation? This pain is unbearable, nobody local understands AA or wants to treat it, and symptoms are worsening. My thecal sac is “empty” from L4 down (previous laminectomy – which failed, several steroid injections, and a fusion at L4/5). How do patients conservatively and legally manage their pain? Thank you.

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    There is no surgery to cure arachnoiditis. Pain caused by arachnoiditis has to be managed as there is no cure. You do have to make sure that your pain is all originating from the arachnoiditis. I see patients who have had this condition but have spinal pain generators such as a degenerative or unstable disc and can still undergo surgery to relieve the back pain (but not the buttocks and leg pain from arachnoiditis).

    Spinal cord stimulators can be effective to help control the lower extremity pain.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Carla
    Participant
    Post count: 5

    Dr. Corenman,

    Thank you for your reply.

    I had an MRI in August 2015 which resulted in the AA diagnosis, and that it when I found the true failure of my precious L4/5 laminectomy of September 2013. What had remained of my disc collapsed, and I had very little to no disc space, resulting in pinched nerves, etc. I did physical therapy for 6 week with no improvement, so I had a L4/5 fusion in December 2015. Prior to the fusion, I had severe left foot drop, and my left leg was numb from the knee down, severe left leg pain and back pain (but the leg pain was 10x worse).

    The fusion helped tremendously. After a few weeks, I had regained some feeling in my left leg, the foot drop improved, and my leg strength improved. The pain in my leg and foot, however, worsened.

    In February, I had a large area (the size of a soft ball) swell out at the spot of my fusion. My pain levels went from manageable to feeling like Satan was repeatedly stabbing me with a pitchfork. My leg pain can be unbearable at times. My foot drop is back (not quite as bad as pre-op, but causing me problems with walking). My leg is numb again. So, I was sent for an MRI on 2/26.

    I just had my follow-up with my orthopedic spine surgeon, and he indicated that everything looks okay. All the hardware is in place – thankfully! I do have some minor inflammation, so he started me on a round of steroids, and I’ll be starting physical therapy soon. But he also said that, even though my spinal cord is tethered from L4 down, he’s not convinced that all the problems are from the AA. If there are no other physical abnormalities in my spine and surrounding areas, what else could it be? Because I know with 100% certainty that this pain is not in my head.

    I’m only 36, and I have a life to live. I just want to be as pain-free as possible, understanding that I’ll never really be pain-free. I don’t know what to do at this point. I have faith that the steroids and physical therapy will help, but how much help…only time will tell. Do I request a second opinion of my recent MRI? Or do I wait it out and hope things improve? I would like to get back to actually living my life, rather than scheduling around my pain and inability to sleep.

    Thank you,
    Carla

    Carla
    Participant
    Post count: 5

    And I’ll be honest, I’m terrified of spinal stimulators. All the research I have read indicates that they aren’t very effective with arachnoiditis pain; and they are generally short term in relieving pain, as the body adjusts to the stimulation and it becomes less effective over time. My husband had a personal experience with SCS, which has me very leary of the techbnology, as well.

    And unfortunately, I’m leary of pain management doctors. My pain has always been there, but it was exaccerbated by epidural steroid injections post-laminectomy. Two steroid injections and a nerve block trial all resulted in a spinal headache, vomiting, etc (and a doctor arguing with me that there was NO way I could be having those symptoms…that he did NOT make mistakes). And my MRI pre injections indicated no arachnoiditis. Then amazingly, months after injections, it’s there. My current surgeon told me that if the AA wasn’t caused by the injections, it was certainly made a lot worse by them.

    Perhaps if I found a pain management doctor I trusted, I may consider a SCS, but it’s not like you can really visit too many trying to get a feel for a good working relationship because then you’re accused of being drug-seeking. As a patient, it’s a very frustrating position. I just want to feel better. I just want to contribute in life.

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    The “soft ball sized” swelling is quite unusual 5 months after your surgery. The only things that I can think of that would cause that are a very late onset of a dural leak, a preexisting pseudomeningeocele (an area of the dura that was previously torn but sealed with a pocket of CSF on the outside of the dura) or an infection. All three would be unlikely so far after the original surgery. Nonetheless, all need to be suspected and looked for. The MRI should give some clues.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    I understand your fears. There are some very good spinal cord implant surgeons who I refer to. You can call the clinic and ask to speak to Laurie. She can give you some names that we refer to.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
Viewing 6 posts - 1 through 6 (of 14 total)
  • You must be logged in to reply to this topic.