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  • Weldon
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    Post count: 9

    Dr. Corenman,

    Here is an update on my grandson with the Chiari Malformation Type 1. My daughter did ask the Doctor prior to committing to him, as you suggested, about how many times he had done the operation. It was over 65! He teaches at the state medical school and also practices at the state Children’s Hospital. I have had a relationship with this hospital and its foundation, mostly in the oral health area. The operation was done Wednesday morning and he is doing well through last night, talking and walking but still in pain. We were told to expect this. From my understanding, they did as you described to remove a section of the skull, enlarge the opening at the spine and on the C1 vertebra. He should be released on Sunday or Monday.

    Thanks you for your wise counsel!
    Weldon

    Weldon
    Participant
    Post count: 9

    Dr. Corenman, here is an update three weeks after receiving a transforaminal epidural injection. This was done by the pain management doctor at the spine center. She had similar credentials as the spine surgeons – top of her class, outstanding resident, and fellowship trained. She spent a considerable time with me doing a detailed explanation of how she would perform the procedure and duplicating some of the physical test that the surgeon’s APRN did two weeks earlier to make sure that she was in total agreement. The big discussion was whether to do this with a local or general anesthesia, which she said most of her patients used. She told me that I would experience pain from both the contrast solution for use with the fluoroscope and the medication due to the volume injected if I chose to use the local. Her reasoning was that I could give her valuable feedback so that she could more accurately inject the medicine to the nerves. I thought I could tough out a little pain. Well, it really HURT. But I am glad that I did it that way. She would asked me three times to describe exactly where it hurt. The first time, the pain looped over the left buttock. Did I say it hurt? The second time the pain was on the outer side of my left thigh. And the third was down my left calf to the outer side of my ankle and then to the front of the lower ankle. Her comment was that helped her to know she needed to inject higher and lower than normal and then thanked me for helping her.

    After 45 -60 minutes in recovery (my BP was elevated). I was dismissed to make the 2.5 hour ride back to my home. By the time I got there most of my pain was gone. By noon the next day, I was pain free for the first time in three months. My BP and blood glucose level remained high for the first two weeks but slowly drifted lower. In week three, they are back to normal, though still on metformin that my PA prescribed. Before injury I would walk 8-13k steps a day but after inury, I could barely do 1500 steps with no more than 100 before having to sit. Now I am back up to 6-7K steps per day.

    Most importantly, my foot drop symptom improved 50% in the first 48 hours. However, the improvement is pretty much leveled off. I have to really concentrate when walking to control my gait and the drop. Walking slowly also helps to about a 75% improvement.

    In addition, to your coaching and the injection, I got a book on steps to a pain free back. Learning how to sleep, stand, sit and walk have helped also. My hope is with the treatment, better habits and PT I can slow down the aging process. And, I played golf again!!! Pain free!! Without your help, this probably would never have happened. Thanks, Weldon

    Weldon
    Participant
    Post count: 9

    Dr. Corenman,
    Thanks for checking up on me! I made it to one of the doctors with the requirements you suggested. Took me a while to get the CD of my MRI to him from my home medical center but finally got it to him later by FedEx.

    He said I had spondylolisthesis. The L4 slipped forward over L5. I also have a bulging disc, which is causing pressure on the nerve. He gave me a steroid pack that has given me much relief after the first three days of six days. Will schedule an epidural steroidal injection for next week.

    I will update you as to how well that works.
    Thanks again for your deication!
    Weldon

    Weldon
    Participant
    Post count: 9

    Dr. Corenman,

    I made contact with my friend on the board at Baptist Health in Little Rock. He was going to check about doctors in their Spine Center. Tomorrow, I will have another friend who was helped by Dr. V in Dallas. He is a Board Certified Orthopedic Surgeon, Spine Fellowship Trained. Here is a link to his bio. From it, including his teaching at UT Southwest Medical Center, you may have crossed paths with him.

    In my many years involved in promoting oral health the general population and in the medical fields, I am not sure I have met many people who would help a total stranger such as me with a problem. (By the way, in the last few years, I have collaborated with the Delta Dental of Colorado Foundation and even the Colorado Department of Health. Met several great people in Denver.)
    Weldon

    Weldon
    Participant
    Post count: 9

    Dr. Corenman,

    I live in Texarkana, Arkansas with a second home in Fayetteville, Arkansas. I have easy access to care in Little Rock, Dallas – Ft. Worth or Northwest Arkansas. One of my friends got help from Texas Spine Consultants after years of struggling and is now pain free. I just retired from a foundation concentrating in oral health and have some connections with the University of Arkansas for Medical Sciences. In addition, two of my best friends are past chairs of Mercy Health and Baptist Health and remain on their boards. I hope to speak to them this afternoon in hopes of finding a specialists.

    From your reply, it appears that I need to send my MRI results to a specialist right away. I have been taking, meloxicam for inflammation, gabapentin for nerve relief and tinzanidine as a muscle relaxer along with daily exercise. I have made no improvement in the last 30 days.

    Thanks,
    Weldon

    Weldon
    Participant
    Post count: 9

    Dr. Corenman,

    Again, thank you for your help, especially over a weekend. You have a passion for helping people!

    I read through the link on leg weakness twice. My first thought is that the problem is the L5 Nerve Root. That is because I had noticed I could not control my toes on the left foot from “slapping” the ground as soon as my heel hit. This seemed to match your “foot drop” description. So, I tried to do the “duck walk” and could not keep my toes from hitting the ground. Would this mean that I may need more than PT? Should I share this home test with my PT?
    Thanks you again for the help!
    Weldon

Viewing 6 posts - 1 through 6 (of 7 total)