Forum Replies Created

Viewing 1 post (of 1 total)
  • Author
    Posts
  • webbal
    Member
    Post count: 1
    in reply to: Arachnoiditis #9786

    Hello Dr. Corenman

    I am 26yrs old and I’ve recently been diagnosed with Arachnoiditis. After experiencing sudden numbness from the waist down, I was taken to A&E. The MRI scans showed evidence of the disease and was able to see the individual nerves bunched together at the L4/L5 point. I have had a previous discetomy at the L4/L5, at the age of 23yrs on May 2010.

    I’m trying to find out how serious my condition is likely to be; how probable it is to be progressive and what life changes should I make or think about ( i.e. would it be sensible for me to have kids; would I still be able to look after them after giving birth, would I be able to pick them up?). Those in the same position as me, what sort of lifestyle do they have? (Are they living an active lifestyle or bound to certain restraints?). Has anyone with this disease been able to go through labour without serious complications and has it had any impact on their condition, lifestyle? How frequently do the nerves flare up and how long do the symptoms last for? I understand that the condition varies from person to person, but someone in a similar situation as me; relevant information would be very useful in order to make very important life decisions.

    Reports and analysis taken by radiologists and by the Neurosurgeon (August 2013)

    Previous L4/5 discetomy May 2010. Little postsurgical change. No evidence of any significant recurrent disc or scar tissue causing nerve root compression.

    L5/S1, minor central disc protrusion which is indenting the thecal sac with caudal extrusion where it appears to be abutting the traversing left S1 nerve root in the lateral recess. No significant change in the previous images of 2010. No new compressive disc lesions. The neural foramina are patent throughout.

    Normal cord, conus and cauda equine.

    Conclusion: No recurrence of the L4/5 previously large compressive disc. There is a unchanged central mild L5/S1 disc protrusion which indents the thecal sac and abuts the traversing left S1 nerve root in the lateral recess.

    On an MRI scan which was perfomed by us there was no recurrence of the disc but a small bunching of the nerves suggestive of an arachnoiditis. Small dose of Dexamethasone for 3 days followed by Diclofenac. Has evidence of arachnoiditis on the MRI scan which can flare up time to time.
    I would be grateful for your time and effort to help me understand my condition well and be able to accept whatever the outcome maybe. I know there are many others who are suffering to a great extent and have immense courage to be able to face the world and carry on battling with this hidden disease, not only does my heart goes out to them but gives me hope that I may also be as brave as them.

    Yours faithfully webbal

Viewing 1 post (of 1 total)