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  • rdg426
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    I know that at some point surgery will probably be in my future but I will do my best to avoid it as long as possible. The last MRI did show that the herniation is already beginning to press on the spinal cord which is why the pain was worse 2 years ago then in the past. When an episode happens I lose all strength in my arms and legs and constantly drop things.

    My biggest frustration that I face here in California is a shortage of doctors. When you call a specialist that have to agree to take your case on. Unfortunately for me I have not been able to get a physician in a big city to agree to do that which leaves me with an inexperienced injectionist. As I stated earlier, the last series of injections had some hiccups, they did not go smoothly and I was beginning to believe that this physician had never done thoracic injections before. Even the after care instructions they gave me were on lumbar injections. Because I had such an incredible injectionist in Ohio I have learned what they should be like. My husband and I are actually considering the options of traveling out of state just to get the quality care that I need for my back. And again, unfortunately the current physician has stated that because this is a chronic problem he is not sure that PT is a good idea any more and is hesitant to prescribe it for me. Luckily my daughter is a PTA and forwards the exercises to me that I need to be working on.

    It’s a frustrating injury, I just wish there were easy answers.

    rdg426
    Member
    Post count: 2

    I am sorry to say that I also suffer from T9-T10 disc herniation. I am a healthy 44 year old woman with significant back problems. My problems started 8 years ago, at night, much like yours. Because I am asthmatic I thought I was having an asthma attack given the location of the pain and the fact that I had never experienced any back issues. My general practitioner told me it was indeed back pain and suggested ibuprofen. Usually I need 800mg to touch the pain.

    After a long rough weekend in 2006 I called a friend of mine that was an orthopedic surgeon. He figured I pulled some muscles, gave me prednisone, pain meds and prescribed PT. After 2 weeks of PT the therapist sent me back to the doctor because the pain was worse. An MRI was performed and the disc herniation was found. Like you, I have no great story, the pain just started. I was referred to one of the best spine surgeons in Ohio who immediately said “absolutely no surgery” which was also the recommendation of my friend (the first physician). I was sent to a spine center and underwent a series of injections, physical therapy and was prescribed a portable TENS unit, something I strongly suggest.

    I have to say, the injections work! They are not a cure but pretty close. I managed 3 years (most of it pain free with NO treatment) before I had to go back to the doctor.

    In the course of that 3 years I moved to California and had to beg a doctor to take me on. They thought I was crazy, they said there was no way my diagnosis was correct. After my third phone call begging them to take my case they agreed and quickly sent me for an MRI to confirm that I was wrong… To their surprise I was right, I do have a disc herniation. This doctor said the same thing, no surgery. They actually told me that if a doctor suggests surgery to run the other way, the risks are too great. This doctor performed another round of injections and I have been good for the past 2 years until now.

    Unfortunately I found this site because I was awakened at 3am this morning with that horrific pain once again. I keep hoping for a miracle cure but there is none. I will probably need the injections again but I am thinking that I may need to go to San Francisco for better treatment. Because this condition is so rare the doctor I was using (the best in the town I live in) struggled to get it right and actually missed with one on the injections, hit a nerve and caused additional pain.

    Nonetheless, I recommend the injections. They do work and combined with PT and a TENS unit I can stay pain and med free with the exception of ibuprofen at the onset of what I call an “episode”.

    Good luck with your treatment.

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