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  • Pete1221
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    Post count: 6
    in reply to: C2-C3 Dysfunction #22896

    Thank you for your reply doctor. I do understand that the anterior approach for the surgery is riskier and more demanding but the recovery time and pain level afterwards for the posterior approach seems insane. Some people are telling me it could be years to recover(posterior fusion). In all of your years of experience have you come across somebody such as myself with this main problem, I will explain. Most of my symptoms I deal with are smanageable( heart palpitations,tinitus). But my main problem is a feeling of my neck almost collapsing under the weight of my head. This is not all the time but happens a lot when I walk or bend my head forwards or nodd my head, walk on uneven surfaces etc. It is a very hard feeling to describe but when it happens it is a terrible sensation almost makes me feel like I could pass out but I don’t. I have had a lot of diagnostic testing done and there has been some confirmation of issues throughout my cervical spine and upper cervical complex. The odd thing is I lack any real significant pain in my neck, I lack headaches and some of the more common symptoms associated with cervical instability and upper cervical instability. My main driving symptom is this sensation of my neck collapsing and/or my head falling off. I have seen every doctor under the sun and and tried many many treatment modalities but nothing seems to help. Have you come across any patients with similar symptoms in your past experience?? I have one doctor I am dealing with who wants to perform something called invasive cervical traction but I am very hesitant to perform this test as I am not wheelchair-bound severely disabled, however my quality of life and physical limitations are greatly decreased prior to my accident when I was completely healthy and active. Again, I appreciate your insight

    Pete1221
    Participant
    Post count: 6

    Dr. Thanks for getting back to me. I called your office line and left a message about getting that referring doctor you are talking about. Why is it that you do not do upper cervical fusion anymore? So based on the information I presented you feel I am a candidate for a fusion surgery? Do you think there’s a chance I need up through my occiput fused or just c1 c2?

    Pete1221
    Participant
    Post count: 6

    Dr. I forgot to mention that I have become incredibly concerned or scared I would say of moving my neck a certain way or taking a simple slip and fall or a minor fender bender and becoming exponentially worse. The doctors I have seen say I should not be concerned about that but my body tells me otherwise. Do I have levels of damage and instability to a point where I really should be concerned about making them worse inadvertently?

    Pete1221
    Participant
    Post count: 6

    Dr. Yes I have had two upper cervical specific MRI studies with axial imaging. One of them was read by a doctor David who I’m told understands the area very well, the other was read by another radiologist who is versed in the area.

    The study that was read by reads.
    -Multilevel spondyloaropathy involving the mid and lower cervical disc levels.
    – potentiation of several of the key elements of the ligamentous and membranpus static stabilization mechanism of the cervical occipital junction consistent with sequels of hyperextension/flexion hypermobility stress of the cranial vertebral junction
    – loss of the normal anatomic relationship of c1 and c2 consistent with Atlanto-axial rotary instability and insufficiency
    – asymmetric widening all of the left lateral ADI.
    – encroachment of the cerebellar tonsils without high grade chiari.

    The second study which was taken over a year later reads
    – left alar partial tear
    – left transverse ligament intra substance tear
    – asymmetric widening of the left lateral ADI. 4mm on left 2mm on right
    – more anterior position of the right side of the body of c2 relative to the left with horizontal c1 anterior arch associated with slight degree c1c2 rotation.

    I don’t have any more information that goes into detail about the degenerative changes at the anterior atlanto-axial joint. Its frustrating that they do not specify as you stated.

    As far as not beating myself up it’s extremely hard not to. This situation has turned my life upside down and inside out. I have not worked for over 10 months as a result. It’s pretty frustrating to know now that if I was evaluated and braced appropriately for a short period time I likely would have healed up just fine.

    So the real question is where do I go from here as I am NOT getting any real answers from anyone. Is this something that will just continue to get worse and worse over time. Will I eventually become a surgical candidate. To my understanding upper cervical surgeries are life-altering and devastating to say the least, especially when it comes to craniocervical fusion.

    Or is this something that can actually correct itself and get better through time. It’s hard for me to think that way as I am quickly approaching two years of dealing with this and I have feelings and symptoms now that I did not in the beginning, like for instance I now have extreme sharp pain and popping with deep breaths on both sides of my spine right at the cervical thoracic area, this pain never leaves me and I have presented it to several spine doctors and all they can say is get on pain medication.

    I also had a digital motion X ray study done which shows a lot of slippage and motion of c1 on C2 with lateral bending(4mm in both directions) and also a lot of movement with flexion and extension of c4 c5 and c6 the worst of which is 5.8mm(c5 on c6).

    I am beyond frustrated with all this as I have a wife and a kid to provide for. And expertise or insight and advice would be beyond appreciated.

    Thanks

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