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  • LizzieJo
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    Post count: 5

    Week 7 I am still finding it difficult to walk and the pain is awful.
    I would appreciate your thoughts to the extra information provided.
    Many thanks

    LizzieJo
    Participant
    Post count: 5

    I should probably explain that the nerve was stretched more than normal and more than the surgeon would have liked as as he had to remove a considerable amount of scar and other tissue from the area to separate the nerve from the disc and the bone it was stuck to. There was so much scar tissue he said he had never seen so much and sent it to pathology, still waiting for results. Again I have been told that this amount of tissue around the nerve could be due to my EDS as it is a connective tissue disorder.

    Sorry typo in MRI report…serona not Sedona..over the scar area.

    LizzieJo
    Participant
    Post count: 5

    I can’t copy the radiology report sadly. But it did say there was some soft tissue odema and scarring as expected and a mid line Sedona but no cause identified to explain new onset of weakness one week post op.
    Pernicious anaemia causes damage to the myself not sheath of the nerve so I was wondering if this made the nerve damage more serious/healing slower?
    Also I have Ehlers Danlos hypermobility so I was wondering if this makes the healing slower. I know it also makes pain experienced differently.
    I know the left hip replacement would have cut through the gluteus medius so this muscle is already weak.
    As you say it is concerning that both the pain and the weakness deteriorated some time post surgery.
    I am now Four weeks post op and the weakness seems to be improving. The pain does too in that I don’t have the horrible leg pain. However I do have quite significant lower back pain and definite painful stiffness particularly on waking.

    Do you think this is the nerve damage? Or muscle weakness in the area?
    Your insight is much appreciated.

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