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  • JBoz
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    Post count: 51

    Dr. Corenman, thanks for the quick response. I may very well consider doing this, even though you do mot perform this type of surgery, I would really like to hear as many takes on the problem as possible. I’m still awaiting the purposed approach from my surgeon. I will get back to you in the near future.

    thanks,

    Jon

    JBoz
    Participant
    Post count: 51

    Dr. Corenman, what do you require to do a second opinion on my thoracic spine issue, have you dealt with tethered cord syndrome in the thoracic spine? I have quite a few MRI’s and two CT’s of the thoracic, pre op and post operative reports and all images

    My pain and issues are progressing, I feel surgery is something I need to strongly consider at this point. My neurosurgeon could not promise that the severe chest and back pain would go away, but the image studies do confirm the pain matches the pathology. That being radiating chest pain and deep T4 T5 spine pain, by far the worst issue, can only sit for very short periods of time.

    Thanks for so much help over the recent years,

    Jon

    JBoz
    Participant
    Post count: 51

    Hello again Dr. Corenman, I did get the CT myelogram done last Friday. It does show ventral cord tethering at T4 T5, another finding as it was a full spine image, was loose hardware at the location that I have had severe neck pain after 3/2015 cervical fusion surgery. I already know the approach they want to take for detethering, but really don’t know what happens when you have loose hardware. Report says right C5 screw is loose and possibly left C5 screw. Is this common? Does it require surgery? It does say the neck fused….

    Thanks again Dr. Corenman.

    JBoz
    Participant
    Post count: 51

    Dr. Corenman, I’m wondering if there is any other effective imaging that can be done to find what this neurosurgeon is looking for in the CT myelogram. I have had so many CT’s performed on my spine in the last 5 years. I will let you know what the report says, they want me to have it done at the outpatient facility on site at the hospital. This surgeon handles TCS, is it even detectable in a MRI? Because that is where he feels he found it, but wants the further imaging to get better results.

    Thanks again,

    Jon

    JBoz
    Participant
    Post count: 51

    Hello again Dr. Corenman.

    I have recently been seen by two neurosurgeons. My thoracic spine where the myelomalacia is moderate to severe, they are now saying I have TCS, and want me to do a CT mylogram. Dethering is the surgery, and the approach is the same as listed in my previous thoracic posts. I have been having far worse symptoms, and I truly just want to know what the future holds for me. The told me they cannot tell me that until they get the image done. My spine situation at T4 T5 has become rather a mess. I was told that the scar tissue and fluid buildup have caused the tethered cord syndrome. I wanted to see how much of this you have seen in patients post op. I’m at 20 months now, and the pain is far worse, same issues as listed above. I don’t know what to do anymore, as I fear the risks of surgery as much as I fear the risks of not doing the surgery.

    Thanks Jon

    JBoz
    Participant
    Post count: 51

    I did mean laminoplasty after T4, and I left it out together after T5. I will discuss the stimulator with my pain doctor. I think he is going to stand his ground on my need to see a surgeon though. He told me this condition is rather rare, I just have no idea if the herniation caused the myelomalacia or the surgery. I only know it is a very painful situation more so now, then it was before surgery.

    I did write down what the surgical report said the procedure involved. I believe the surgeon told me it was going to be a microdiscectomy with laminectomy before surgery, but I have no idea why that would not be dictated on the report, instead of the words used above. This chest pain was bad enough that the pain outweighed the risk of the surgery, as I already mentioned before. I truly have no idea how many of these type of surgeries and symptoms occur in the US, but I seem to be an unusual case from what I have heard and seen. It is just so hard to find any real information about the condition. I did find a interesting video online by a Ken McKim, explaining myelomalacia, it offers a support group as well. I guess it is considered damage to the cord, they said a little fender bender would have caused possible paralysis, had they not performed the surgery. I just have a couple more questions.

    Is there any possible risk for a pain doctor to go poking around in this area with treatment?

    Is it too late to give up hope on the possibility it will improve within another year or so?

    If I get a second opinion, do you think this moderate to severe myelomalacia is worth keeping tabs on with imaging? I’m just scared by the fact my symptoms seem to be getting worse, and/or unchanged as the follow up MRI shows.
    I do appreciate all of your valuable time Dr. Corenman. You have shed much light on my situations in the past couple years. I cannot thank you enough.

    JBoz

Viewing 6 posts - 1 through 6 (of 50 total)