Viewing 6 posts - 79 through 84 (of 89 total)
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  • JBoz
    Participant
    Post count: 51

    I did mean laminoplasty after T4, and I left it out together after T5. I will discuss the stimulator with my pain doctor. I think he is going to stand his ground on my need to see a surgeon though. He told me this condition is rather rare, I just have no idea if the herniation caused the myelomalacia or the surgery. I only know it is a very painful situation more so now, then it was before surgery.

    I did write down what the surgical report said the procedure involved. I believe the surgeon told me it was going to be a microdiscectomy with laminectomy before surgery, but I have no idea why that would not be dictated on the report, instead of the words used above. This chest pain was bad enough that the pain outweighed the risk of the surgery, as I already mentioned before. I truly have no idea how many of these type of surgeries and symptoms occur in the US, but I seem to be an unusual case from what I have heard and seen. It is just so hard to find any real information about the condition. I did find a interesting video online by a Ken McKim, explaining myelomalacia, it offers a support group as well. I guess it is considered damage to the cord, they said a little fender bender would have caused possible paralysis, had they not performed the surgery. I just have a couple more questions.

    Is there any possible risk for a pain doctor to go poking around in this area with treatment?

    Is it too late to give up hope on the possibility it will improve within another year or so?

    If I get a second opinion, do you think this moderate to severe myelomalacia is worth keeping tabs on with imaging? I’m just scared by the fact my symptoms seem to be getting worse, and/or unchanged as the follow up MRI shows.
    I do appreciate all of your valuable time Dr. Corenman. You have shed much light on my situations in the past couple years. I cannot thank you enough.

    JBoz

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    Laminoplasty has the possibility of closing down the “open door” and recreating stenosis. If is commonly used in the cervical spine but I am uncertain why this technique was used in the thoracic spine as the motion of this region is very little (laminoplasty is used to try and maintain motion while at the same time decompressing the segments).

    Decompressing the thoracic spine is uncommon but not all that unusual. I probably only do about one/year. A second opinion by a spine surgeon is essential for you in my opinion. Interventional pain doctors who are well experienced and meticulous should also be part of your team.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    JBoz
    Participant
    Post count: 51

    Hello again Dr. Corenman.

    I have recently been seen by two neurosurgeons. My thoracic spine where the myelomalacia is moderate to severe, they are now saying I have TCS, and want me to do a CT mylogram. Dethering is the surgery, and the approach is the same as listed in my previous thoracic posts. I have been having far worse symptoms, and I truly just want to know what the future holds for me. The told me they cannot tell me that until they get the image done. My spine situation at T4 T5 has become rather a mess. I was told that the scar tissue and fluid buildup have caused the tethered cord syndrome. I wanted to see how much of this you have seen in patients post op. I’m at 20 months now, and the pain is far worse, same issues as listed above. I don’t know what to do anymore, as I fear the risks of surgery as much as I fear the risks of not doing the surgery.

    Thanks Jon

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    A CT myelogram can be helpful to determine if there is cord tethering but I have to say that tethering is probably not what your condition is. Get the CT myelogram and then make sure the films are read by the neuroradiologist as well as the surgeon. Read carefully what the report says.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    JBoz
    Participant
    Post count: 51

    Dr. Corenman, I’m wondering if there is any other effective imaging that can be done to find what this neurosurgeon is looking for in the CT myelogram. I have had so many CT’s performed on my spine in the last 5 years. I will let you know what the report says, they want me to have it done at the outpatient facility on site at the hospital. This surgeon handles TCS, is it even detectable in a MRI? Because that is where he feels he found it, but wants the further imaging to get better results.

    Thanks again,

    Jon

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    The two imaging studies that I know of for your condition are MRI and CT myelogram. I don’t think a PET scan will be helpful.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
Viewing 6 posts - 79 through 84 (of 89 total)
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