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  • hanzi84
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    Post count: 5

    Thank you for your answer. I am interested in the consultation but I am not a USA citizen, I live in the EU, Hungary. So the only I am able now to give you dropbox link where my MRI scans are, and I pay for your review and consult via email. Is it acceptable for you?

    If I have an arahcnoiditis it can be seen on MRI isnt it? I hope I have not got this because it is uncureable as I know. The problem is radiologist are not familiar with arachnoiditis and post lumbar puncture leak.

    I read that (Prof. Schievink. Cedar-Sinai, L.A) 95% of the lumbar puncture leak cannot seen on normal MRI but might be cached up with MRI myelography or inversely diagnose with epidural blood patch treatment.

    I forget to meantioned that they can also see a left side Bertolotti syndrome too but they dont think it can be a problem now.

    What is very strange for me, if I press the punctured site and the nearby areas on my back with my fingers, my legs and genitals go numb and burning, and have hot and cold flashes. And when I sit or turn I can provoke these symptoms. Can chronic CSF leak cause that?

    hanzi84
    Participant
    Post count: 5

    Dear Dr.Corenman!

    Thank you for your answer. Because it started after lumbar puncture, I think something wrong at L3/L4 and the hernia was seen accidentally because they did a mri L spine after lumbar puncture because the symptoms started. My case is a little bit complex because the first mri shows left L5 nerve compress but i have started bilateral symptoms. Other MRI 3 months after shows disc extrusion at L5-S1 and a surgery done. The muscles are stronger but other symptoms not changed. They did a control mri this year in january and a hernia can be seen at L5 like in the first mri and it is not clear for me it is press nerves or not and the radiologist only wrote that it is a left nerve root scar and a 5mm central protrusio and a little left dura dislocation but not wrote if there is a nerve compression or not.
    I did some screenshot abot that 3 mri. I very appreciate that if you are able to see this few pictures (each is in different folder to separate) and help me to interpret my situation because neither the surgeons nor the radiologist could not decide if i need another surgery or not. OR I might have a CSF leak because of the lumbar puncture (it is hardly seen on mri I was told and to check it need a radioisotope cysternogram, or do a blood patch) and it cause a nerve root tethering. Is it passible that a CSF leak put a pressure or tether the nerves and the cauda equina nerves cannot float properly inside the dura?

    The MRI screenshots can be reached here this link:

    https://www.dropbox.com/sh/jezg7aqbk4u9dae/AADsw5ueY1gaxdVObxpFDMNKa?dl=0

    Thank you very much Dr. Corenman.

    hanzi84
    Participant
    Post count: 5

    Dear Dr Corenmann!

    I had an mri in august last year due to bilateral leg weakness and numbness, vegetativ functional disturbation after lumbar puncutre. They found an L5-S1 disc extrusio paracentralis et posterio lateralis L5-S1, L. S. cum stenosis recessus lateralis. (Left S1 nerve root disclocated).

    After 3 month they did another mri because i had bilateral patella hyperreflex, weak bilateral achilles reflex and weak bilateral dorsalflexion and Brudzinski positive, positive Laseque. They did a microdiscectomy on November, i still have burning pain in genitals, legs buttock, but in spine also. And a strange constant pressure like feeling in my left leg. Muscle twitching bilaterally my legs.

    They did a post surgery mri 2 months after surgery and the almost the same disc extrusio i have and a left side scar tissue. I think the scar tissue is the cause the constant pressure in my left leg. And nothing changed. :( What do you advice Dr. Corenman? New surgery? Is the scar dangerous? Is physiotherapy enough? But I think something wrong due to lumbar puncture and not just from disc. I have the same bilateral burning feet also as before surgery but after lumbar puncture. puncture was at L3-L4. Thank you

    hanzi84
    Participant
    Post count: 5

    Thank you for your quick answer. As I think in my case the mri report not enough I would like to send you my MRIs.
    1. MRI: Post lumbar puncture MRI C-TH-L spine when symptoms started, Aug. 2015.
    2. MRI: Control MRI when found extruded disc L5-S1, Nov. 2015
    3. Post operation MRI w/ gadolinium L spine Jan 2016.
    If it is good for you I prefer Dropbox or other cloud server to share dicom files. (I live in Hungary, so it can be the quickest). It is enough for me to give opinion via email, if need few screenshots.

    My personal questions: Arachnoiditis? CSF leak? Epidural collections? Disc problems? Nerve root injury? Stenosis? Tight filum terminale?

    How much does it cost and how can I pay?
    Thank you very much, appreciate your help.

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