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  • cybermarc
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    Just did an NCV/EMG today which apparently turned up nothing unusual. Which is odd considering that I am still having frequent flare ups of arm pain from shoulder all the way to hand, weakness, and burning/pins and needles.

    Just discovered CIDP last night, and am wondering (but not too surprised) that this wasn’t mentioned by any of my doctors. I do have bilateral symptoms plus I’ve had dysphagia/reflux problems around the time this started 3 years ago. I have also been having urine retention problems (freq. peeing in night, and more “dripping” after peeing than usual) in the past 6 months. And some balance symptoms. My surgeon, however, waved off CIDP since the EMG showed nothing.

    Will get an MRI on cervical spine again and also an ESI on the level we opted not to address (C6-7) since it didn’t look as bad as C5-6.

    cybermarc
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    Post count: 7

    To me the double crush wrist-neck hypothesis made sense because I was first symptomatic 3 years ago in my wrists, I assumed from intensive computer use on job and at home. That then migrated up into my arms while working a farm job (and also sustained computer use.) And finally settled in neck as well.

    When I said “pain going from my neck down into my hands” I didn’t mean it always goes in that direction. It can also start in my hands/wrist/forearms and travel up. It seems to go both ways.

    I’m a bit daunted by the number of tests possible for something like this. The nerve conductivity tests seem only to check one nerve pathway (median nerve at wrist is what I have ordered, I believe.) What about ulnar at wrist, cubital, orbital, etc?

    If this is an issue of double crush/multiple nerve impingements, I want to catch that before going into another surgery (partially because if I do need carpal tunnel release, I could have done that at the same time as my ACDF instead of now looking at waiting for another 2-3 surgeries to happen [both hands separately and possibly 2nd ACDF on adjacent level] before getting relief and being able to work/function.) Any advice on best route of diagnostic testing for nerve impingements? My surgeon says he trusts EMG for wrists but doesnt put much stock in it for neck because the muscles are so dense and so much is going on there.

    cybermarc
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    Post count: 7

    Are you familiar with double crush syndrome, where impingement at the wrist and neck and/or elbow etc. interact with each other and increase symptoms?

    cybermarc
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    Post count: 7

    Ext/Flex Xrays showed fusion progressing and no problems with the graft.

    I am now again experiencing the full pain and tingling/numbness of my worst symptoms from before surgery, extending from neck down both arms and into hands. My doctor has suggested the possibility of carpal tunnel and double crush syndrome. This would make sense, as my symptoms started 3 years ago in the wrist from computer use, before progressing up forearm, bicep, and then to neck last.

    I have an EMG scheduled for both wrists in a couple weeks, but I am wondering if that may, again, be trying to isolate the problem at one location and then miss the bigger picture. Just watched a video on double crush that pointed out it can come from a combination of a number of locations, including ulnar nerve entrapment sites, thoracic outlet, etc. My surgeon has already told me he doesn’t believe thoracic outlet syndrome is a real thing…which scares me that diagnostic testing might be just paying attention to the most popular sites like the median nerve at carpal tunnel.

    He also suggested the possibility that it’s my C6-C7. My previous MRIs showed some disc degeneration there, but nothing like the C5-6 that I had removed/fused. We will look into diagnostic steroid or nerve block to investigate if that level is causing the pain/weakness. Would you recommend nerve block over the steroids for that?

    cybermarc
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    Post count: 7

    Thanks for your reply. I will ask for X-rays at my next appointment. What will the surgeon/radiologist be looking for? Movement? Might they justify that there “should” be movement because the fusion isn’t complete?

    I don’t think it’s safe to say the arm pain/weakness is gone. Prior to surgery, it mostly manifested when I was exerting myself, which I’ve been doing less since surgery, but the threshold for the arm pain is now much less too it seems. The weakness is still there too, just less noticeable because I don’t carry heavy loads very much and have been “babying” myself more.

    Regarding being 9-10 weeks out, I’ve heard conflicting reports from people that I should still expect to have a lot of pain, and no fusion anytime soon, and then from other people I hear it “should” be fused by 8-12 weeks. Any thoughts on this? Might I just be freaking out over the normal course of healing? It just seems odd that the pain has become so localized to one specific area.

    cybermarc
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    Post count: 7

    I suppose I should also note that the surgery is on my right side, and so is the shoulderblade pain I’m having.

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