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  • Clare1980
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    Post count: 4
    in reply to: Lumbar spine #29465

    I have a problem with cervical spine which is healing and have osteophytic impingements
    My question is the lumbar spine Mri which says arachnoiditis then says tethering of the cauda quina to soft tissue consistent with postoperative fibrosis do I need a second opinion it’s been hinted to me that maybe theirs 2 things going on which is causing confusion one being my lumbar spine and other being my cervical spine .

    Clare1980
    Participant
    Post count: 4
    in reply to: Lumbar spine #29462

    I also suffer flare ups so if I do too much activity one day I really suffer the next day it’s put me in hospital 3 tines and all 3 tines they’ve said you’re emg test was ok apart from suboptimal muscle recruitment and they said that’s due to me not trying hard enough then tell me my mri is down as fine there for it’s functional neurological disorder and that it’s all in my head I literally don’t know where to turn to for help I know my symptoms fluctuate but it’s out of y control because I’m down as functional no one will treat me or take me seriously I now have horners syndrome which took over 2 years to diagnose because that was down as functional.

    Clare1980
    Participant
    Post count: 4
    in reply to: Lumbar spine #29460

    I was sent into hospital February 2014 I had all symptoms of cauda equina syndrome I had loss of bowel and bladder function no reflex in both legs and feet I was dismissed for mri stating it was sciatica and sent home after 4 days I fought for 6 months to have mri and day after mri was rushed in and operated on theirs now been a legal battle for negligence as I had all sighns for 7 months after surgery I never recovered I still suffer foot drop chronic pain and double incontinence issues 6 months after surgery I started with pain in my neck shoulders arm and migraines with double vision fast forward 3 years fighting to see a neurologist and have another Mri without contrast it says cauda equina arachnoiditis 3 weeks later to have another with contrast saying it’s tethering of the cauda quina and postoperative fibrosis my question is how can arachnoiditis show on one mri and not another ?
    My neurologist wrote to my doctors saying my mri results on both were fine I’ve only found out 12 months later it shows that on my mri my doctors are now questioning why it’s been kept quiet and stated my mri shows nothing I do know my neurologist and surgeon are colleagues so do I ask for second opinion and with completely new hospital so theirs no conflict of interest.
    I have had a nearly 5 year battle with mistakes errors being dismissed as functional I can’t stand or sit long I can’t walk far wear a carbon fibre foot splint take medication for bladder use self irrigation for bowels sexual dysfunction and so on
    I’ve had 13 months waiting just for 1 neurologist appointment but after my surgery my surgeon discharged me and was never seen again or followed up upon surely this is not normal .

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