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  • bethalbrec
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    Post count: 5

    Hi. Thanks for your quick response. The Mra showed I had arterial compression and two different neurosurgeons confirmed the TOS diagnosis. Here is my question. One referred me to a vascular surgeon who doesn’t seem to specialize in TOS but works at USC. The other referred me to a cardio-thoracic physician team that specializes in Thoracic outlet syndrome and works with sanford on training their fellows. Vascular vs thoracic. How do I choose?

    Ps. I saw the thoracic yesterday. Confirmed my case as open and shut bilateral tos requiring a minimally invasive cervical and possibly first rib resection.

    bethalbrec
    Participant
    Post count: 5

    Hi — according to the surgery report, i had signficant bone spurs he had to remove, and used some of the materials as an autograft (in combination witht he allograft). That said, 6 weeks ago I landed back in the hospital with left side facial numbness and burning. (this was in addition to continued left side shoulder and arm burning from the surgery, and arm/hand numbness). Bottom line, they diagnosed me with MS, something my neurologist suspected 2 years, but there wasn’t enough evidence to diagnose. Now I am almost 6 months post op, in excrutiating neck, shoulder and arm pain (which now is starting on the right side too) – but my spinal surgion refuses to believe it has anything to do with the extensive surgery he did on my neck. I am not completely fused, but he said “the spaces have filled in nicely”. He believes it is all the MS. My Neurologist on the other hand, says he doesn’t agree. He thinks some of my pain, neuropathy etc are coming from the spine/spine surgery. How do I reconcile the source of the issues? My MS is the Relapsing – Remitting form. Should I get a second opinion from a Spine surgeon. This pain has started to interfere with my ability to perform my job and my social life and marriage. I can’t lift my arms to type for more than 2 hours. And by 1 in the afternoon, I am desperate to lay down and support my neck/arms with pillows. I am on lyrica during the day, and only take percocet at night after work to calm the pain down….but I am not sure how much longer I can last this way. Appreciate your advice.

    bethalbrec
    Participant
    Post count: 5

    Thank you for this. Interestingly, I just got the surgeon’s report – (from my Pain Mgmt Doctor). Coming out of surgery he told me he did some major work. What I didn’t realize is how “major” he really meant until seeing the report. In addition to my 3 level ACDF he did a 3 level bilateral foraminotomy and a 3 level partial (50%) corpectomy. Maybe I am making to much out of this, but the strikes as really excessive. Could that be why I am having such a hard recovery? Is this normal?

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