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in reply to: Help needed to understand my situation #11606
Again, thanks. I will see what I can do to find a spine surgeon who will do a CT. Hopefully, I am just still in the healing timeframe….next month will be one year!
Noticed you said “if BMP is used appropriately”. I had a TLIF with Capstone PEEK cage, is that an appropriate use for it? I have just heard that it can grow bigger than necessary and cause pain sometimes. Just curious :)Wish me luck!
in reply to: Help needed to understand my situation #11596Thanks again for the reply! Can my family doctor order a CT? I believe he would do it if I asked.
Yes, my legs were weak before surgery but not this bad and I feel like that is getting worse….wake up with cramps and spasms,. My feet, ankles, toes, calves hurt upon first standing in the morning, etc. I have lost total feeling in the outside left hip area since surgery and the top of my right foot….I never got feeling back in those two areas after surgery. I have had a left side SI injection and it has helped but my lower back still hurts on a 7-8 out of 10 level without meds….4-5 with meds. I worry about the use of Medtronic Infuse bmp also (Which was used in my surgery and I know it is a questionable product with some pretty bad side effects). Do you think that could be causing any of my problems?
in reply to: Help needed to understand my situation #11589Dr. Corenman,
Sorry it has been a while since I have followed up. Since my bone scan, I have received the results. Good news for me…the place of concern in my C5 is not cancerous but will be watched to make sure it doesn’t grown or migrate. It was suggested that I have another bone scan in 6 months or so. The bone scan report says “multiple area of irregular increased uptake seen scattered throughout the lumbar and thoracic spine. Consistent with postoperative and degenerative changes with photopenic defect also seen consistent with instrumentation. There is focal increased activity at the cervical spine level consistent with C5 vertebral body lesion. Follow up with CT scan to evaluate degree of calcification and trabecular architecture to discriminate between a benign sclerotic lesion or other etiology.” A CT has not been mentioned at all or done for me. The new doctor, a physiatrist …not a surgeon, also has given me a shot in my Si joint to help with some of my pain. It has helped but I still have the lower back pain and leg weakness…..now I also have big toe burning/breaking pain and terrible muscle spasms and bad cramps/pain from my hip to ankle on my right side. I went back to he physiatrist for follow up after the shot and he told me that because of the instrumentation, he would not be able to inject my lumbar spine and that there is nothing more he could do for me. He ordered physical therapy and I just finished 8 weeks of that.
Do you have my suggestions/ advice as to how I can find a doctor who will do the necessary tests to determine what is going on? I feel like I am at a dead end with no one willing to help. I do not want to take pain meds for the rest of my life or wait for something major to happen to me before someone takes this seriously!in reply to: Help needed to understand my situation #11412I went to the new doctor who ordered a complete bone scan from head to toe after seeing my most recent cervical MRI and lumbar MRI results. He was concerned that there was no concern or follow up offered by the previous surgeon for my L4 segment, which shows pretty significant degenerative changes and the most problems. Plus there are concerns about the L5 fusion. For my cervical concerns, he was concerned that there was no follow up since my MRI showed “possible metastatic disease at C5” and the radiologist recommended a bone scan as immediate follow up back in July :/ I wasn’t told anything at all about the results at my follow up appointment….just that I had a possible hemmangioma and it was nothing to worry about.
Happy to have found a doctor who is concerned enough to do what it takes to see what is going on and not tell me that all I am experiencing is “sympathetic pain” and nothing is really wrong with me ( which may be true but it is best to find out)!!! I go back for the bone scan results next week. I will follow up with the forum then! Thanks again for all you do! I have enjoyed your Facebook posts as well!
in reply to: Help needed to understand my situation #11316Thank you Dr. Corenman,
You have been a tremendous help!
Susanin reply to: Help needed to understand my situation #11304Again, thank you for your reply. I plan to talk to the doctor I am seeing at the end of the month about more testing…discogram, ct scan, etc. I researched your website…best info I have found! You really have went out of your way with this site! I hope to find a surgeon that does revision surgery if all else fails with testing. Hopefully, I will finally find out and get some relief. I am ready to get in my garden again!
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