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  • Purduejaime
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    Post count: 6

    Thank you again for all of your responses and for giving me second opinions. I just wanted to follow up. I went back to my original surgeon who did a discogram which gave me a positive pain response. I had a new anterior fusion done with disc removal. The surgery successfully brought me back to my “baseline” of chronic pain, that I experienced prior to having my first child. My spine finally feels more stable in that area!

    I have finally learned the “cause” of the problems I’m experiencing (spondylolisthesis, multiple shoulder subluxations, other joint issues) and am having genetic testing done to determine which type of Ehlers Danlos I have, as I meet the clinical criteria. Do you have any experience with this disorder? I still have chronic intractable muscle spasms in my spine, despite it feeling very well fused.

    Thank you again for your guidance and your willingness to help people all over who you may never meet!

    Purduejaime
    Member
    Post count: 6

    Thank you for all of your help so far.. As the spine surgeon I’ve seen has been of no help other than to get new films and generally upset me. The ct films and X-rays done showed a solid fusion, supposedly. I say supposedly because the radiologist report stated that I had a plif procedure when I very clearly have a disk remaining. I checked the films myself and it does look like a solid fusion, however of course I am untrained. So, I will be sending my films as you suggested, for review.

    The surgeon that I saw said that although my disk has completely degenerated since fusion, it cannot cause pain unless there is movement in the fusion, which he said couldn’t happen since I have a solid fusion on films. Is this really true or can a disk cause pain even if not being applied force?

    I’m very upset as I’m such a “young person” and I am in SEVERE pain at every moment of the day which has worsened a lot since being pregnant and giving birth to my son 14 months ago. The pain is very centrally located in my spine at the level of my fusion, as well as severe permanently spasmed muscles to the sides of my fusion, particularly on the left side, and they increased when I had an RAF procedure that was unsuccessful. Those muscle spasms initially did disappear for a few months directly after my 2002 fusion.

    The spine surgeon also told me there was nothing that could be done for me surgically. If there is nothing that can be done to “fix” this, is there any way to have my nerves to that area permanently severed so that I don’t have pain? I’m willing to accept paralysis in exchange for pain relief from this debilitating problem.

    Again, I’m sending my films CDs, and hoping there may be treatment as I’m not satisfied with ongoing narcotic treatment. The only time in 8 years that I’ve had complete relief is when I had an epidural and delivered my son.

    Purduejaime
    Member
    Post count: 6

    ALSO, in addition to above text, the spine doctor I saw said that the reason why my disc is degrading so much is because it is not being used. Is that possible?

    Purduejaime
    Member
    Post count: 6

    Dr, I just want to again thank you for your help! I saw a spine surgeon today and he told me immediately (with no examination and short history taken by the nurse) that he didn’t see anything he could help me with on my MRI. I was immediately in tears because that was the answer I feared the most.

    Because of your responses, I was able to ask him about the possibility of movement in my fusion and he ordered CT and Xrays. I had the xrays done today and because I’m not a doctor or radiologist I don’t know if the appearance of movement between the vertebrae is just a trick due to the change in angle from laying to standing.

    Could you please take a look at these xrays to see if it is apparent at all. Also, I really wish that you lived near the area where I live because you are doing a great service to people through this. (I sent the pictures by email).

    Jaime

    Purduejaime
    Member
    Post count: 6

    Oh my goodness!!! I want to thank you Dr. Corenman!!! You’ve thoroughly answered the questions I have (given the constraints) and told me things no doctor has told me before! I cannot tell you how much I appreciate your advice and the time you took!

    In regards to your further questions, the recent films I’ve had (flex and extension X-rays and mri w/ and w/out) show mild Spondylolisthesis at L5/s1 and nothing wrong at the next level up. In regards to your disc question, YES a change has happened! Over the years I’ve had imaging, my disc has gone from bulging (at time of fusion) to nearly completely black and compressed! I had NO IDEA that the disc was supposed to stay the way it was, ie frozen in time!!

    So, even though the X-rays don’t show movement, could there still be movement?

    Thank you again for these answers. I’m optimistic that I could have helpful treatment for the first time in a decade!

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