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  • DWisecup
    Post count: 1

    I have been dealing with pain that started in my hips for about 16 years now. After many years of letting it progressively get worse and spread to most of my body, I have been in search of answers for the last 5 years or so. I suffer from many ailments from loss of sensation in my legs to tingling, to numbness in my hands, to migraines. I have big trouble after I fall with my legs becoming completely useless at times. There have been a few theories over the years and most have been ruled out as the cause of my problems. It was recently discovered that I have a cluster of Tarlov cysts around my sacrum varying in size from 3mm to 17mm if I recall correctly. The rheumatologist that discovered them referred me to a local neurologist whom, as it turns out, has no experience in Tarlov Cyst cases. He recently put a referral through to UCHealth in Denver, CO for me to be seen more seriously for the Tarlov Cysts. He is hoping they will find me answers even if it turns out that they aren’t my problem but the more research I do and the more I read, the more I feel as though this is the right direction for me to be looking. My main concern right now is whether or not UCHealth is the place to go to get the answers I am looking for. I live in Wyoming but I am willing to travel if necessary to get the right person and the right care. I would be interested in your opinion on this matter at your convenience. Thank you.

    Donald Corenman, MD, DC
    Post count: 8460

    In my experience, Tarlov cysts rarely cause neurologic problems. Certainly, you have symptoms which could not be caused by these cysts (“numbness in my hands…migraines”). These cysts are a “stretching” of the dural sack which can on occasion cause bony erosion of the sacrum and mass effect on the nerves (S1-S3) but that is exceedingly rare. I think a referral to the university is a good move.

    Dr. Corenman

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