AhycParticipantSeptember 2, 2018 at 8:41 amPost count: 2
Hi Dr. Corenman,
I had syringomyelia at spinal cord T9. Laminectomy and lysis adhesion of spinal cord and nerve root was done on early May 2018. Both upper and lower limbs were in full power and control (5/5) before the operation.
-UL : full power and control (5/5)
-RLL: 2/5, I can move my toes and ankle, knee is under moderate control while hip is under mild control
-LLL: 0/5, foot drop, I can slightly move my toes occasionally, but I cannot move my ankle. Knee and hip are under poor control
-Involuntary LL movements, especially when I fall asleep
-Suddenly increased LL muscular tension when motion changed, e.g. Sit-to-stand
-LL muscle fatigue easily
-Reduced sensation (temperature & light touch) below T9
-Urinary incontinence at night occasionally
-Post-operation MRI done on late May, doctors said it looks good and the operation was successful
Seems doctor has no clue about my case, I am extremely worried and helpless. May I ask if there is any examinations that can be done to provide further clues for doctors and what I can do to improve the recovery?
Thank you.Donald Corenman, MD, DCModeratorSeptember 3, 2018 at 6:48 amPost count: 6361
My first question is why you underwent the surgery if you had normal strength and “control” which I assume meant proprioception (good feedback from your legs while walking)? What was assumed to be gained by undergoing the surgery? Was the syringomyelia expanding? Did you have a tethered cord?
Operating on the spinal cord (as opposed to decompressing the canal and not “touching the cord”) is fraught with potential complications as you note above. How does the surgeon note that the surgery was a success?
Dr. CorenmanPLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.If this forum has helped you, please let Dr. Corenman know!AhycParticipantSeptember 5, 2018 at 6:24 amPost count: 2
Dear Dr. Corenman,
I do not have tethered cord. In addition to laminectomy and lysis adhesion of spinal cord and nerve root, laminectomy for decompression was performed and somatosensory evoked potential monitoring was used during the surgery on May 2018.
Other than the current one, I had 2 surgeries before, thoracic syringomyelia with thecal peritoneal shunting in 2006; Hx of T9 AVM with T8-T10 laminotomy and excision of AVM in 1999.
I sometimes get fall in the past year before the surgery. I was expected to be discharged from hospital within a week and everything goes well as last surgery in 2006. I trusted the surgeon whom I have consulted in the past 19 years without questioning. He told me there is a sign of progression of syringomyelia up to cervical cord level compare with previous MRI done in 2015. I did not aware such a surgery is complicated and dangerous; therefore, I underwent the surgery without hesitation.
In looking at the post-surgery MRI, surgeons found that syrinxes had narrowed a lot after surgery, and the spinal cord looks “normal”, they therefore considered it as a successful one.
Thank you.Donald Corenman, MD, DCModeratorSeptember 9, 2018 at 7:44 pmPost count: 6361
Well obviously the surgery was not a success by your new disabling symptoms. The advancing syringomyelia is a cause for new surgery if your symptoms were advancing but they sound like the were not advancing. You have no options now other than to wait to see if you develop some recovery over time.
Dr. CorenmanPLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.If this forum has helped you, please let Dr. Corenman know!
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