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  • miker319
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    Post count: 2

    Dr. Corenman,
    I had C5-7 Fused ACDF in February of this year. When I was discharged within a couple of day (even with oral pain meds) I was having severe nerve pain it is not an exaggeration to say it was at least 30 times worse than what I had before surgery. The pain was in my left side form my finger tips to my neck. I went back to the ER and they administered IV pain meds which helped some. My surgeon upped my oral pain meds oxycodone and gabapentin. I went home and as soon as the iv deladid wore off I was in just as bad of pain as before. I called the surgeon and was advised to go to the ER. same basic story this time as well except he made an appoint for me as soon as I was discharged to see a pain management person. I did see the pain management doctor and was given an oral delodid he stated that that was as strong as it gets. I went home that night as the iv pain meds again wore off I was somewhat relieved to know I had this powerful oral pain med I took the pain meds as prescribed. The pain gradually came back to its full strength by 10:00 pm that night. I again called my surgeon crying this time he told me he would call right back, he did and stated that he had a room reserved at the hospital for me as we needed to get to the bottom of this extreme nerve pain. I arrived and was sent to get MRI’s and xray’s the next morning there were 4 additional doctors from Barrows neurological to assis my surgeon. they introduced there self and stated they were here to help get to the bottom of this and stated “I should not be in pain and that this is very unusual’. At 10:00 am they all came back into my room stating that they Think they have identified the issue. It would require going in through my upper back on the left side and relieving the nerve a much more invasive surgery which they did 2 hours later. The pain seemed to be gone although I was now on oxycodone 35mg 6 times a day and 8mg tinazadine 4 times a day as well as 3600mg of gabapentin a day. 7 months later I finally stopped the oxy codone after a taperdown and cold turkey stop. 5 weeks without any pain meds and my pain in my neck and back is progressively getting worse as well I am experiencing nerve pain to the point of a 5 to 6 at times. I am very worried at this time if there is an issue with the fusion or am I looking at a lifetime of pain management or an additional surgery. Have you ever seen or had something similar with any patients of yours or others you know of?

    windee
    Participant
    Post count: 3

    Hi, I am so sorry you have been going through this horrible pain when you were already in so much pain you consented to a major surgery in order to relieve it and only to come out way worse!! I had Acdf fusion to C-6,7 in 2010 and was so much worse with nerve pain after that in desperation I had the C-5,6 fusion in 2011 because my surgeon didn’t know why I was having so much pain and there was a small herniation at that level and that was all he could come up with for the reason of my pain. Well it only made things worse and after a year of such severe pain and no fusion at either level I had to have a posterior fusion through the back of my neck at C-5-7 with bone harvested from my hip 2 years later. Although this eventually did lead to fusion at the two levels the nerve pain was seriously 20 times worse than before and the trauma from all these surgeries with only worsening conditions was really getting to me. I finally had some answers after a CT scan showed 2 of the pedicle screws were mal-postioned in my epidural space causing constant irritation to my nerves. I had the posterior hardware removed and I had immediate relief from the nerve pain. I still have a ton of other issues and I think a lot has to do with the anterior hardware from the first 2 attempts at fusion was not removed which I firmly believe it needs to be for even more relief, but I do think some people like myself have an adverse reaction to hardware in their bodies and even if the hardware appears to be in good position and elicits good nerve function during surgery, just a small bit of movement and it could make the difference of no nerve pain to constant nerve irritation after the surgery. If you have fused at those levels and as scary as it might sound you may consider getting your hardware removed. After fusion occurs at the levels needed there is usually no need for the hardware to stay in there unless you are not experiencing any pain at all then you wouldn’t want to have another surgery. But with worsening nerve pain after surgery and with no let up I really wish I wouldv’e had my anterior hardware removed too before it encased in my bone as it is much easier to remove early on and I think I would be in a much more pain free situation now. I truly hope you will finally get some relief and maybe Dr. Corenman will have some answers for you. Don’t give up, there is a reason for your pain getting worse not better, and you should not have to live in worse pain than when you were before surgery. Hang in there.

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    It is distinctly unusual to have increased pain in a nerve distribution after an ACDF. The normal spot-operative response is significant decreased pain. Increased pain can be from nerve stretch (making the neck much longer using larger grafts), from foraminotomies in which the tool used to open the foramen inadvertently compresses the root causing direct injury, screw misplacement causing hardware impingement or a small fragment of bone or cartilage which “breaks off” and wedges into the foramen. This is all assuming that the diagnosis of nerve root compression was correct in the first place.

    It sounds like you need a new CT scan and a new MRI of the neck along with flexion/extension X-rays. Then you need a meticulous physical examination and assessment of all these findings to figure out what went wrong. You might also need diagnostic nerve root blocks.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    miker319
    Participant
    Post count: 2

    Thank you for your reply,
    To help add clarity to this the nerve they were trying to relieve based on pictures of what they did was swollen to three times the size of the one closest to it and this is after the ACDF surgery. It looked as if your finger would if you wrapped a rubber band around it with the nerve bulging out around the passage. This surgery was from a car accident that extruded my discs out and had pushed my spinal cord to the other side of the canal I don’t believe it was compressing it but clearly was against it. Lastly do you have any recommendations for the best place to have this type of diagnostic procedures done at in the Phoenix AZ area.

    Thanks Mike

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    A swollen nerve root is an indication of significant problems with the nerve itself. Make sure the nerve is actually swollen “three times its normal size” as a dis herniation lodged right next to the nerve can mimic a swollen root. Gadolinium (dye used with an MRI to distinguish swelling vs herniation) can be useful for distinguishing this disorder. Unfortunately, I don’t have any specific recommendations in the Phoenix area.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
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