creolemoon74MemberAugust 17, 2011 at 4:29 amPost count: 2
Dear Dr. Corenman,
I am writting to you after finding your informational videos on you tube and I am reaching out to you as I have found myself in a state of desperation and utter frustration.
I am 37 years old and have had idopathic inflammitory auto-immune symptoms since the early 90’s, and most recently diagnosed with Osteopenia in the hips, Osteopenia bording Osteoporisis of the spine, Multilevel cervical DDD with disk dessication, military neck, and moderate to severe arhtritis of the thoracic spine mild lumbar facet arthropathy. I have ghaslty lesions on my scalp and even though I ask, to no avail have had a biopsy.
My first diagnosis was confirmed to be Erythema Nodosum in 1993. 10 years later musculoskelatal symptoms began to emerge, inflammed tendons and joints, these symptoms errupting and resolving at a state that caused minor to medium discomfort.
The doctors here in Ohio, in my opinion, regarding my conditions, carelessly use fibromyalgia as a scapegoat, as my serology is always normal with the exception of an intermittently elevated ASO and mildly out of range CPK. Since 2008 my symptoms have become quite agressive and over the last few years the pain unbarable.
I fractured my T-7 vertabra last year after miscalculating my step when climbing down a step ladder. I landed on my feet hard and ended up with a ” sublte 10% wedging. I saw a spine Dr. who basically blew me off, infact he did not look at the CD’s that I brought to my appointment and took it upon himself to get a spine xray for a head ache the year before. After my T-7 injury, I was streching my arms and felt something snap in my shoulder and to date I have not had any follow up despite my complaints of numbness, burning and tingling, weakness in the distal part of the arm.He told me my condition is “Not Life threating so I don’t know what you expect me to do for you.
Since then, I have now had 2 mri’s of spine and find it curious that each physician who looks at the report as well as the two different radiologist who dictacted the report have grossly different interpretaions;a brain MRI with an incidental finding of a large unilateral nonenhancing focal lesion adjecent to the cuadate head in which the current recomendation is to take ASA 325mg a day. Uh,hello, Mcfly….anybody home? …….ASA = increased chance of another erythema nodosum flare, and since I am currently beating my own records for longest period in remission, don’t want any unsightly and painful bumps on my legs anytime soon.
I would like to know if you , or any one you know of would be willing to look at my MRI images, and compare them? I would also like to know if it is customary to ignore the “postional” image even if it looks kind of crazy? I thank you ahead of time and appreciate any help or insight you are willing to share.Donald Corenman, MD, DCModeratorAugust 18, 2011 at 1:44 amPost count: 8376
Unfortunately, my knowledge of inflammatory disorders is limited to certain specific disorders associated with the spine. Your symptoms are indicative of a generalized inflammatory disorder. The osteoporosis is very unusual for a young individual. You might consider a trip to the Mayo or Cleveland Clinic for a look-over by multiple specialists as your disorder may be rare and difficult to diagnose.
Dr. CorenmanPLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.creolemoon74MemberSeptember 3, 2011 at 11:37 pmPost count: 2
Dr. Corenman ,
I thank you for taking the time to read my short novel about my mri woes.
I am thankful that you are not only focused on your specialty, but also an advocate for those who are suffering. You are a champion and a great value!
I applied for disability, was denied 2x’s but was able to get an expedited hearing. I request the records from SSA to see what is missing and after reviewing my records found some clues regarding my current issue.
Being disappointed finding my clue by reading the SSA file rather than my physicians discussing the information with me, I am still grateful to have the opportunity of discovery.
Look like the official diagnosis is Undifferentiated Connective Tissue Disease.
Again, I thank you for being there!
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