bianca20MemberMarch 20, 2013 at 12:50 amPost count: 3
I ask for a few minutes of your time to read my story and see why I need your help desperately.
. Over two years ago I began to feel all over pain which centralized in my back and hips. I ignored the pain for about six months because I am an active gym junkie and I just figured it was normal. When the pain continued to worsen I went to an orthopedic doctor who diagnosed me with stress reactions and put me on crutches for 8 weeks. After that time, the pain never decreased or was relieved at all so the doctor in conjunction with a back doctor atn decided to give me an SI joint injection. The injection didn’t relieve any pain and the doctors were up in arms and told me to continue my imaging and to see other doctors. After that, I received a pelvic exam, CT scans, ultrasounds and a cystoctopy all in which came back without any concern. I then saw a rheumatologist who diagnosed me with fibromyalgia and put me on cymbalta. The medicine didn’t work I am suffering from pain daily and am not living a normal life that a twenty year old would. I have been unable to control my bladder. I wet my bed and pants and lose complete control of my body. I received a urodynamics test and the results came back that I have an extreme over active bladder. I was put on more Meds that didn’t work. My neurologist upped all of my vitamins, cymbalta and lyrica….still nothing. All my doctors assumed premature signs of a neurological disease and lesions in my nervous system. I got an MRI from my brain down to my lumbar spine and the results came back “unremarkable.” My pain is very mildly controlled with my medications and daily use of muscle relaxers, but these are all just ways of hiding my symptoms. My bladder is still uncontrolled and I live every day with fear of public embarrassment. My doctors has just put me a tiral of prednisone which I am currently taking. He wants to see in 2 months but I can’t wait any longer :(
Please can you have a look at my mri and maybe see something they missed.
BiancaDonald Corenman, MD, DCModeratorMarch 22, 2013 at 11:50 pmPost count: 8468
Unfortunately I cannot review your MRI over the internet. The site does not work but I cannot allow you to post a link as this is an anonymous site.
Your symptoms of bladder loss of control are unlikely to be spine mediated as the bladder control nerves are small and sit in the center of the spinal canal. It takes an extremely large herniation or bone spur to cause dysfunction of these nerves. I assume that your treating physicians could discern any pathology like this.
I am unclear what a “stress reaction” is in the lumbar spine. This could mean strain/sprain which is an unhelpful diagnosis or even a stress fracture of the bone (pars interarticularis).
Fibromyalgia is a diagnosis made by finding pain and tender points in all parts of the body. By your description, your pain is in the hips and pelvis only which would rule out fibromyalgia.
What was the radiologist’s interpretation of your lumbar spine MRI?
Dr. Corenmanbianca20MemberMarch 27, 2013 at 7:24 pmPost count: 3
Thank you Dr Corenman, for getting back to me.
Bianca was diagnosed with FM after being tested with generalized tenderness 11 of 18 tender points and slight hypererflexia in legs bilaterally.
November of 2012…MRI of brain, cervical, thoracic and lumber spine were largely unreavealing except for mild bulging in the lumbar region and slight disk bulge in the T5-6 and T7-8.she has had every bit of blood work done with nothing abnormal. she is currently on cymbalta, lyrica skelaxin, magnesium, B complex , D3 2000 and has tried vesicare and enablex but did not help with her incontinience (“extreme over active bladder”)
She was having full loss of control 3 days and week and once aweek at night while sleeping. Two weeks ago she was put on a tiral of prednisone 60mg and she was able to control herself. Since stopping after the nine days, she has started to lose control again. Doc has now put her on a month of prednisone which she will start today. He wants to see her in a month. What is going on??? why can’t anyone tell us why this is happening? Could the disk bulge be touching the spinal cord causing her symptoms? We went to another neurologist, just for a second opinion, who told us it has something to do with the cervical spine , maybe from an old injury. He ruled out MS. And when I asked about the bulging disk touching (very clearly on the mri) he said that it was normal.. He has ordered another mri of the cervical area but did not seem to care about our concern. So
we are back with our original neurologist who we really like and trust but sadly still have no answers.
Any input would so greatfully be appreciated.
thank you soooo much.
Louise (Bianca’s very worried Mum)Donald Corenman, MD, DCModeratorMarch 28, 2013 at 12:18 amPost count: 8468
You daughter’s diagnosis remains elusive. You can rule out compression of any spinal nerves or cord as the source of the symptoms with essentially negative MRI scans.
Predinsone reducing the incidence of bladder control makes me think of an autoimmune problem. Steroids (of which prednisone is a member) reduce the ability of the body to create inflammation.
Certainly, I am no expert in the field of urodynamics and this appears to be a neurological problem but you might inquire along this line.
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