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  • Amacad
    Participant
    Post count: 2

    Hi Dr Corenman,

    I was diagnosed with scheuermann’s kyphosis when I was 13, I am now 38, have been told a few years ago the thoracic curve is 78 degrees, also have an excessive lumbar lordosis, but that has not been measured, my neck is kind of straight. I have also been diagnosed with hyper mobile ehlers danlos this year. The wedging is predominantly from T9 to T11 with 23-28% loss of vertebral body height, and minimal wedging of T7 and T8 with 15-20% loss of vertebral body height, there is osteophyte bony lipping at T7/8 to T11/12 levels, and fatty marrow changes at the anteroinferior corner of the T9 and T10 vertebral bodies.

    I have constant pain in my lower back, mostly at the SI joint and where the lordosis is most prominent, I also found out from an x-ray this year there is widening of the pubic symphysis, most likely from the EDS, as I have never been pregnant, but thought this could possibly cause some of the low back pain. The thoracic area is not overly painful, provided I don’t do much, walking and standing get very painful quite quickly, in thoracic and lumbar area’s, and any jumping is a definite no no.

    I am worried that my kyphosis could be affecting my internal organs, my dad and grandmother had a kyphosis too, though not scheuermanns, my dads is up higher on his back, and both his lungs collapsed a few years ago, which they think was from the kyphosis. A couple of years ago I had patella stabilisation surgery on my right knee, but the tourniquet damaged a vein, and I had a pulmonary embolism, we incidentally found focal nodular hyperplasia lesions on my liver, and interestingly, the warfarin helped a lot with my chronic constipation, so I am wondering if lack of blood supply is playing a part. I work as a bus driver, and have noticed when I am on holidays, I have a lot less pain, I don’t sit up straight to much, as it is more comfortable reclining, but at work I have to, and at the end of the day, there is pain in my abdomen, under my ribs, my back hurts more and my hips, I am wondering if wearing a brace while at work could keep me more upright, and put less pressure on my organs. I am doing Physio, at first we tried sitting up straight while doing excersises, but I think this caused a dislocated vertebra, severe pain for 2 weeks, and tingling down my legs, until my massage therapist pushed it back in, so now we do all core excercises laying on the floor, which works better. So trying to just sit up straighter while at work, is really difficult, the pain in my thoracic area when trying to do that is much greater than the abdominal pain from not sitting straight.

    The only concern I have with a brace is the possibility of tethered cord, my dad found he had occult Spina bifida in his late 30’s, and a tight filum terminale is common in EDS, the only indications I have is hind brain hurniation of only 3-4mm, and a scabby sore when I was 12 for 6 months that was sterile, in the buttocks area, where they usually find the tethered cord dimple, right before the kyphosis developed. I don’t know if trying to force my spine straight would cause more issues. I would like to avoid surgery, as I am worried it would make the pain worse, and have complications like my knee surgery did.

    Would it be worth seeing a spine specialist again, I have not seen one since I was 13, I asked my GP 5 years ago, and he just sent me for a MRI, I have a new GP now that I am sure would give me a referral.

    Sorry for such a long post.

    Regards
    Amanda
    Australia

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    78 degree scheuermann’s kyphosis is a very large curve that probably needs to be fixed surgically. Any curve over 70 degrees will advance 1 degree (or more) per year and the larger the curve, the harder to fix. The lumbar lordosis is accentuated due to compensation for the large thoracic curve to balance your spine while standing. This hyperlordosis can wear out the lumbar spine, especially the facets.

    The larger kyphosis can eventually put strain on the heart and lungs due to the restrained volume of the chest wall. Your job as a bus driver can be more comfortable if you use a lumbar support cushion and recline your seat (if possible). Wearing a brace can give you some relief but has the price to pay of weakening the extensor muscles.

    It sounds like you have Arnold Chiari syndrome (“hind brain herniation of only 3-4mm”) so that might need to be addressed. You have to make sure you don’t have tethered cord syndrome but there are signs found on the MRI that can be diagnostic. The kyphosis is most likely from Scheuermann’s disorder as tethered cord does not have vertebral deformity of wedged vertebra, endplate changes and does have scoliosis which it sounds like you do not have.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Amacad
    Participant
    Post count: 2

    Thanks so much for the reply, the radiologist said the curve was stable compared to x-rays from a couple years prior to MRI, but I will ask to see a spine specialist anyway, so I can at least monitor it, and get his opinion.

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    Please keep us informed.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
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