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  • DNanaLynn
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    Post count: 2

    I have Ehlers Danlos-hypermobility and was diagnosed with Adhesive Arachnoiditis last year. I’ve had pain in my left thigh that sounds similar to meralgia paresthetica (a deep burning ache on the outside of my thigh that presented for several hours, without anything helping, but then went away on it’s own). It was not a muscle-type of ache/cramp (I am prone to cramps in my legs and feet) – this felt like nerve pain.

    My question is, can Adhesive Arachnoiditis cause meralgia paresthetica?

    Thank you in advance!

    Donald Corenman, MD, DC
    Moderator
    Post count: 8018

    Can Adhesive Arachnoiditis cause meralgia paresthetica? In general, no. Arachnoiditis can cause all sorts of symptoms but to be specific for only a unilateral lateral femoral cutaneous nerve with no other involvement is possible but so unlikely, you would have a better chance of winning the grand prize in the Lotto. Also, symptoms would not have disappeared without a trace.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    DNanaLynn
    Participant
    Post count: 2

    Thank you, Doctor.

    I’m glad to hear that is unlikely and will assume it was a random pain and be grateful. ;)

    I truly appreciate your quick response.

    Pashta
    Participant
    Post count: 3

    Hi DNanaLynn, I have hypermobile Ehlers Danlos Syndrome as well and was told by a knowledgeable doctor that looked at my MRIs that I qualify for a diagnosis of Adhesive Arachnoiditis or Cauda Equina Inflammation and I also have random burning sensation on the outside of my thigh, just above the knee. It’s not a big deal, doesn’t bother me that much. A PA once told me he thought my issue was meralgia parasthetica as well! I find it extremely interesting that you have the same issues… There must be something to it. Hope someone sees this coincidence and it helps somehow.

    My main issue is my lower right back was injured a long time ago and never healed, I’m in a lot of pain constantly but I’m unsure if it’s from the EDS, the injury or the possible AA. Whatever it is, it hurts horrendously and has messed up my life. I hope you don’t have a similar pain? Has the burning feeling returned on your thigh like mine has for years? It just comes and goes seemingly randomly for me for the most part, but almost always happens when I lean forward, without bending over, at the sink to brush my teeth.

    Donald Corenman, MD, DC
    Moderator
    Post count: 8018

    To my knowledge, Ehlers Danlos Syndrome is not related to Arachnoiditis. Meralgia parasthetica is entrapment of the lateral femoral cutaneous nerve at the inguinal ligament and can cause the symptoms you note.

    Lower back pain can be caused by arachnoiditis but that would be quite unusual. You probably have a disc or facet disorder causing your pain.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Pashta
    Participant
    Post count: 3

    Thank you for the response, Dr. Corenman. It was Dr. that looked at my MRIs and wrote a letter stating he believes I qualify for a diagnosis of Adhesive Arachnoiditis or Cauda Equina inflammation. He told me that from his experience over the years, patients with EDS can degrade into AA. It is very new research he is doing, perhaps that’s why you are unaware of it. He sure sounded like he knows what he’s talking about to me. He’s doing the research through his Tennant Foundation. My pain is really bad, far more than just arthritis could cause in my opinion and personal experience. I have been told I have facet arthritis.

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