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in reply to: Symptom question #27933
Suspicious of an spinal arteriovenous fistula at the thoracic level. I believe I have to have an angiogram to confirm diagnosis.
From my research, it is an extremely rare blockage in an artery to a vein in the spinal cord which results in cord dysfunction.
in reply to: Symptom question #27922Hi Dr Corenman,
Latest update I have is, my condition has worsened to adhoc leg weakness. There was no explanation found of protein elevation and symptoms worsening. Referred back to Neurosurgeon to consider decompressing the cervical spine as last resort. The Neurosurgeon ordered more MRI to rule out dural fistula. The radiologist has confirmed his suspicion in the T spine. Diagnosis has not been made yet as still under review.
The NS mentions he suspects a secondary issue as all symptoms do not fit fully yet however this is now the priority. He will be assessing it, some more scan and operating on me. He said this is extremely rare, and given my age. It was missed due to no cord swelling on previous MRIs. Only that this last check with contrast located it.
Do you have any knowledge of this?
in reply to: Symptom question #27706Thanks Dr Corenman.
Have had further review by immunologist to no answers.
Back at the original neurologist today and after discussions he is now suspicious of electricial issues causing my symptoms and raised protein. Has scheduled me for an EEG and prescribed Epilim to trial after the EEG.
Has also ordered T3 MRI imaging of brain and c-spine again to give up any other clue. He advises T3 imaging can show more around blood vessels that could be bleeding to try help explain raised protein.
The discs bulges are still at the end of the list. The new information I received today makes good sense, hopefully this might be the right track!
in reply to: Symptom question #27580That’s ok, I appreciate you following my progression and more than happy to share my experience. I understand that a lot of threads here are unusual, because if we had answers we would not resort to this. Plus, you seem to be the only spine expert offering such a service. I wonder if you can help with a few questions as I am determined not to give up and try get a diagnosis that can hopefully lead to treatment.
Further to the lower legs stinging (not in feet), and what seems like vestibular dysfunction, neurologist labelled it possibly ataxia that I briefly feel off balance or delayed signal of my leg movements when walking. I have started having stinging in my right arm, not in hands but my under arm from elbow to hand, however it is intermittent. The neurologist is still of the opinion my symptoms are very much of spinal pathology. So here is a few questions, if you may answer as best you can I would appreciate it.
1. Can elevated protein in the lower spine build up from CSF disruption by my protruding discs as we have found no cause of inflammation or any trace of MS?
2. Should I start looking for a Neurologist that specialises in unique situations such as mine? My current neurologist is very good but I understand he is more so special interest in MS etc and not as much as spine. However I don’t doubt his knowledge at all.
3. Is there any further imaging or tests that could be done around my symptoms, to see if the cervical level is responsible? Taking in mind I’ve had full spine mri, 2 brain mri, ct of cervical spine. All enhanced with dye etc.
The only findings identified are elevated protein, and 2 disc protrusions flattening the cord with CSF present posteriorly.
in reply to: Symptom question #27556Hi Dr Corenman,
Stuck again it seems.
Have had PET scan and CT scan of chest looking for neurosarcoidosis/sarcoidosis. Results given were all clear. Nothing sinister happening on either scan. The Neurologist has now said we have no explanation for raised protein as unable to find inflammation. He did not like to but has put me on 25mg steroid per day for 5 days then 10mg for 5 days after to see if there is any relief.
If there is none of this relief, then there is the need to reconsider the discs as been responsible for my problem however it does not explain raised protein in CSF and also the fact that imaging does not show evident compression, as CSF is noted behind the cord.
I assume per your prior response, there is no more answers and have pretty much run out of tests now. One option he said is refer me onto an immunologist even though my immune tests were clear to review it all. So I think that is happening.
Very difficult situation.
in reply to: Symptom question #27440I will. Thank you for your help through this process.
Kind regards
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