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  • nikserer
    Member
    Post count: 24

    Hi dr.,
    Thanks for your words. On last check that we went with our younger son, my neurosurgeon said same as you – that he should be braced and if curve progress more than 35 or 40 degrees, surgery must be done. After that we went to our local orthopedist and he said that he personally don-t think that bracing is good and it’s better for him to continue with core exercises.
    I am also that opinion and I think that bracing should weaken his muscles. We shall go soon to 6 months check and we shall see what will new x-rays show. I will update you with news.
    Thanks a lot on your support.
    All the best
    Nikola

    nikserer
    Member
    Post count: 24

    Hello dr.
    I had two surgeries in Sepetember (17 and 24). Second was needed because my surgeon saw suspected place on bone and order CT of head with contrast. It was than seen that my bone was also involved with dfsp. So he perform another surgery with neurosurgeon to remove bone and place skin flap (rotation tehnic) to cover hole in my skull. He said that they didn’t wanted to do cranioplasty at that point, because it is needed some time to be monitored. Pathohistology results confirmed dfsp, and negative margins were arhcieved. I am now waiting for Oncology consilium (that is procedure everytime after this surgery – Moh’s), but my surgeon said that probably I will be adviced for monitoring (first 3 months, then 6…)with control ultrasound, X-rays…
    Wound healed well, and I am feeling better. Little mentaly depressed sometimes because of this unexpected complications, but I must be positive. My scoliosis surgery will wait sometime even I am facing lower back pain every day.
    I have one question regarding link of article about side plank exercise for scoliosis. My son (14 years old) have also idiophatic scoliosis. His curve is about 20 degress and he is doing exercises and have nice core muscles. I wanted to show him that side plank exercise but I am not sure what side has he to lean on. His upper curve is on left side (looking from back) – so opposite to mine (upper right and lower left). From article I read they said : “they were instructed to do the pose on the side their spine was curved toward for 10-20 seconds each day.” I guess then that he have to lean on his left elbow and right arm and hand up. Am I right?
    All the best – Nikola

    nikserer
    Member
    Post count: 24

    Thanks dr. for your explanation. Yes for sure I am not going to scoliosis surgery till wound from dfsp is healed totally. Going tomorrow to hospital and for sure will mention your thoughts to my plastic/Moh’s surgeon. I will probably see my neurosurgeon because it’s same hospital. I will also talk with him about planing for scoliosis surgery and will also mention this. It would be great that we are little closer distance so I could come to your office for check, but we are on different continents. Before going to scoli surgery Before scoli surgery I will go to my urologist for check and he will give me advice (size?) for silicone catheter because on previous spine surgery I had UTI from rubber catherer and I am pretty scared about that – more than spine pain.
    I will update you with my progress, and once again thanks a lot for your very usefull advices and giving time for me.
    All the best
    NIkola

    nikserer
    Member
    Post count: 24

    Hello dr.
    This will be mine 8 surgery for dfsp with first false surgery (they thought it was lipoma). First surgery was back in 1994… I never had any infections after this surgeries, and yes I guess that also dr. will advice me that some time (at least after first check) has to pass so I can go to spine surgery.
    I am not sure on what you exactly think when you said “An inadvertent infection from the Moh’s surgery into the scoliosis surgery is a disaster”? But as my dr. said, we are not still 100% sure it is dfsp. Pathohistology findings will tell us, but from previous bad experiences with me – he wants to do it under general anesthesia.
    When I was asking you for urinary problems, I exactly thought on Neurogenic bledder disorder. I found interesting article about this on Spine universe web site.
    For pain I use (more than year): Neurontin and amitriptyline. Can this two medications cause urinary problems? I think that I read somewhere that Neurontin is used for treatment for chronic BHP.

    Best regards
    Nikola

    nikserer
    Member
    Post count: 24

    Thanks much dr. on your valuable explanation. As always you give very usefull informations and for sure I will mention this to my surgeon before surgery. I was only wondering can this foraminal stenosis create some urinary symptoms or they are related to my BHP – chronic prostatitis. I am going next week to one smaller surgery which was not planned (recidive/relapse of dermatofibrosarcoma protuberans on my head near previous scar of surgery back in 2007). It is small now (maybe max 2cm) but my plastic/Moh’s surgeon want to remove it now before spine surgery. After recovery of that I am calling my neurosurgeon (as he said me) and we will than shedule scoliosis surgery. I will update you about my news related to spine.
    Thanks again on you help and understanding.
    All the best
    Nikola S. – Mech. design Engineer/Autodesk Inventor&AutoCAD trainer

    nikserer
    Member
    Post count: 24

    Hello dr.
    I am soon going to my second spinal fusion but this time for my lumbar scoliosis and pain while prolonged standing/sitting/walking. But first have to do one (unexpected) smaller surgery (MOh’s) – recidive of dermatofibrosarcoma protuberans on my head. (7th one…).
    My question for you now is: Does my urinary problems like feeling pressure in bladder and increased urinary frequency, sensation that the bladder is not empty, even I am done urinating can be related with my spine condition – expecially lower spine scoliosis (55 degrees)-(neurogenic bledder?)?
    My newest MRI is showing some foraminal stenosis and scar granulations in epidural space on left side of L5/S1 fusion. Also there are events of hypertrophic radiculopathy on L5 radix and mild anular disc bulging in segments L2-L5 without significant compresing dural space.
    My urologist told me on last check that I have mild enlarged prostate and only gived me some herbal medication. He said also that my urinary problems could be in relation with my lower spine condition. I am confused with this for year and more, because from time to time I have this symptoms and this herbal medication don’t help me at all.
    My neurosurgeon said that he will corect scoliosis (how much is possible) and fuse it from T10 to sacrum(or pelvis).
    Just to remind you that I am male/44 years, have double “S” scoliosis (about 55 degrees both curves) and last year (January) had fusion at L5/S1 for spondy and DDD.
    Thanks in advance and all the best.
    Nikola

Viewing 6 posts - 1 through 6 (of 22 total)