I wanted to post this Update on my diagnosis, to possibly help others out. a surgeon at Duke university at last diagnosed me with major c1/c2 instability, in fact they claim my right alar ligament was probably entirely severed. Interestingly it took 6 surgeons, countless MRI’S multiple flexion/extension X-rays. and a DMX X-ray. non of these picked this up. A neuroradiologist Performed a flexion extension CT. scan. and bam there it was. A c1/c2 fusion was performed 11-06-15. It took 2 years to get this diagnosis, Prior to surgery i had become so bad even jerking my head i was going numb. Thanks again