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Viewing 6 posts - 13 through 18 (of 18 total)
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  • Michaelrch
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    Post count: 19

    Thanks Dr Corenman
    There is another twist. The radiologist that did my ESI today disagrees that there is any disk fragment or other debris near the nerve. He sees everything near the disk as enhancing contrast so it has blood flow do it’s not debris.
    I am next to see the surgeon next week but I have emailed him this news in the meantime.
    Who knows – maybe the ESI will work a miracle this time. He went in from the side to try to maximise uptake in the relevant area. But TBH in general I don’t understand how steroids reducing inflammation will help with tethering of the nerve by scar tissue so am dubious and rather disappointed but will not give up just yet!
    I will keep doing my exercises to free the nerve from the scar tissue with gusto while I wait for my next appointment.

    Michaelrch
    Participant
    Post count: 19

    Dear Dr Conenman
    So yesterday, on the recommendation of my old GP who is a family Friend, I saw a new surgeon, a professor of neurosurgery. He looked at my scans and spotted a lump of material showing up black on the scan that is lying right next to my S1 nerve at the L5 S1 level that has slightly shifted between the week-4 MRI (no back pain) and the week-10 MRI (back pain). In the week-10 scan the nerve is more swollen and the black ‘shard’ of material is pushing more against the nerve as the nerve is more distorted in shape. So his recommendation is first to try another ESI, in case we can shrink the nerve away from this material and take the pressure off, else he wants to do a revision to clear this material away from the nerve. He says a small fragment like this will cause a small sharp point pressure on the nerve and that would cause a disproportionate amount of pain. I asked about scar tissue causing more trouble. He says he will leave in some gel to inhibit adhesion of any additional scar tissue to the nerve, and in most cases, the dangers of scar tissue, while not zero, are less common than is sometimes thought. He has been at this for 20 years so I am prepared to trust him!
    Anyway, it goes to show the usefulness of multiple opinions. I think my original surgeon was just stumped and got fed up with me complaining. This new guy is engaged and far more positive about getting me back to full function.
    Ironically, I have just read up on Tiger Woods. His last surgery was exactly like this revision proposed, to clear out a small nasty fragment that was causing ongoing back, hip and leg pain. Today he is back to playing pro matches (albeit a year later).

    Michaelrch
    Participant
    Post count: 19

    Many thanks again Dr Corenman
    What is tough for me is that I had no back pain for the first 6 weeks after the surgery. I was having a really straightforward recovery. I could stand for up to a hour without trouble though I did not sit much. I was working and walking almost at will.
    The real trouble started after my very ill-advised uphill hike AND then a few days later, several hours standing for work.
    My original calf weakness is now under control, and while I cannot lift up on that toe from flat, I can tip toe across the room if I am asked to.
    So I figure that maybe the hike caused more inflammation, then the standing (which was fine before) caused my back to actually press down on the more swollen nerve causing more damage. Is that plausible?
    The other thing that people keep saying when they see my scans is ‘scar tissue’. I have read extensively about how this can cause problems starting in weeks 6-12. It’s the only visible change between the MRI I had at week 4 (when all was good) and week 10 (not ok). The thing that does not fit there for me is that the onset of my pain was overnight after the hike (then worse and more focuses after the standing), not gradually over a few weeks. That said, maybe all the activity roughed up the healing tissue and caused more scar tissue to form causing longer term pain…
    Sorry, to go on. I really struggle to cope when my doctors are vague about what is going on. I had to effectively self perscribe my ESI as my doctor is 95% focuses on weakness in my muscles rather than any pathology around the nerve. I am building a sux pack on all the abs work but I don’t see what actual good it is doing!
    On a more positive note, I think that the general level of pain (frequency and intensity) is more likely down than up since before the injection, but it’s honestly hard to know for sure.
    Many thanks again

    Michaelrch
    Participant
    Post count: 19

    Hi Dr Corenman

    I had the ESI on Monday at 3pm do just over 48 hours ago. It all seemed to go fine. I left feeling very numb as expected. I started noticing some back twinges coming back after only about an hour while most of my butt and leg were still numb which was a bit concerning.
    Yesterday things had settled down but I did not was still getting twinges, mostly when lying down after short walks (10 mins). I slept really badly and today I am basically where I was before the injection. If there was any impact it was very short-lived.
    Today I am doing 20 minute walks as instructed by my doctor but I get sharp shooting pains after them and general ache in my lower left back again.
    So pretty disappointed. My doctor had expected the pain to be gone at least for a few weeks but no such luck.
    I am thinking I must have some picked up kind of chronic nerve damage back in July for the pain to be this tenacious. Is that plausible? It is generally a slight burning ache most of the time with highlights of shooting pains after moving around.
    Aside from just doing more physio I have no idea how to attack this now. I am on my back most of the time again trying to let the nerve to calm down with the steroids. I will be slowly restarting my exercises tomorrow and building back over a week. I guess if the ESI has not worked then oral steroids are a waste of time? The MRI shows no herniation…
    I would really appreciate your thoughts on this. Many thanks
    Michael

    Michaelrch
    Participant
    Post count: 19

    Many thanks again Dr Corenman

    Yes, that matches what is happening. I do get mild aches in the glute and upper back of the thigh. I kinda ignore it most of the time as it is easily tolerable compared to the back pain. I could not say for sure re the SI joint but I have had pain on the bit of the hip/sacrum that protrudes slightly.

    So on with the PT. I see the doctor again in 3 weeks. I will see about the injection again. Worst case, my surgeon left this option open when I saw her last 6 weeks ago. She was not keen at the but I got the sense she would not object after another couple of months.

    Anyway, thanks so much again. I will do my best to update the thread as things change in case it helps others later.

    Michaelrch
    Participant
    Post count: 19

    Dear Dr Corenman

    Many thanks for the very quick response.

    Sorry I missed if some key information i think!

    Yes the pain is on the side and level of the previous herniation. It is mainly localised about 2cm left of my scar, but it can spread if it gets bad, at the same level.

    I had an MRI at 4 weeks when I was going well, then another at 10 weeks at which point the back pain had started. My surgeon said several times that she could see no difference in the disc height or shape between the 2 scans. My new doctor could not see any changes either. The S1 nerve root was looking swollen on both. There is apparently enough space in the foramen for the nerve all the same.

    I bought the nerve pain diagnosis as it was consistent with the very fast onset of the pain after my over-exercise day. As part of the diagnosis process the doctor did some stretching/pulling of my leg and caused pain in the leg first, then the back started burning.

    On the upside, my leg weakness is still much better than pre-op. I can tip toe for a bit and so on.

    I will continue to build up my physio exercises. I am sneaking up by maybe 10-15% each week which I seem to be getting away with.

Viewing 6 posts - 13 through 18 (of 18 total)