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Viewing 6 posts - 7 through 12 (of 12 total)
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  • MarieTaylo
    Participant
    Post count: 13

    We have in our possession all of my imaging studies of the cervical spine, operative reports, EMG’s, etc.
    Once we’ve completed my evaluation, we’ll decide how to proceed.
    Thank You.

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    We met with a neurosurgeon who’s specializes in Neuro modulation.
    I was a neonatal ICU RN.
    What impressed me most was the doctor did both a complete history & complete physical exam. I am amazed at how many doctors focus on pretty pictures and don’t touch their patients (unless they’re asleep for surgery).
    I am not a candidate for Neuro modulation.
    I’m experiencing Nociceptive intractable pain and possibly, neurogenic pain.
    In effect, the muscles that should be supporting my skull, neck & shoulders have been damaged; so, many other muscles are taking on a heavy workload.
    He referred my case to a neurosurgeon within the Institute. He’s ordered a MRI to compare with my past imaging.
    I have Titanium from C2-T2. So, there will be a lot of artifact on the MRI.
    A myelogram would probably yield better imaging but it’s invasive & painful, too.
    We’ll meet with him on 2/27 to discuss the results and any possible treatments.
    They suggested wearing a cervical collar (hard) to decrease the overload on my muscles.
    Before attempting any physical therapy, he wants me to wait until his colleague meets, examines and evaluates me on 2/27.
    He thought Botox injections to my bulging neck muscles by a neurologist may give me some relief.
    The neurologist meets with me on 5/2.
    In the meantime, I am coping poorly with intractable pain.
    As you can imagine, I battle with severe depression related to pain every day.
    I’m still struggling to understand how on 7/7/2014 I went into surgery for a C6-C7 cervical fusion and 2 1/2 years later, I’m unable to find a release from pain that has disabled me.
    Any recommendations for us when we meet with the neurosurgeon?
    After we meet with the Institute’s doctor on 2/27, we’ll share his findings with you.

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    We’re going to a Flagship Medical Center on 2/9 for an evaluation by the Neuro modulation neurosurgeons.
    They have my previous imaging.
    Hopefully, they will do a complete medical evaluation rather than another “Patch” and see if this works which has been my previous experience.
    We will probably request a consultation with you to share their findings and before making any plans.
    As I told my husband, what happened to being admitted to a Medical Center, get evaluated, examined, and receive medical treatment? Remember, when patients used to receive medical care?
    Logistically, we can get to Vail. We would need to know how long it takes to get an appointment with you? AND, how long I would be in Vail?
    Practically speaking, there’s insurance to work through and a stay of more than a week would require my husband to leave me in Vail and come back at some point. So, transportation & accommodations are another factor.
    After evaluation, imaging, examination and consultation; you would have a treatment plan. After whatever treatment is proposed, do you have on site rehabilitation services or would I return home for rehabilitation?
    Rehabilitation is a big concern of mine; as the past year has physically depleted me.
    After the fusion on January 9, 2015 I spent 4 days on a postoperative unit then was transferred to their inpatient rehabilitation unit for 10 days. The transformation was amazing. I couldn’t bathe myself on the first day of rehab. By day ten, I was able to complete all ADL’s, walked without aid and built on that over the next 9 months.
    2016 was a waste of resources, time and ultimately I’ve been physically depleted.
    I’m impatient to see improvement but repeating the same cycle is an exercise in futility.

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    I agree with your assessment. I had been seeing a Chirocpractor since 1988. In 2012, he referred me for additional imaging.
    He understands the extent of my neck issues and manipulation could cause catastrophic damage.
    Thanks.

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    Thank you for posting so quickly.
    We’re in the MidWest area of the US.
    The appointment on Thursday is for an evaluation and options available.
    We’ll be in touch with the information gathered.
    God knows, I would enjoy a trip to Vail. Even if it’s for medical care.
    Thanks again,
    MarieTaylo

    MarieTaylo
    Participant
    Post count: 13

    Hi Dr. Corenman,
    I’m Rich’s wife.
    Since the revision, I’ve been told to see a “Wound Care Specialist”, “Physical Therapist”, “Dry Needling”, “TENS”, “Cognitive Behavioral Therapy”, “Pain Specialists.” Finally, I was told to see my neurosurgeon as the damage to my cervical spinal nerves is beyond the scope of the “Interventional Pain Specialist.”
    I cannot return to the neurosurgeon. I need fresh eyes on a complex case. I need to be released from intractable, untreated pain.
    I understand my case is complicated. I had to stop most of the medications that left me lethargic & depressed.
    As you can imagine, we’ve been through everything with zero improvement in my situation.
    We are going to a Major Medical Center this Thursday with the recommendations you posted.
    I agree 100% I need a complete medical evaluation to determine the best medical treatment to pursue.
    Do you provide the medical care that I require?
    2 1/2 years ago, a single poorly planned cervical fusion disabled me.
    I’ve been in intractable and untreated pain due to the new CDC/FDA/DEA regulations.
    Certainly, I would prefer a non-pharmaceutical treatment and start a physical rehabilitation program.
    I’m very concerned as my overall physical health has been parceled out to so many sub-specialities and I’m no better.
    Currently, I can bathe (provided someone is home), dress myself and use the bathroom without assistance.
    I was a healthy, active, registered Nurse, active in our community and had so much to look forward too.
    Despite having adequate insurance and financial resources, I cannot find appropriate and timely medical treatment.
    I appreciate all of your feedback.

Viewing 6 posts - 7 through 12 (of 12 total)