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  • MarieTaylo
    Participant
    Post count: 13

    Marie, I can relate to your cervical spine issues. Two years ago I underwent a C3-T1 posterior fusion. I also have postoperative kyphosis, along with bilateral C8 radiculopathies and muscle dehiscence at the operative site. I am also dealing with intractable pain. I also have T7-8 and T8-9 herniated discs causing a stabbing pain in my thoracic spine and left rib and abdominal muscle pain, with EMG documented radiculopathies. I just under a CT/myelogram of my cervical and thoracic spine, and I am waiting for results of that from a spine surgeon at the Mayo Clinic. Like yourself, I can’t get any answers or relief from the pain and I am functionally disabled. I was am amazed to read your story and plan on following Dr. Corenman’s advice to you. Best wishes!

    Hi Sammiemae,
    I am sorry it has taken 4 months to respond or post on this forum. Right now, I woke up to wind gusts @ snow. I came upon this entry and I cannot completely respond (I have to get some sleep) but I will say the consult I had was extremely productive. Dr. Corenman laid out the (4) problems within my cervical spine, explained each problem and gave me a plan to attack each problem or “pain generator.”
    I am still working on the 2 easiest problems.
    Recommendations 3 & 4 will be difficult due to insurance and traveling quite a distance to see specific specialists who care for very complicated spine problems.
    I will post additional information to you.
    Don’t wait for me.
    Collect all of your medical records and specifically all imaging related to your cervical spine.
    I highly recommend Contacting their office and getting a consult with Dr. Corenman. The first item they will need is your imaging to review what has happened to your spine.
    Then, he may want a very recent CT Scan. You will need to coordinate this with his office and your PCP.
    After receiving a recent scan, he will to a comparative study of your cervical spine. Then, he will call again with his impressions and advice.
    After discussing my case, I have a plan
    which has given me some hope.
    Best Wishes!!!

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    You stated the issues related to pain management very well in a paragraph.
    It’s very complicated.
    I’m looking forward to meeting with you and hopefully, you can help me.

    MarieTaylo
    Participant
    Post count: 13

    Sammiemae,
    Don’t give up hope.
    Until my cervical spine was damaged in 2013, I led a healthy life, had a interesting career and a lovely family.
    I didn’t know what pain was until waking up from surgery on 7/7/2014. I tried to tell the PACU Nurse something was wrong.
    When I signed the broad consent form, I read the possible risks involved.
    What I didn’t realize at the time was if the surgery failed not only would I be coping with severe pain daily but soon the government would place major barriers to receiving pain management.
    After ten months of crippling pain, I found a pain specialist who has made the pain bearable to do light ADL’s and daily physical therapy. Bed rest deconditions your body making a bad situation worse. If the pain had not been controlled, I wouldn’t be in a position to travel for healthcare. In February, a 10 minute car ride had me in tears. Now, I’m able to attend the Opera, a movie and contemplate a trip to Vail.
    Dr. Corenman may not be able to change my situation. I hope he can! However, I believe he can explain what has happened and how I can best manage my spinal health.
    Keep the Faith!
    Marie

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    After discussion with my husband, I have decided to complete the necessary paperwork and send all my medical records and imaging to your practice by the end of week ending 8/19/2017.
    I’ve come as far as I can with physical therapy and pain management. Facing complete disability and chronic intractable pain by the age of 50 has taken me 4 years to accept. I still believe there is hope for me.
    I’ll be in touch with your staff soon.
    Marie T.

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    Update from Winter 2017:
    After meeting with 3 neurosurgeons, I was told that “most likely” an infection may have caused muscle & nerve damage in the cervical spine area. Basically, the shook their heads and expressed sadness about my situation.
    (I don’t want sympathy…I want answers!!!)
    By March, 2017 I was in debilitating pain. My husband & I met with a new Pain management doctor closer to home. (By March, I couldn’t tolerate more than a 10 minute car ride.)
    Currently, I’ve been diagnosed with “intractable pain secondary to failed back surgery Syndrome”.
    In Ohio, there is a law that allows Pain Specialist to treat “Intractable Pain” with higher doses of opioid medication than the “DEA/CDC/FDA/’Doctors without a MD’ Guidelines permit.
    Currently, it’s been the only effective treatment offered to me.
    After trials on various combinations of opioids, I’m currently on a 50 mcg./hr. Fentanyl pain patch and Norco 10 mg. TID prn (I’m taking all 3 doses daily).
    Since the pain is down to a slightly more manageable level, I’ve completed 4 months of intensive physical therapy on my neck with in-home PT.
    In June, I added daily aerobic exercise and worked up to 40 minutes of stationary biking and 25 minutes of Treadmill walking to my stretching exercises. Recently, I started going swimming twice/weekly, too.
    Despite the exercise routine, I have severe pain bending, lifting pulling or any type of jarring movement. Sitting at the dinner table is challenging. So, I’m working to increase my stamina and reverse the severely deconditioned state that comes with prolonged bed-rest. However, simple daily tasks of living are very painful.
    I have two more appointments in Cincinnati.
    I’m meeting with a General Surgeon this week to evaluate the hideous scar on my neck. Sores have started to appear near the incision. (REVISION???)
    The following week, I’m meeting with the Pain Specialist to discuss adjunct procedures (RFA to the cervical spine nerves, Occipital nerve block, trigger point injections, Facet injections, etc.).
    “I know the pain medications are only covering up a painful problem.”
    I’ve worked very hard and will continue to do exercise therapy until I drop!
    Bottom line: I’m still in a lot of pain. I force myself to workout because I have no other options.
    3 years of debilitating pain has taken its toll on me. I’m 54 years old, I haven’t been able to work since July, 2014. I rely on my husband for almost everything.
    I told my husband that if between the two doctors they are unable to concieve of a plan that would make me less dependent on others; we need to consult with Dr. Corenman.
    I don’t know if you can help me but I don’t even have a diagnosis.
    Two neurosurgeons said, “We think an infection set into your neck incision.”
    Another doctor said, “Your neck is a mess!” Then, he told me to return to the surgeon who created the ‘mess’
    Do you feel a trip to Colorado could answer some questions and come up with a treatment plan to increase my ability to function?
    Possibly, pain medication isn’t the only answer.
    (BTW-I’m fused from C2-T2)
    Let me know,
    Marie C. T.
    SW OHIO

    MarieTaylo
    Participant
    Post count: 13

    Dr. Corenman,
    My husband & I have asked questions about severe pain after 3 cervical fusions and a revision.
    On February 23, 2017 I had a MRI with contrast.
    Technique: Multiplanar & multisequence MRI of the cervical spine performed on a 1.5 Tessa magnet without & with IV contrast.
    Impression:
    Post Surgical changes extending from C2-T2. Anterior Fusion is seen at C4-C7 with C5 corpectomy. Posterior Fusion is present from C2-T2.
    C1-C2: Hypertrophic changes in the posterior elements contribute to bilateral C1-C2 foraminal narrowing without definitive nerve root impingement. There is no canal narrowing.
    Limitations: Extensive metallic susceptibility artifact.
    I’m experiencing disabling pain.
    Is there a treatment for the above?
    I was resigned that I had Epidural Fibrosis.
    Could this be a factor in my poor outcome?
    We would be on a plane to Vail on a heartbeat if we knew treatment is possible. I’m in so much pain that a two hour drive to a Midwest Medical Center brought me to tears.

Viewing 6 posts - 1 through 6 (of 12 total)