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  • lila
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    Post count: 9
    lila
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    Post count: 9
    lila
    Participant
    Post count: 9

    Dr Corenman,

    Are you even real?? A witty surgeon that actually answers questions with straight answers?!
    You are a rarity sir.
    I will call your office.
    Thank you so much for being so up front and actually answering my questions.
    I hope to see you soon…

    Sincerely,
    Lila

    lila
    Participant
    Post count: 9

    Renee…
    Glad to help. I hope you find a great surgeon! Maybe Dr Coreman is our answer… ;)
    Hadn’t looked him up yet, so thanks for the heads up!
    Good luck!

    lila
    Participant
    Post count: 9

    Dr Corenman,

    AGAIN, thank you!
    It’s so nice to just receive straight answers!! So quickly too. How nice of you.
    I feel like I’ve been getting the run around and am starting to think I need a second opinion.
    Out of my area. :)
    Everything you answered, makes complete sense.

    Clearly my surgeon, is not following through with me, and I’m not sure why.

    I wish someone would look at the right type of images with me, and tell me the truth. Show me them and Explain what they see.
    Not just say “yes I saw it. It looks good”.
    What does that even mean??

    All I want, is to feel better and recover, but how does that happen when nobody is following up correctly?
    I feel that because I continued to have symptoms after the surgery, my surgeon has written me off or something.
    I am unsure of whether the symptoms and pain are normal in my situation and really need some answers.

    One or two more questions… :)

    Is there ever unexplainable pain or is there always a reason for the pain?

    My pain is lower in my neck than the discomfort I experienced before the surgery and there’s also a stabbing near the fusion, but I describe it as a deep, sharp constant pain.

    Is it possible the pain is imagined or in my head? Maybe neuropathic pain?
    Or because it is new and different, it couldn’t be?

    Finally…

    Do you take out of state workers compensation insurance? My employer is self insured and do not contest any treatment requests.

    If I was willing to travel, do you look at the file and images prior to me traveling?

    What is the next step? I wouldn’t mind a trip to Colorado… I keep saying I need a vacation. Maybe I’ll come visit the Springs…. :)

    Thank you in advance

    Lila

    lila
    Participant
    Post count: 9

    Hi Renee,

    I am also sorry that you are in the surgical arena. I hope everything goes well for you!!
    I could probably write a patient advocacy book at this point!!

    I have learned some tough lessons along the way, and have been reading and searching for information for what feels like forever at this point! :)

    I hesitate to mention who the doctors are, because I hate to speak poorly of anyone and I’m still confused as to what the actual role of a surgeon is. If I had to do it over again, I would have a neurologist AND a neurosurgeon.
    I have been told by the surgeons office that they don’t deal with ongoing issues, so my advice is this:
    have a completely independent neurologist OR orthopedic spine DR AS WELL as the surgeon, on your team. The reason I suggest an independent doctor, that isn’t associated to the surgeon, is because that way you have a second set of eyes and ears to bounce everything off of. Someone that doesn’t have a stake in the surgery or it’s outcome.

    I was originally seen at DENT neurology and it was DR KM that diagnosed me with a stretched braxial plexus and benign fasciculation syndrome.
    My surgeon is with UB neurosurgery and he is the chief of neurosurgery.
    He was the overseeing neurosurgeon for the football player that was paralyzed awhile back. It was all over the news at the time, because it was a new treatment for spinal cord injury.

    The funny thing about it, is that I didn’t know that at the time. I was referred to him and told he was very good and conservative. The referring Dr said it was urgent, and when I looked up his Bio and experience, I was impressed. So because things were happening urgently, I didn’t take the time to look for a surgeon I was comfortable with.
    Another thing you should keep in mind, is although it isn’t the surgeons staff that is cutting you open, they play a HUGE roll in aftercare and recovery.
    My surgeons staff is seriously awful…
    I am not normally one to complain, or cause a fuss. Frankly as a patient, it is the LAST thing we want to do.
    However this last time around I felt I HAD to speak up and be my own advocate. I don’t feel like the care I’ve received is acceptable or compassionate or empathetic in any way. Some of the comments my nurse and PA have made make no sense, and are downright insensitive.
    Pain is subjective to each individual. Just because symptoms are not typical, or subtle doesn’t mean they are any less significant to YOU.
    Don’t be afraid to speak up, ask questions and say when you aren’t comfortable. If it isn’t well received by staff or the Dr, note that as a red flag. YOU as the patient have the right to understand what is happening with your body.

    I am now just realizing all of this and wish I had someone tell me these things beforehand.
    I may have answered some of my own questions just now… :)

    I’m happy to answer any questions you may have. I felt totally overwhelmed and worried before surgery too. (still am). It has been life changing and I wasn’t educated or informed correctly about what to expect prior to. Do as much reading as you can to understand your injury and symptoms. I hope you do well and you can get back to life. Remember that every single person has totally different situations and injuries and perceptions.
    Trust your gut….
    Hugs,
    Lila

Viewing 6 posts - 1 through 6 (of 7 total)