kaparker65

I had MRA on 6/7/2018. The neurologist repeated my nerve conduction test and did EMG on my extremities bilaterally. Everything normal except mild carpel tunnel on the left.

1. 2010 C6C7 ACDF 2010 herniated disc and fragmented t found lying across c7. Left arm pain and numbness and severe neck pain. Surgery corrected left arm symptoms but continued to have chronic neck pain periodically. Fusion failed. Doctor refused to surgically correct stating it did not appear to be urgent.

2. 2013 C6C7 ACDF C6 screw loose impinging nerve left arm for 2nd time. Severe pain in neck and arm. Went to new neurosurgeon. He removed old hardware and placed new hardware. Operative report states that it had not fused no bone at all. He states that he would have done c4c5 but c5c6 was healthy and since I was having no symptoms from the c4c5, he would not touch it for now. After the surgery I could not get any pain relief in my neck and shoulders. I had numbness and tingling and pain now my right arm and the base of my neck. Nothing like the first surgery. I got upper respiratory symptoms and had laryngitis. All I did was cough my head off for 3 months. I had laryngitis. Neurosurgeon sent me to pulmonologist. Nothing helped. At 3 months post op, X-rays revealed that fusion had not taken place and all screws were very loose. My neck felt like it was broken. He stated that he wanted to go in posteriorly and fuse c4c5 and C6C7. I refused. I am a nurse manager and had already been off my job for 3 months. I had to go back to work. I was also afraid that I would not be able to stand any more at that time. I got a referral to a physiatrist and he provided holistic and pain meds. I learned how to live with a chronic 6-8 pain rating. My right arm was still numb especially into my shoulder, back of arm, into my ring and pinky finger. I also went to gym and worked to stabilize my muscles. I continued to have laryngitis and coughing fits. I went to my ENT who diagnosed me with right vocal cord paralysis. It stayed paralyzed until 6 months post op.

3. In 2015 I worked part time with a cervical spinal surgeon. He agreed to send me monitor my cervical spine with fu MRIs and X-rays yearly until this year. Hardware stayed intact but never fused. It did however stabilize anteriorly calling it a false joint??

4. In 2015 my right arm continued to give me fits sporadically especially when it rained. I specially my neck near my shoulders. Ibuprofen only thing that works. The spinal surgeon referred me to a Thoracic outlet specialist. He stated that it was probable that I had developed TOS but I wanted to continue to manage without surgery since it was not urgent.

4. In April 2017, I was getting lots stronger and the pain was better. My physiatrist has started decreasing the number of percocets from 180 a month in 2013 to 90 in 2017. Robaxin was decreased from 150 in 2013 to 90 in 2017. I was only taking them when the barometric pressure changed, it rained, or cold and wet. I live in Alabama so it can be quite humid and lots of wacky weather changes weekly.

5. In February 2018 I severely twisted my neck to the right and hyperflexed to reach suddenly for something on my desk while holding the phone between my ear and shoulder handsfree. I felt and heard a loud pop at the base of my neck and felt a severe pain into my thoracic area, my right shoulder, arm, and into my hand. The pain also originated at the occipital region of my skull and radiated into my head and my eyes. I had blurred vision and saw dark spots. I do not remember if I passed out or not. All I remember is that I eventually came to my senses.

6. February 23 to February 28, I stayed in my bed. I had nausea and vomiting, dizziness, severe occipital headache, blurry vision, walking into walls, I fell 3 times, i had severe pain shooting into my right ear and jaw, I had laryngitis for a month, I slurred my words, my nose and mouth were numb off /on and I could not swallow my food.

7. On July 28, I went to my family practitioner. She diagnosed me with severe anxiety, cervalgia, and arm pain. She place me on leave for 2 weeks until March 14.
When the symptoms did not appear to be getting any better I called my physiatrist and he ordered MRI for March 13. When the report came back negative, I made appt with my orthospinal surgeon. He was out of town so I made appt with the orthopedic specialist that had seen me for TOS.

8. On March 14, I was diagnosed with right TOS. He ordered 2 scalene blocks a week apart first available appt was April 2018.

9. March 19 my physiatrist took me off my job for 8 weeks due to the severe pain and immobility.

10. A week later I was totally bedbound except to bathroom. I had to pick up my head and stabilize the back of my neck to sit up or turn over, or lay down. I noticed that my right pinky finger was starting to turn red like I had an occlusion. I made appt to see spinal surgeon. He said it was from the TOS and not worry about it.

11. The first week of April, I started having sciatic pain in my right buttock then my left. Then my thighs and ankles felt heavy and tired and weak bilaterally. I felt like I would hit the floor every time I stood up. I got very SOB, I still had dysphasia, by this time I lost 15lbs, I could not write or type with either hand. My symptoms had spread over to my left side and I had now had the same symptoms in my left side as I did my right. I had problems with urination. My big toes began to get numb, my hands and feet got red then mottled, very cold, and purple.

12. On April 5, I woke up and had felt like I was dying. I called the spinal surgeon. He examined me and said I did not have TOS. This seems to be coming from your neck and I don’t do necks. He would not give help me with the pain unless he was performing surgery. I was a 10 at this point and in tears. He said I had a pain specialist and I told him that my pain specialist had refused to write Me for pain meds because he says not treating me for this Acute issue. He only wrote for chronic pain. I called my family doctor and she instructed me to go to the ED. The ED doctor examined me and admitted me for all the Neuro symptoms she found, my hypertension, and the abnormal brain MRI.

13. April 5-9, I was given Robaxin, percocets, Demerol IV to control the pain and severe muscle spasms. I had mutiple tests. The first neurologist on call did not examine me or find anything on my brain MRI. He ordered a MRI brain with constraint to be sure. The neurosurgeon on call came in and move my neck and shoulders a little. He never examined me fully. He said my neck was a mess and that the C6 had not healed. He said he was trying to get a better pic of what was used in my last surgery. He said it looked like plastic. Another neurologist on call examined me and did a lot of test Ms in me. He said that I had stocking glove bilaterally hands and feet. He said I had hyperactive reflexes at the knees and no reflexes at my ankles. He said that I had symptoms of myelopathy and bilateral radiculopathy. He stated that I had positive humans sign on my right hand and not my left. No clonus was found. He said that I was having conflicting symptoms. He said that the c8 dermatones were being affected bilaterally but all of my symptoms did not fit. He felt that I had several things going on at once. He got labwork and all was normal. The MRI brain was felt to be benign, he ordered nerve conduction tests which showed Ulnar Cubital tunnel syndrome bilaterally and I had axinal neuron issues from my elbows to my hands bilaterally. The neurosurgeon told me that he found nothing urgent with my neck, I had bursitis in my shoulders bilaterally, and that he wanted to do a bilateral elbow release immediately. My family practitioner came in and diagnosed me with anxiety and depression and tried to put me on medication. I refused. I told her that I felt that my neck was broken. She said that no doctor was gonna touch my neck and that she was making a referral back to my original surgeon and discharged me without any pain control or muscle relaxers. I was not believed. I followed up with the neurologist a month later. He examined me and found the same issues that the other neurologist found.

14. On May 3 my family practitioner sent me for ultrasound of carotids for subclavian Steal. She noticed that my hands bilaterally were turning read like they had poor blood flow. Tests were negative. I tried to tell her that when I hyperflexed or hyperextended my neck I got the same TIA like symptoms. I saw my physiatrist later that week and he saw the same thing. I told him the symptoms I was having. He said that I needed MRA of the arteries and an echo because it looked cardiac. He instructed me to call my family doctor and ask her to order the tests. She ordered ultrasound of the carotid which were normal.

15. On May 30 I finally saw my neurosurgeon. He looked at my MRI and said my symptoms were psychosomatic from severe anxiety and would go away when he did my surgery. At this time I could not walk without assistance and my neck was so unstable and painful that I could not move my head in any direction. He gave me pain meds and muscle relaxer that did not touch the pain. I was instructed to stop taking the ibuprofen.

16. On June 14 I had ACDF c4-6. He cut the old surgical site anteriorly. He made a second incision at my C6 and placed a drain.

17. My husband told me that the Neuro surgeon told him I had Acute herniated discs at c4 and c5, I had severe stenosis and osteophytes complex at c4c5, and a dislocated rotation at my C6. He removed the hardware I have not seen my surgeon since the morning of my surgery and my husband did not think to ask what he did to correct C6. He told my husband that I had c2-c4 arthopathy.

18. I came home on June 15. I was discharged by the assisting neurosurgeon. He never told me I would need 2 neurosurgeons to work on me. All I know is that the pain at the base of my neck is excruciating, the pain radiating down between my shoulder blades like someone is stabbing me with a knife. My right arm and leg is still weak. I still have severe pain and stiffness in my neck into my shoulders with ungodly muscles spasms. I still cannot button my clothes, write, type on computer, I have no ROM in my neck worth speaking about. I am having difficult not looking down all the time. I can feel the hardware in my neck. The good news is that the muscle weakness and tired feeling is gone from my legs. I can pee again. I am not having any symptoms in my left arm at all since I woke up from surgery. I do not have a tremor any longer. My strength has returned.

19. I went back to my neurologist 2 days ago because I am having burning to top of my right foot. It has happened 3 times since surgery. No redness or a wound to my foot. We had a major cool front move through a week ago. I could feel the barometric pressure changes. It felt like I had inflammation in my neck again but not as severe as before the surgery. I started slurring my words. My balance was off again, dizziness, dysphasia worsened, pain to the c2c3 area of my neck. Brain fog and shorter memory problems still a problem and blurry vision. He ordered a MRI with/without contrast for July 12. He orders a thyroid T3 T4. All normal. My husband told him again that I acted like I had a TIA.

20. I am raising 3 grandchildren and was working 60-70 hours a week, going to the gym, paling with the kids, no problems at all before I injured myself. I don’t want to file disability retirement. I am not ready to retire. I have 9 more years as anburse Director then I plan to teach nursing. It is why I got my Doctorate in Nursing in 2013. I feel I had two different things going on. I feel that I had a stroke the night I injured myself and I dislocated my C6 vertebrae. I think I am having TIAs when my arthritis is inflamed and presses on my arteries since I already have foraminal stenosis. My MRI and my CT sis not show the extent of my spine issues. All of my symptoms are gone except on the right.

21. My MRA showed a focal narrowing of the right common artery at the C6C7 that appears to be artifact but if this is real plaque it is showing very short segmen 15% stenosis overall on the axial series otherwise grossly appearing flow. Vertebral arteries appear dominant. There is mild narrowing at the origin of the left vertebral artery otherwise no vertebral artery stenosis seen.

I had c4c5 and c5c6 ACDF for herniated disc cervical stenosis and osteophytes complex impinging left and right arms. The left arm has no symptoms any longer but I am still having pain, numbness all the way into my whole right hand mildly and the right ring and pinky finger is really giving me fits. I had a car accident in 2007. I had sever pain for 3 years until I started waking up paralyzed from the neck down. The neurosurgeon did not take my C6C7 mild herniated disc seriously until that time so in October 2010 he found a big herniated disc and a huge disc fragment lying across my C7 root. As soon as I woke from surgery my left arm did not hurt. The symptoms were gone. In 2013 I started having symptoms on my left arm again. The screws were loose at c6 so I had surgery again but this time I did not get relief, I suffered from a right paralyzed vocal cord that was diagnosed by my ENT 3 months later. I was in severe pain 3 months post op. The neurosurgeon stayed he did not put big enough screws in my neck so all we’re loose. He wanted to immediately go posteriorly and redo the surgery and I refused. I found me a physiatrist and got pain management and was able to go 5 years without surgery until I had a phone between my right ear and shoulder. I reached suddenly for something on my desk and twisted my neck. I feel and heard something pop in my neck. I also felt pain at the base of my skull that went over my head into my eyes. I saw spots. I really do not remember how long I sat there before I was able to deal with the most God awful headache I had ever experienced in my life. I thought that I had broke a screw. There was a hump where my neck and shoulders meet. I could touch it and it sent pain into my toes and made me dizzy. My whole right arm was hurting and feeling numb. I worked 6 more hours, went home and took Percocet and Robaxin and went to bed. When I woke the next morning I was dizzy, nauseated, and my whole right side including my right foot was weak I was slurring my words, I could not swollen, and felt like my whole world was uneven. My head felt like a bobble head like my neck was broken. I called my physiatrist who ordered a MRI. Nothing serious was noticed so I was sent to an orthopedist who diagnosed me with right thoracic outlet syndrome. He examined me and set me up for surgery. Wishing the next week I got very weak, my thighs felt like I had worked out to much, my left arm and hand was now beginning to hurt and get numb in my left ring and pinky fingers, I was waking into walls, I was falling, and my hands and feet were turning purple. Especially when the barometric pressure changed. It sounds crazy I know. My husband said I was acting like his mother did when she had her stroke. I could only stay in the bed. When I got up I had to pick up my head first it was so unstable feeling. It was tender to touch, I got hoarse and lost my voice for a month, I was aspirating on food not liquids and I felt like I was going to hit the floor when I got up. I went back to the orthopedist and showed him my symptoms and he said it was not TOS. By that time I was in so much pain my family doctor told me to go to the er. The ER doc put me in the hospital because my BP was 150-115, I had clonus to bilaterally lower extremities and could not stand up or walk. They did a brain scan that said I had hemosiderinbin my left cerebellum but not to work about it. Over the course of 4 days I had multiple MRIs CRT and cervical X-rays. The neurologist that saw me said my symptoms suggested bilateral radiculopathy and myopathy but he was confused on some of the other symptoms I was also having. The NERVE conduction tests said I had axon issues in my elbows and the neurosurgeon wanted to operate on both elbows. They said I had anxiety and to follow up with neurologist in 2 weeks. I did and it took a month to see him and another month to see my neurosurgeon that did my last surgery. I was discharged. The neurologist that I followed up with did NErve nerve conduction tests again and all it showed was left carpel tunnel. The hemisiderin was gone and my MRA was normal. When my neurosurgeon went in to do my surgery he told my husband that he also removed the old hardware at C6C7 and put my vertebrae back into place because it was twisted. I no longer have the hump in the back of my neck and I no longer have the feeling that my neck is broken.

I still have right sided weakness arm and leg. I cannot write, type, and I drop things. The problems with the left side of my body is gone. Last week when a storm came and the barometric pressure changes I got real nauseous, my balance was off, I got real weak, dizzy, could not swallow, and slurred my words. It felt like something was squeezing my brain. I stay hot and sweat profusely too. My neck felt inflamed. It lasted about 36 hrs and went away. Not nearly what it was before my surgery. Could I be having TIAs or had a stroke? My husband still says I act just like his mom after her stroke and when she had TIAs. I went back to my neurosurgeon a couple of days ago because now I am having severe pain to the top of my right foot lasting 30-45 minutes. Feels like a hot iron is laying on my foot. The neurologist has ordered another MRI with and without contrast. All my labwork is normal and I am as healthy as a 20 year old.