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  • Jtal19305
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    Post count: 43

    I just want to add the burning pain in the sole of left foot started as very severe burning pain in what seemed like the whole bottom of the foot. Today, a little less than five months later, the burning pain is now mainly in the heel of the left foot and less intense but still very aggravating.

    So is this an indication that the cord irritation is getting better? Is this something my body can come back from and expect to be “normal”? Or am I looking at a permanent injury? I imagine doctors avoid retraction for a reason but I wonder why my doctor would even entertain this surgery knowing any amount of retraction may cause permanent pain. He indicated the area was very compressed and he felt confident in time the pain would go away. When someone is in pain everyday like myself and I was not in this pain prior to surgery, you can imagine the frustration and concern I have. I am looking for a hope but also the truth on what to expect.

    I also get some burning pain in my left calf. There have been fasiculations in my calves that started two months prior to surgery and I still have them but they come and go.

    Since I am five months post surgery I would imagine the vertabrae are fused together. I understand it may be two years before that area is fully healed and I will not feel like myself until that time period.

    Thanks
    Jerry

    Jtal19305
    Participant
    Post count: 43

    Hello Dr Corenman

    I appreciate your responss to my questions. I would like to know if the cord irritation which has caused brining pain is likely to get better over time? I can say the burning pain in my foot has gotten better over five months since my surgery but it is still there. Can anything else help it get better other than just time? Ive had an outside expert review the decompression and he thought it looked sufficient. I will ask my doctor again about his technique. I am told this type of nerve pain could take years to dissolve away.

    So the pain I have in my outer left thigh requires some more imaging and diagnostics. If the decompression were done correctly at L2/3 I should feel better by five months post surgery? This area may require revision surgery based on the Mri , x rays and other diagnostics. What is the best approach to further decompress L2/3 if there is something other than scar tissue impinging the nerve root? How long should I wait?

    Thanks again for your help. I will keep strong and continue to seek a solution to my pain no matter where it may take me. I need to find the best medical professionals who are committed to helping those that need it.

    Thanks
    jerry

    Jtal19305
    Participant
    Post count: 43

    The surgical report indicated that the surgical approach to t12 l1 was from a posterior latereal approach. I imagine it was far lateral as my incision in my back was 4-5 inches down the center of my spine. L2/L3 hemi laminectomy was about an inch incision slightly off to the left side of the center. For t12 l1 the surgical report indicated he did not touch the dura sleeve or spinal cord and no retraction was necessary to inset the cage. I also asked him this in person and he stated the same thing. Neuro monitoring was performed during surgery and nothing unusual was reported. The surgeon was entertaining an anterior approach but felt that approach had greater chance for issues

    I’m not a surgeon so I would not know if the fusion with interbody 10 mm peek cage can be inserted without manipulation of the cord (thecal sac). Can you shed light on this? If it is likely he had to manipulate the cord would that explain waking up with the burning pain in the sole of my left foot? And does this get better or heal in time? I am dealing with multiple pain patterns that I’m trying to diagnose and find a solution. It’s hard to get feedback from my doctor as he is probably protecting himself and is biased. I want to believe him but why the protracted pain in my feet, back of calves and genital area. I also noticed from the ct scan that he did not remove any of the bone spurs behind the cord that are still encroaching the canal area. Although I’m decompressed from the posterior side, I don’t know if the Spurs are causing issues. I had one doctor indicate it would be too risky to get them from the posterior side as retraction would be necessary and they are so close to the cord. Also he stated if I have been living with them for so long, the may not be the issue.

    I feel a little better with your assessment that fusion is preferred after that procedure I had at t12 l1 as the facet joint is removed and the area could become unstable. I also recall my doctor indicating I was slightly over kyphotic at that level and fusion would prevent any collapse. Other doctors indicated fusion should of been avoided and just do a plain laminectony or disectomy. I have also wondered why he didn’t approach from the side just to remove the bone spurs. I have good cat scan images (saggital and axial) of these spurs. Since the vertebrae are now fused, would the spurs dissolve on their own? I imagine the spurs were forming as the body’s means of self correcting an instability that was forming at my thoracolumbar spine. I did have slight curvature of the spine (scoliosis) toward the left (recall curve being not more than 15 degrees). Although scoliosis can cause rotation as well of the spine. I suppose my body found an equilibrium point for a while but eventually due to all these factors and a bad back due to genes things went south quickly.

    So is it best to leave the hardware in place? I’m told by my physicians assistant that the fused vertabrae will be very strong. I understand adjacent segment disorder and I hope I can avoid it by keep healthy body weight and strong core. I’m only 48. Of course, this would be easier and so would my life if the nerve pain and foot burning fully resolves. So I take it the best thing to do is leave t12 l1 alone.

    As for L23, I have not had post surgery standing x rays. Are these the flex extend 3 foot x rays? I have an appointment with my doctor who did the surgery so I will ask for these. I must admit I not feeling confident he has a good diagnostic plan for me. This is why I’m seeking outside opinions and help form other specialists. I have had post surgical mri and cat scan but not standing up if that is what you mean. I would imagine I am due for another Mri and/or cat scan. Is one better than the other ? Would a ct myelogram be better although I know doctors do not like to order these unless planning for surgery?

    The pain in my left outer thigh comes and go; sometimes it is very minor while other times it is very numb and sharp. If it’s scar tissue adhering wouldn’t the pain be more constant? This is the area where I think I can find benefit but I must follow the appropriate algorithm to diagnose the issue. If it is determined to be punched by something other than scar tissue, is the approach directly over the existing incision or can it be a transforminal endoscopic approach? Or something else as to minimize more scar tissue and a procedure that can decompress that side ares without requiring fusion? I had one orthopedic surgeon suggest an alif st L23; I was skeptical.

    I would love to visit your clinic but you are far away from me. I am looking at university of Pennsylvania spine doctors as I will be in that area soon. I am in south Florida now but cannot find someone with the attention to detail and knowledge such as yourself.

    Does your clinic offer a service where mri / cat scans / reports can be reviewed with a telephone or Skype consult? I understand it’s best to be fully examined in person with new imaging but wanted to check. I appreciate your time and attention into my case. I’m ready to do anything to find solutions to my issues and get pain free. I believe if I have the right medical professionals working for me I would have a plan to solve this. I will keep at it until I have fully resolved this. I deserve to be better.

    Thanks
    Jerry

    Jtal19305
    Participant
    Post count: 43

    Hello Dr Corenman

    All of my physical tests and reflex tests were normal. My left ankle reflex was faint but still there. After further review with another independent expert on spine MRI, it appears that the decompression of L2/3 (left side hemi laminectomy) was not complete. There was evidence of something (e.g. scare tissue, bone spur, ligament, etc) pressing on a nerve root on the left lateral recess area. The surgical report stated that the part of the facet joint was removed on the left side but the MRI did not show that. So the pain that I still have on my left anterior thigh may be due to the inadequate decompression. He suggested a selective nerve root block at L2/3 to see if the clears up the thigh pain. If it does, then a steriod injection. If that doe not work, then finding a surgeon to decompress that area without fusion.

    What are your thoughts about revision surgery? In a case such as I described where there is a definite compression, can revision surgery over the same area resolve the issue? I understand the concept of scar tissue but if there is something compressing a nerve, something should be done to remove it while minimizing scar tissue.

    The expert thought a spine fusion at t12/l1 may have been too drastic for someone my age (48). His suggestion was a laminectomy or just a disectomy to remove the protrusion. I could only recall that my surgeon thought that area of my spine would be unstable due to some khyphosis. In any event, I cannot undo what as done. He felt that my conus was most likely irritated during surgery, and the foot, back of calf and genital pain which are the s1, 2, 3 nerve roots are in that area where surgery was done. Its a little strange that the pain is mainly on my left side but that is the side the interbody cage is placed in. The expert said it may take many more months for things to settle down and the pain to reduce. There were also good size bone spurs behind the canal at t12/l1 which were not removed during my surgery. The expert did not know why the surgeon did not address that. I could not tell him other than maybe he felt it was too risky to move the cord in that area to get around to the spurs. Again, the expert recommended a selective nerve root block bilateral at t12/L1 to see if that resolves any of the foot, calve, genital pain. In a good note, the expert felt the decompression of t12/l1 did resolve the bilateral leg weakness, and there was a little more room created by the laminectomy disectomy and fusion at t/12/l1.

    So I am a bit upset at myself, and my surgeon for getting into this position. It appears some of my surgery (t12/l1) may have been overkill, and the other part was not done sufficiently. So, I am left (5 months and going after surgery) with pain in my left anterior thigh, left back of calve, bottom of left foot and some pain in genital area as well as fasiculations in my calves. I am looking at the prospect of revision surgery to clean up and properly decompress those areas. Unfortunately, I was not as educated and informed prior to my surgery as I am now. I realize how important knowing what is going on, and working with the right surgeon to do all the necessary pre workups to come up with the best surgical plan. Also, having a surgeon that is good and thorough at what they do is critical.

    So, I would appreciate any advice on how to proceed from here. I can chose from three areas to have revision surgery – the Philadelphia area (where I work), South Florida (Where I had my original surgery, and have a condo) and Detroit Michigan (where I grew up and have family). I need to select the best practice, and was told to look at a teaching hospital. Any suggestions or advice on proceeding with revision surgery, and the what type of outcome I can expect if I have the best team/practices in place.

    I know this is a long reply, but please understand that I am desperate to fix my situation. I never expected to be in this situation. I trusted my doctor, and realize I was not treated with the best care possible. All along the way after my surgery, my doctor has ignored my calls for help only telling me to give it more time. He did not look at the post MRI images in the detail necessary to see the issues. He did not suggest any diagnostics like nerve root blocks, emg/ncs, etc. I have been through your site, and information. I realize there are many levels of surgeons out there and to be very careful on selecting someone to operate on you.

    Any help/guidance would be greatly appreciated.

    Thanks
    JERRY

Viewing 4 posts - 37 through 40 (of 40 total)