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Viewing 6 posts - 31 through 36 (of 64 total)
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  • Jellyhall
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    Post count: 91

    Thank you Dr Corenman,
    I was born hypermobile and have been ‘diagnosed’ as this by a neurologist who got me to show him some ‘tricks’ that I can do. I have not been diagnosed with Ehlers Danlos Syndrome though. However, I do wonder if this if why the neurosurgeon that I saw said he would have to fuse the two levels above my existing fusion.

    He did know that I have this problem because we discussed it before my ACDF because my wound tore away from the staples and opened up after my lumbar fusion and then got an infection. He was very careful to use many steristrips in various directions on my neck to avoid that happening again!

    I also have a congenitally narrow spinal canal, which doesn’t help.

    Jellyhall
    Participant
    Post count: 91

    Thank you Dr Corenman,
    The ‘white’ is actually in the bone of the vertebrae, but at/near the endplates. Any other ideas? Would there be fat in the bone?

    My lower back pain is not as bad as when it led to my fusion. I intend to try to hang on for as long as possible.
    I have been offered steroid injections in all three levels of my spine, but I have read that they can cause damage/degeneration to the spine so I am not keen to have them. I already have enough degeneration throughout my spine.

    Jellyhall
    Participant
    Post count: 91

    thank you for your reply Dr Corenman.
    You mention that fusion is generally performed for instability, malalignment and local discal pain.
    I have been told that the fact that I have lax ligaments and am hypermobile is probably at least part of the reason I have so much degeneration throughout my spine with all discs degenerated, black and flattened.
    Would this change your thoughts for only a decompression and not a fusion?

    Thank you again, in advance.

    Jellyhall
    Participant
    Post count: 91

    I also meant to tell you that the neurosurgeon did say he was worried that if he fused more levels of my spine, it would cause other levels to also need attention. He said that because the whole of my spine is very degenerated, fusing other levels would put more strain on aleady weakened levels and cause a domino effect throughout my spine. This sounds horrendous and very worrying.

    Jellyhall
    Participant
    Post count: 91

    Thank you Dr Corenman, for your reply.
    It is reassuring to hear that you would only recommend microdiscectomies, which is what I wished I had asked the neurosurgeon about during the appointment, but it was rather rushed.
    I wonder if the reason he said that he would have to fuse both the new levels and extend the existing L4/5 fusion to include them could be because my spine is not quite in the normal position.
    The fusion of L4/5 was done for a spondylolisthesis although the surgeon has managed to pull the L4 vertebra back somewhat in relation to the L5.

    Also there are whitish marks on the endplates of the three vertebrae either side of these new disc herniations. I am wondering what is causing this, and am hoping that you will be able to enlighten me. It is most obvious on the T2 images.

    I appreciate so much being able to ask you these questions.

    Jellyhall
    Participant
    Post count: 91

    Thank you for your reply Dr Corenman.
    I am pleased to say that I had an urgent full spine MRI scan yesterday and will be seeing a neurosurgeon on Monday.

Viewing 6 posts - 31 through 36 (of 64 total)