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Viewing 6 posts - 7 through 12 (of 14 total)
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  • Heathry76
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    Post count: 16
    in reply to: Surgery candidate? #27226

    Thank you. I agree.

    Heathry76
    Participant
    Post count: 16
    in reply to: Surgery candidate? #27223

    I don’t know. Even my physical therapist said I need surgery. I just wrote him a email saying I still think its my neck. I’m confused also. It was a bad appointment. My CD of MRI didnt work so he basically booted me and said reschedule. Then, because I traveled to Boston in a blizzard to see him and stayed at a hotel he found a way to get the MRI electronically. He even then was pretty dismissive but did some Neuro tests but said since the cord isn’t compressed on MRI surgery won’t help. I told him the lesion is new and from cycling, so common sense data it will keep happening. I’m not sure he understands what cycling does to the neck, and swimming. I won’t get better until they fix it. My family is telling me go elsewhere or back to first surgeon who was much more respectful. I’m confused also. I’ve been trying for months to get an answer. He didn’t even refer me to neurologist but said go to one. It was not the experience I was hoping for.

    Heathry76
    Participant
    Post count: 16
    in reply to: Surgery candidate? #27219

    I absolutely did have normal reflexes before. After the PT incident this all happened. I got worse, way worse. That’s why I went to the neurosurgeon. My neck has pain and still does. It hurts. When he tested my triceps he asked if they hurt. I said not at all but they had nothing, no strength. My lesion on C5 is new in 2017. It was not there in 2016. I have no other cord signal changes. He said my lumbar herniation is a big one in the central canal but that’s more concerning to him He said than my neck. Before cycling I was fine. I was normal. Now my situation is progressing but he said he doesn’t think it’s from my neck. I’m so confused. I have spastic legs and arms and a heaviness over my shoulders and arms. He saud they need to do a spinal cord stimulator or whatever. I’m not sure he understands how cycling effects the neck. I’m going to need a neurologist now to sort this out. I never had a problem until I had a neck problem. I’m so lost. I was training for a bike race up Mount Washington and was in prime physical shape. I wrestled in highschool and college, was a competetive swimmer and trithleye, played ice hockey, ran and competed in body building. Then now this, from cycling. None if it makes sense. The guy I saw was highly recommend and a top neurosurgeon in Boston. I still don’t think he’s right.

    Heathry76
    Participant
    Post count: 16
    in reply to: Surgery candidate? #27214

    The results of neurosurgeon consult were to not do surgery as he does not think it’s causing my symptoms. I have positive clonus in both feet, positive Hoffman’s in both hands. His opinion was this a cumulative cord injury issue over time. I didn’t have these reflex issues during my last consult or in October. So, he said maybe nobody checked? I don’t remember if they did, but they did check reflexes. He asked me if I’d ever been paralyzed. My triceps muscles have no strength at all. So, next stop neurologist. Just thought I’d update you. None if this makes sense. In October And over the past year I had neck pain, now I can barely walk. Brain MRI was clear.

    Heathry76
    Participant
    Post count: 16
    in reply to: Surgery candidate? #27198

    Thank you!!

    Heathry76
    Participant
    Post count: 16
    in reply to: Surgery candidate? #27195

    Hmm, interesting. Thank you. This information is very helpful because I do have a herniated disc at C3-C4 causing mild foriminal stenosis which is an osteophyte. It’s mild compared to my C5-C6 issue and honestly isn’t a surgical problem on its own. I think your right about the lumbar but I’m only having the issues because I’ve been unable to exercise because of my neck. So, hopefully fix neck so I can rehab others. No more butterfly for me, at least for awhile. I didn’t have any issues until I had neck issues, so, I blame my neck. Thanks again. Your knowledge and feedback is helpful. Knowledge is power!

Viewing 6 posts - 7 through 12 (of 14 total)