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in reply to: How To Get A Diagnosis #11506
Dear Dr. Corenman,
My question this evening is concerning the multiple lucencies in vertebra C2 and T2. I had completed all labs for multimyeloma and they were negative. My daughter’s boss’s husband is an oncologist. After reviewing the scan he too, believes as well they are benign. The neurosurgeon I see on campus has suggested an MRI to be repeated in 6 months to be safe. He said that a bone biopsy was, “No walk in the park.” I have also seen a “movement” neurologist (Upper right quadrant pain and neuropathy). He ordered a brachial plexus MRI w/wo contrast for the neuropathy and pain in my right upper quadrant. The results were no lesions, no compression, musculature was normal, right lung apex was unremarkable. No lymphadenopathy was seen. The report again noted multiple hemangioms/lipomas redemonstrated with C2-T2.
Is it possible the multiple hemagiomas are causing weakness and pain in my neck, right arm, right shoulder and shoulder blade? The diagnosis that was given before the MRI (brachial plexus) was brachial plexus neuritis. This was after an examination. My husband said that every time I was tested for sensations on my right side with the pin tip I felt it was the dull end. I know the lower portion could be from my spondylothesis or previous schwannoma surgery, but this upper body pain has me unable to drive a car, blow dry my hair, etc…
The neurosurgeon said he can fix the neuropathy for my legs and feet with invasive bone fusion, but I am still trying to fine answers for this debilitating pain in the upper quadrant. He himself was at a loss. Many, Many thanks in advance, Maryin reply to: How To Get A Diagnosis #11218Dear Dr. Corenman,
Thank you for all your suggestions and directions it has been very helpful. I am still bouncing back and forth in the system. I am due to have a CAT Scan of the L5-S1 next week to view fractures.
I had a cervical CAT Scan on the 15th, the neurosurgeon asked if my doctor had informed me of the lucenies. I had not been notified. I requested my report from member services today and it read, “Numerous small lucencies are noted throughout the vertebral bodies and posterior elements. Findings raise the possibility of a marrow replacing process such as metastatic disease or multiple myeloma. No evidence of a pathologic fracture.
I emailed my doctor to tell her the surgeon informed me and I requested my report. She responded with ordering bloodwork for multiple myeloma. Two years and counting with no one believing me.. if I didn’t insist on a recheck for my Schwannoma I wouldn’t be as far as I am today. Does every lucency suggest cancer? Thank you- Maryin reply to: How To Get A Diagnosis #11188Dr. Corenman,
Thank you so much for your response!!! My schwannoma was on the right side. I had a laminectomy of L1, L2 and portions of L3. They started gradually after the schwannoma. The debilitating pain was gone. I did have issues with my back, but the paled in comparison. I was surprised that the sensation that lingered was my left second toe (glass sensation). I was surprised because it was my right side that was affected.
Last week I was sent to a new neurosurgeon and he confirmed your thoughts of L5 nerve injury, but he told me that the feeling of “walking on glass” is not related to that specific area. I should be having the sensation on the top of my feet?
You are an absolute blessing with this board. I have had so many responses from physicians where I believe they feel it is psychological… but the pain is so very real.
Thank you so much,
Mary -
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