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  • Bridget
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    Wow, thank you for your quick reply! My original surgery (9-23-2015) was at L5/S1. Tlif with spinal fusion for level 4 Spondylolisthesis and 2 Pars defects. When pain continued I was told it was the hardware because I’m little. 5′ 0″ 106lbs. Pain increased greatly after hardware removal during a second surgery in January of 2017…he also for some reason did a lamenectomy. With pain increased I was referred to Pain Management. I went for a second opinion to a Neurosurgeon. I was diagnosed with failed fusion and now no hardware to support it. I was advised not to have another surgery yet. The next surgery will be much more invasive and require fusion from the front and the back as well as fusing the next level up. I was told I had a 50% chance it would help my pain and a 50% chance it could make things worse. That was October 2017.
    The first epidural injection I received in Oct 2017 helped my pain level by 80% for 8 weeks. It had worn off completely when I returned for a second injection (1-30-2018) and was injured. It is interesting that you say it was not faulty equipment as she claimed. My husband has insisted she was being less than honest about that. Unfortunately I believed her and yes I allowed her to give me the second blood patch that has caused Arachnoiditis.
    I have an MRI from March of 2017 showing no Arachnoiditis…just failed fusion and a couple of bulging disc’s. And now I have this MRI (2-19-2018) showing that I have Arachnoiditis. It even shows the blood patch because it was injected just 1 week prior to the MRI (given with and without contrast).
    I am no longer interested in a referral. I have researched and there is no one in Missouri that has your level of experience with it. I would like to come see you. My husband will build me a pallet in the back of his van and we will drive.
    I am desperate to get a healing plan started. I have read enough in the last week to know that I will probably be disabled. But I have also read that if it’s treated ASAP the progressive nature of the injury could be stopped. I will do anything in my ability to ensure, that future, instead of a hopless one. Honestly I was already disabled so I’m not expecting miracles…but I am going for at least some quality of life more than 80% of my days spent lying down.
    Do you have room for 1 more patient? If yes when should I come?
    Oh and so far the only treatment I have had is a bolus of steroids, IV fluids, and a bolus of Toradol for the severe headache. Then I was instructed that when the headache returned I was to start the pack of methylprednisolone they sent me home with from the emergency room. The headache was back full force in less than 24 hours. Tomorrow will be the last day of steroids, I will have just one more pill to take. I am frightened that the headache will return in full force once the steroids are out of my system. And I’m not sure what treatment will be at that point. No one here seems to know either.
    Also I have Blue Cross Blue Shield and so far they have covered every procedure I have ever had done, including this emergency and all of the procedures required. So I am certain they will cover my visit to you as well!
    Thank you again,
    Bridget

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