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  • bran808
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    Post count: 3
    in reply to: ACDF Complications #30570

    Ok, I will try contacting different University Hospitals. I tried Straub but they asked if I had previous surgery and when I said yes they said sorry we cannot assist you. It sounds ridiculous but for some reason Hawaii NS will not see another NS’s patient. I’ve had one doctor who just moved to Hawaii give me a second opinion. His first consultation was to do a revision. Then subsequently after he spoke with the first surgeon it turned to wait and see.

    I appreciate the advice and hope there’s a chance at living normally. Thank you very much!

    bran808
    Participant
    Post count: 3
    in reply to: ACDF Complications #30565

    I’m sorry I completely missed this reply due to life circumstances. You were right it came out to be Multiple Sclerosis. Being treated with Copaxone and Ampyra.

    The ACDF’s have not resolved itself. NS still insists that nothing is wrong but the pain and numbness have been getting significantly worse over the years. When he last looked at my MRI (late 2018) he stated that there is no compression of the nerve canals. I’m concerned that an MRI is a snapshot in time. So as the body moves throughout the day so does the compression of nerves.

    I really need to consult with surgeons in CONUS. According to the NS, the pain I’m experiencing is an acceptable byproduct of surgery. I disagree wholeheartedly. Only problem is that I’m not sure how I would go out about seeking care outside of Hawai’i, especially with insurance. I was deemed 100% disabled and was put on SSDI in 2017 and backdated to 2014. I’m on Medicare at the moment. I’m turning 39 in a few days…I don’t want the rest of my life to be like this. Even if the pain can be reduced I’d welcome that. Any suggestions on how to move forward with seeking care out of state?

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