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  • Gary_C
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    Post count: 3

    Dr. Corenman,

    Again, thank you for your response and interest. Just via the web, you have shown a more detailed level of interest in the specifics of my daughter’s condition than have almost any of the large number of specialists whom my daughter has seen. Most have performed at best a cursory examination, read over the report from the radiologist of her most recent MRI, and wished her “goodbye and good luck.”

    We have just spent the past 6 weeks away from our home in Florida while my daughter was examined by a neurosurgeon who asserts to be “the world’s leading expert in treatment of nerve pain” – and his credentials appear to be outstanding. Based upon his clinical exam and his open-MRI diagnostic guided injections, he recommended piriformis release surgery and neuroplasty to several nerves, which he performed a few days later. To date, my daughter’s condition is worse than before surgery, but he has told us that nerves can take months to heal. I will be discussing other underlying diagnoses with him tomorrow, including adhesive arachnoiditis.

    If we do not shortly arrive at a definitive diagnosis, I would be very interested in continuing an investigation of my daughter’s condition with you – with all the details. However, I don’t think it appropriate to take up your forum with such details. If okay with you, I would like to contact you by mail at your location in Vail. If we have still not made reasonable progress to a definitive diagnosis, we would be interested in making an appointment – more likely several appointments with you in Vail. As we have done with this California trip, if appropriate, we would travel to Vail to see you – if you were willing to really get to the bottom of my daughter’s difficulties.

    She has no life left, so I am willing to go to great lengths.

    Gary_C
    Member
    Post count: 3

    Dr. Corenman,

    Thanks very much for your reply. I recognize that I did not give you a full report on my daughter, but I assure you that I have read virtually everything available on the web regarding adhesive arachnoiditis, and my daughter’s symptoms match those most often cited. She has been seen by an orthopedic surgeon. Her MRIs and symptoms have been reviewed by her prior surgeon, the head of Orthopaedic Surgery at Georgetown University. She has been examined by a private neurologist. She has been examined by a neurologist at Mayo Clinic, Jacksonville – who told her it was in her head, including her inability to walk. In July, she underwent pirifirmis release surgery and neuroplasty to several nerves. I do not doubt that the piriformis release was appropriate, but, to date, her walking ability remains essentially non-existent and her pain remains greater than before the piriformis surgery. So, I suspect that she has an as-yet undiagnosed underlying problem. A couple of weeks ago, I suggested to the neurosurgeon who had performed the piriformis surgery and neuroplasties that she might have adhesive archnoiditis. He immediately went to his office to review her latest lumbar MRI from Dec 2010. He told me that the MRI does show “some abnormal nerve clumping.” He also told me that adhesive arachnoiditis would be a “bad diagnosis” – which I took to mean that adhesive arachnoiditis is a debilitating condition with no real cure – only pain management.
    We are seeing this neurosurgeon again tomorrow and I will be pressing him if adhesive arachnoiditis is his diagnosis – in addition to piriformis syndrome.

    In any case, I will want a review of her MRI by a qualified radiologist. I will be contacting those who you suggested. Thanks so much.

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