Jellyhall
Participant
Post count: 92

Thank you Dr Corenman.
Some more questions;

Is it possible to have cord injury without high signal on the MRI scan?

The first neurosurgeon that I saw left me for over two years with cord compression while he ‘waited and watched’. (I am in the UK!) I was seen at 6 monthly intervals, and each time by his registrars and they felt that the symptoms I had indicated that I had myelopathy and should get on with an ACDF, but when they went to talk to him, they would come back and say that he said we should continue to wait and watch. This was without him coming into the room and examining me himself or explaining why he felt that we should continue to wait. I got another opinion and that neurosurgeon said that we should get on and do the surgery because ‘things were very tight on my cord’ which was being pushed back and indented. (You were kind enough to also view my MRI scans and you felt that my neck needed attention.)

How is a permanent cord injury managed?

I still have most of my pre-surgery symptoms and get stiffening spasms several times every day when both legs either go stiffly straight or bend upwards with tight muscles. When this happens my feet, but especially my right foot, turn inwards with my big toe pulling tightly upwards. Also I get tight muscles around my abdomen which causes my back to arch up off the bed. I also get a mobile phone type buzzing in my legs (mostly right leg) and the feeling of cold water being splashed on me. I also have pain and symptoms in both hands and arms (mostly on the right). I think that this is coming from the levels below the fused levels, which were C3/4 and C4/5. I also have tingling and nerve pain in my feet, legs and buttocks.

I am seeing a neurologist soon to discuss my symptoms with him. I have not had a nerve tesst done since the surgery, but I assume that he will do one to check my reflexes etc.