Longbranch
Participant
Post count: 5

Dr. Corenman
I did not realize that you had answered me. Thank you so much for your answer which has just confused me more. I have been waiting for the “neuromuscular science team” to reply which was supposed to be early last week and as usual nobody has got back to me yet. They are asking me questions about how long I have been on statin drugs if that could be causing my muscle pain and as I mentioned to you they said my muscles are still very strong even though I feel very weak and fatigued all of the time!!!
I am beginning to feel that there is no “light at the end of the tunnel for me” and I just don’t understand why not? So you are actually saying that this Nerve conduction study and EMG test might tell me what is going on in my muscles but it is not going to help for my neck pain. I have been thinking all along that it was connected maybe?

The pain seems to come from my neck and run down into my shoulders (particularly my right one more than my left) which is where I have the small tear that I mentioned in my last note and goes down my arm, my elbow, into my wrist and into my hand. My hand in fact both my hands have been going numb off and on for years, my ring and my pinky fingers. My shoulders have ached badly for years (all of the muscles ache badly, do my shoulders hurt worse than my neck…I don’t think anything hurts worse than the chronic pain in my neck!!!
I have had all of those shots that you suggested years ago, nerve ablations, you name it I have had it and didn’t get much relief at the time!! I never did have a discogram, I will do anything to get a proper diagnosis and yes you are correct I don’t know if the last few neurosurgeons have given me the correct diagnosis either if you say that the D-trax is not going to work. I did go to an Orthopedic surgeon who was going to do the surgery but the problem for years is nobody seems to be 100% sure if I am actually fused at C6-7 or not. I seem to be passed around from one doctor to another. He said he thought I was fused and the next time I came back to him he didn’t even seem to know why I was there. I told him he sent me for another scan and then when he went to study the new scan he came out of his office and said “oh you are not fused”, I didn’t feel very confident even though he is very well known in the state that I live which is Michigan. He gave me the paperwork on a fusion to be done this time going in through the back (his paperwork says …indication for a surgical intervention in the form of a posterior cervical decompression and fusion to treat her nonunion of fusion. He did tell me to go to an orthopedic surgeon for my shoulder pain!!!! I just remembered that!!!! He is an orthopedic doctor!!! (I give up), this has been going on for so long, things come up all of the time, no wonder I am confused!!!
I took that new scan (because it just seemed so “matter of fact” that one minute he remembers the next minute, oh yes you are not fused” to another well known “neurosurgeon” who wasn’t exactly positive either and he is the one who wanted me to get the neurosurgeon who is the one who wanted to do the D-trax surgery and we know that that got all screwed up. He made me sign a paper that said this would be the first D-trax surgery that he would be doing!!!
The pain management specialist that did the EMG test didn’t seem to know if the myotonic discharges were related to my neck but says it is related to my shoulder because there were myotonic discharges in my shoulders and most doctors even my GP seem to think it is myotonic dystrophy or myotonia congenita. Either way it is certainly not the life I want to live with the neck pain being maybe a separate problem!!!
I am so confused and am sick of being in so much pain for 16 years. I am 65 years old now and have such a wonderful life and beautiful children and grandchildren and an amazing husband and feel like I am facing a disability of everything. I am waiting for the specialist to call me back!! I have an appointment for another EMG of my arms, legs and back again because the other test was done at an outside institute. It is in a few weeks!!I will certainly try an orthopedic surgeon or orthopedic doctor as you suggested and thank you so much for taking the time out of your busy day to answer me. She is saying maybe she doesn’t want me to have that done now because in the year 2001 they saw myotonic discharges in my left arm and at that time they called it myotonia congenita.

Again Dr. Corenman thank you so much for reading this and for answering me. I do appreciate your advice and I will go back to another Orthopedic doctor as you suggested and hopefully some day I will get some answers as to what is going on. My chiropractors also have taken some good x-rays of my neck that they say I am not fused and I keep on going to get adjustments weekly but the pain never goes away.
Take care, thank you Lyn Hurrelbrinck