Hello Dr Corenman
All of my physical tests and reflex tests were normal. My left ankle reflex was faint but still there. After further review with another independent expert on spine MRI, it appears that the decompression of L2/3 (left side hemi laminectomy) was not complete. There was evidence of something (e.g. scare tissue, bone spur, ligament, etc) pressing on a nerve root on the left lateral recess area. The surgical report stated that the part of the facet joint was removed on the left side but the MRI did not show that. So the pain that I still have on my left anterior thigh may be due to the inadequate decompression. He suggested a selective nerve root block at L2/3 to see if the clears up the thigh pain. If it does, then a steriod injection. If that doe not work, then finding a surgeon to decompress that area without fusion.
What are your thoughts about revision surgery? In a case such as I described where there is a definite compression, can revision surgery over the same area resolve the issue? I understand the concept of scar tissue but if there is something compressing a nerve, something should be done to remove it while minimizing scar tissue.
The expert thought a spine fusion at t12/l1 may have been too drastic for someone my age (48). His suggestion was a laminectomy or just a disectomy to remove the protrusion. I could only recall that my surgeon thought that area of my spine would be unstable due to some khyphosis. In any event, I cannot undo what as done. He felt that my conus was most likely irritated during surgery, and the foot, back of calf and genital pain which are the s1, 2, 3 nerve roots are in that area where surgery was done. Its a little strange that the pain is mainly on my left side but that is the side the interbody cage is placed in. The expert said it may take many more months for things to settle down and the pain to reduce. There were also good size bone spurs behind the canal at t12/l1 which were not removed during my surgery. The expert did not know why the surgeon did not address that. I could not tell him other than maybe he felt it was too risky to move the cord in that area to get around to the spurs. Again, the expert recommended a selective nerve root block bilateral at t12/L1 to see if that resolves any of the foot, calve, genital pain. In a good note, the expert felt the decompression of t12/l1 did resolve the bilateral leg weakness, and there was a little more room created by the laminectomy disectomy and fusion at t/12/l1.
So I am a bit upset at myself, and my surgeon for getting into this position. It appears some of my surgery (t12/l1) may have been overkill, and the other part was not done sufficiently. So, I am left (5 months and going after surgery) with pain in my left anterior thigh, left back of calve, bottom of left foot and some pain in genital area as well as fasiculations in my calves. I am looking at the prospect of revision surgery to clean up and properly decompress those areas. Unfortunately, I was not as educated and informed prior to my surgery as I am now. I realize how important knowing what is going on, and working with the right surgeon to do all the necessary pre workups to come up with the best surgical plan. Also, having a surgeon that is good and thorough at what they do is critical.
So, I would appreciate any advice on how to proceed from here. I can chose from three areas to have revision surgery – the Philadelphia area (where I work), South Florida (Where I had my original surgery, and have a condo) and Detroit Michigan (where I grew up and have family). I need to select the best practice, and was told to look at a teaching hospital. Any suggestions or advice on proceeding with revision surgery, and the what type of outcome I can expect if I have the best team/practices in place.
I know this is a long reply, but please understand that I am desperate to fix my situation. I never expected to be in this situation. I trusted my doctor, and realize I was not treated with the best care possible. All along the way after my surgery, my doctor has ignored my calls for help only telling me to give it more time. He did not look at the post MRI images in the detail necessary to see the issues. He did not suggest any diagnostics like nerve root blocks, emg/ncs, etc. I have been through your site, and information. I realize there are many levels of surgeons out there and to be very careful on selecting someone to operate on you.
Any help/guidance would be greatly appreciated.
Thanks
JERRY