I recently had 0-C3 fusion due to CCI. I have a physical diagnosis of EDS with possible vascular involvement. I’m less than pleased with current surgeons communication and my healing process. I’ve also been diagnosed with Chiari I Malformation. Do you have other patients who travel long distances? Are you accustomed to coordinating with local physicians for traveling patients? How much experience do you have with EDS, Chiari and instability issues. I also have other spinal issues in lower levels.
