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Dear Dr. Corenman,
I desperately need your help. I am writing to you on behalf of my husband. He had L4-L5 disc replacement and L5-S1 fusion with an anterior approach on 4.11.12. He is now in worse shape than ever and we don’t understand why. We are both physical therapists so we do have a good amount of knowledge about anatomy and physiology but we don’t know where to go from here. He has had xrays, mri, myelogram, and his surgeon said everything looks fine. We have been to a pain management doc and a neurosurgeon for another opinion which is who ordered the myelogram. They both dismissed him and the neurosurgeon said because he’s not a surgical candidate, there was nothing he could do for him. I have done some research and I have come up with a condition called arachnoiditis which I believe you are familiar with. He fits the description well but we don’t have an official diagnosis. He is only 39 and is now becoming disabled and fast. He is extremely depressed because of this and his pain level never goes below a 7/10 even on his pain medication. He is currently taking 10 mg Methadone 2x day and Percocet for breakthrough pain. He has tried other meds but what he is currently taking seems to help the most. He has to get up at 4 in the morning just to make it to work by 8 because his pain is not being controlled. He has a horrible time trying to get to sleep at night but we don’t want to use ambien in conjuction with his pain meds. He averages about 3 hours a night of sleep. His pain c/o’s consist of burning in his feet and heels, anterior tib pain, lower back pain where his surgery was and he has pain with BM’s and increased urgency with urniation. There doesn’t seem to be a pattern to his pain. Sometimes his R leg is worse and other times it’s his L. After my mom and I found your website, I called your office to schedule a consult with you. Unfortunately, your office is not contracted with our insurance. Your scheduler was nice enough to refer us to another highly recommended doc, however, after calling there, this doc will not take any patient who has had a previous surgery. We are at such a loss and don’t know where to go. No one should be in this much pain especially after a surgery that was supposed to make things better. I feel we may need an experienced radiologist to read my husband’s diagnostic scans but I have no idea how to make that happen. My husband is afraid to have any other work done to him due to all of this and has not been very open to the idea of a spinal stimulator of internal pain pump. We desperately need your help! Is there anyway you could help us knowing all that you know just by responding to this message? I would be so grateful. I am so afraid my husband’s depression is going to get worse if we don’t figure out some way to help control his pain.Thank you so much!
I assume these symptoms began after the surgery and were not present before. Was the surgery performed for incapacitating lower back pain and your husband did not have leg pain?
Burning symptoms make me think of nerve injury. This could be arachnoiditis or chronic radiculopathy (see website). Does the pain change with position? For example, does flexion (bending forward) improve the pain and standing make the pain worse?
A careful physical examination and close perusal of the imaging should be the next step. With significant leg pain, it might be helpful to obtain a neurologist consultation with an EMG/NCV test to determine what injury the nerves have suffered.
If we assume that this is not a surgical problem (and this is a big assumption), then spinal cord stimulation can be very helpful. See the website for that topic. I can refer you to very good specialists for that consultation. Medication should include membrane stabilizers (see website under medications for description of those medications).
Dr. Corenman
Dr. Corenman
PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.Thank you so much for responding. The systemic/sympathetic issues began after his surgery and were not present before. The surgery was performed due to having virtually no disc at L5S1 with bone on bone and radiculopathy. The pain does not seem to change with position.
I agree he needs careful perusal of the imaging but need someone who is experienced to review them. I saw in a previous post on here you had recommended a radiologist in Denver that was experienced in recognizing arachnoiditis. Can you give me their name?
My husband did obtain a neurologist consultation and he ordered a myelogram. This doc said nothing remarkable showed up and he just wanted to send him to another pain specialist.
I strongly believe this is the result of the surgery whether it be scar tissue somewhere causing this or arachnoiditis, something is definitely not right with the symptoms he is experiencing on a daily basis.
He has tried Neurontin and Lyrica and neither have helped with his pain/symptom management. He also has localized pain in his back. He has stated to me that he feels like there is acid in his spine and that he feels that he is not fused. Have you had anyone else ever tell you that?
Arachnoiditis is relatively easy to spot on an MRI and there should be no need for a radiologist specialist to make this determination. Nonetheless, if you so desire, you can call the office and my staff can refer you to a good radiologist who we trust.
Chronic radiculopathy does not have to originate from arachnoiditis and most commonly does not. If this is CRPS (complex regional pain syndrome-the new title for RSD), this diagnosis is made by history, physical examination and injection testing using sympathetic blocks.
Now-if he has lower back pain as his primary complaint, he needs an FBSS workup (failed back surgery syndrome). This includes understanding if the correct initial diagnosis was made and the initial workup to get to that point, how the surgery was performed, how success the surgery was (did it do what it was supposed to do) and if there was further problems that developed after the surgery healed. There are other factors but those are the basic items to be looked at.
Dr. Corenman
PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books. -
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