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  • Moonraker
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    Post count: 2

    I had an acdf February 2015 c5-c6 using 4 screws, a plate, and a spacer. Horrific nerve pain stopped but have had chronic pain nearly ever since. The original surgeon left the practice one month after my surgery. Every time I went in I had someone different and they all said I was fusing. About 2-3 months after the surgery the muscular pain became unbearable. I had another MRI done and the new doctor at the same clinic never went over it with me. He said nothing was wrong. No one would help me. I found out later my bone spurs where never shaved down either. It wasn’t until spring 2016 my new physical therapist brought to my attention the MRI report indicated a screw may or may not be loose. No one would see me as a new patient since I had neck surgery already and I have been unable to find any relief or help besides learning to stretch out my whole body as now my hips are always rotated and my leg muscles hurt – I hurt everywhere. Finally a surgeon at a new facility caught it on regular X-rays a screw was indeed loose and I have never fused. After MRI and CT scan he indicated 3 screws are loose. We tried facet joint injections and it gave me relief for almost 2 weeks. He is recommending going in from the back adding 4 more screws, 2 rods, and a part of my hip to stabilize my neck and let it fuse. I am scared and very upset all these other surgeons I have spoke with have brushed me off as if I am crazy yet this surgeon saw on normal X-rays in the office there are problems. I am very pleased he took the time with me and actually found the problem – he said there is so much movement in my neck. I would like to know if this sounds like a good option for me? Also, is there anyway I can hold the original facility responsible in some way for blowing me off and telling me I was fusing when I was not and never telling me I may have had a screw loose and the fact they never even bothered to check – this was 5 months after the surgery. This has been so difficult on me physically mentally and emotionally and I am very upset with how they handled my case. I felt as if I was being shamed when I went in looking for help and pain relief. Instead I had to make trips to the emergency room to get any form of relief. Lastly, pillates seem to be something which will benefit my overall tightness of my body which is now so out of whack – would it be safe to do pillates while I am figuring out the surgical route to take? Thank you so much for your time. I want to have some quality of life and not have to take pills which don’t help much but are only thing I can seem to do so I can function at work.

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    I find it hard to understand that no one had see you since you have had a failure of surgery. Half of my practice is revision work and I am not the only one. It bothers me that you could not find someone else until you found this surgeon. Unfortunately, it is bad care to ignore your lack of fusion. You did not have progressive neurological loss thank goodness.

    You have a pseudoarthrosis (lack of fusion) of the level (or levels) that were addressed. This is not too uncommon and can be repaired by another surgery. Some surgeons will go through the back of the neck and some will repair this by going back in the front. I look carefully at the MRI, X-rays and CT scan to determine if one approach is better than the other. There are rare occasions that both could be necessary.

    The good news is that the repair should help you relieve some or all of your current pain.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
    Moonraker
    Participant
    Post count: 2

    Thank you so much for your response! This has been a nightmare. The surgeon who did my surgery left Spine Team one month after my surgery so I was bounced around to different people each time I went back for an x-ray follow up. After being brushed off by them. I had sought help from another place and they had me do a series of tests including a myelogram and when I met with that neurosurgeon to go over the tests he said the bone spurs which were never shaved down was the cause of my pain and sent me to pain management to get injections. At that time it had been roughly 9 months after surgery and said I was still healing and I would probably need another surgery in the future but I needed to wait. He said we need to buy me time basically. After the series of 2 injections (which kind of helped with swelling) I asked to do physical therapy again and have been pretty much ever since with a manual therapist to help with pain. I have sent my MRI and CT scans to other doctors which have been recommended to me and they straight up told me no I don’t need surgery and wouldn’t even see me. I have been trying to get someone to order me new sets of scans for over a year now and even my pain doctor told me it wouldn’t matter even if I had a loose screw and that I will never be pain free again but refused to give me even muscle relaxers. It has been a very humbling and frustrating experience to say the least. I went in to Texas Back Institute and was told they would just do X-rays and send me off for MRI and so forth and then I would meet with a neurosurgeon to go over the results. After getting the initial X-rays done they came back in and asked me to do a few more where I turned and looked up and then down. A neurosurgeon did then come in and speak to me on my initial visit and told and me he can tell I have not fused and can see halos around some of the screws (and even showed me the images which I was so grateful for!). This has been the first time in nearly 2 years of searching for answers anyone has actually listened to me and took the time to look at my images. After the new MRI and CT scan he told me I had 3 loose screws. He had measured how far my neck was moving and showed me those as well which I was blown away by the amount of information he was able to provide after all my experiences. He said the movement is far too much and gave me the numbers of how far it should be moving compared to now. He suggested facet injections to see if I got any relief and this would build a case for us to make sure surgery would help and so forth. They did help a lot but only for about 1.5 weeks. After I had the injections I saw Dr. Ju again and still felt better and he suggested we wait to see how long it lasts and follow up a month later to do more X-rays and see if the movement has changed as in getting worse and see how I’m feeling still from injections. Now I am back to higher pain level and meet with him next week were I plan to discuss going through with the surgery. I am 37 year old female and don’t want to live this way and hope I can get better quality of life. But I am scared. Sorry for so much information it’s just I have not had much luck with anyone giving me advice or guidance and I am just thrilled you have responded with such wonderful information. I appreciate you taking the time to read all of this. It means so much to me I can’t even begin to express my gratitude toward you and this forum. If I understand correctly I can send copies of my X-rays and MRI Ct scans as well? I would love to have another experienced set of eyes look over them if possible. Thank you so much Dr. Corenman! You have already helped me more than you know!!!!

    Donald Corenman, MD, DC
    Moderator
    Post count: 8660

    Unfortunately, “pain doctors” are not surgeons. Some have a good understanding of surgical indications and others don’t understand these indications. The facet blocks did give you relief which indicates the facets are at least some of the pain generation problem but ultimately, it is the lack of fusion that is most likely the pain generator.

    You don’t note differences between neck pain and arm pain. One doctor’s comment “the bone spurs which were never shaved down was the cause of my pain and sent me to pain management to get injections” indicates you have continued bone spurs (uncovertebral joint hypertrophy) which could be compressing the nerve roots. If you still have arm pain, due to nerve compression, this would require an anterior approach to take out the non-united graft (whatever was used) and redo the fusion here with iliac crest bone graft.

    If no significant shoulder/arm pain and most of the pain is in the neck, a posterior fusion should work.

    Dr. Corenman

    PLEASE REMEMBER, THIS FORUM IS MEANT TO PROVIDE GENERAL INFORMATION ON SPINE ANATOMY, CONDITIONS AND TREATMENTS. TO GET AN ACCURATE DIAGNOSIS, YOU MUST VISIT A QUALIFIED PROFESSIONAL IN PERSON.
     
    Donald Corenman, MD, DC is a highly-regarded spine surgeon, considered an expert in the area of neck and back pain. Trained as both a Medical Doctor and Doctor of Chiropractic, Dr. Corenman earned academic appointments as Clinical Assistant Professor and Assistant Professor of Orthopaedic Surgery at the University of Colorado Health Sciences Center, and his research on spine surgery and rehabilitation has resulted in the publication of multiple peer-reviewed articles and two books.
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